So much to catch up on. It has been 3 days since I posted and I bet you all feel like it’s been a lifetime!

So much had happened. My mother in law, Pam, or Nana around here, flew in first thing Saturday morning! She hasn’t slept in weeks thinking about coming and seeing Maxley. Maxley and I are so excited to have her here and know she will bring a little of his daddy here with her. I have always loved Pam and I feel like we get along really well. I have always considered myself very lucky in the in-law department.

She held Maxley all day Saturday and was in Nana heaven. At 3:00, Maxley’s primary nurse, Chris, came to watch him while we went to the benefit. I am beyond lucky to have her. That was such a gift. I wasn’t worried about anything. I knew she had it covered and if something went wrong she would stay calm and call me or call 911, whatever she needed. She said she had a blast and just rocked him. He is so fussy these days that I do feel bad but hopefully he was decent enough. He still loves to cuddle so that’s nice.

The benefit was incredible!!! We had well over 300 people come to support, amazing! Thank you. Thank you to everyone who came, donated, volunteered, bought silent auction items, said hi, and all of the above. I felt the love that night. I can’t believe all of those people came for me and my son. They came because Scott was incredible. He was so amazing, people assume I must be pretty great for someone so cool to chose me. We raised over $18,000! I can’t believe it. I had no idea of any expectation of how the night would look but it far exceeded anything I thought. I am so blessed to have so many people take their Saturday night to come and show love.

I really want to do this every year but not do the fundraiser part. Just have people get together and love Scott, remember what an amazing person he was and what a legacy he left behind. It will probably be around the same time next year.

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Sunday morning I had a baby shower for my big sister in my sorority! She is having a little girl and due in just a few weeks! It was really fun to see everyone and think about her sweet baby girl coming into the world.

The rest of Sunday was spent watching Nana cuddle Maxley and she clearly can’t get enough. He slept terrible both Saturday and Sunday night. I tapped out at 3am or so this morning and my mom and Pam were racing in here to see who could get him first when he cried. I could get used to this but know I can’t.

We started teaching Pam his meds, feeding schedules, the pump, his diagnosis, medical equipment, his schedule, what to do when... and I think we scared her a little. He is overwhelming all at once. He is a lot and she is the first person to be alone with him besides mom and I. Randi was so very helpful and got it down but wasn’t ever alone with him so we didn’t have to explain what he acts like when his glucose drops or when to give meds, we just explained as we went. Randi was the first other person to stand up and walk with him, to change a diaper or any of that, it’s all been my mom and I up until now. I welcome the assistance.

So today Pam did the meds and the feedings with my moms supervision. She put him down for naps and learned how to turn his monitor on and what to do when it beeps. She already has most of it down and has been such a help! It’s hysterical watching the 3 of us tag team this tiny human.

for example: Tonight, mom and I gave him a bath which takes 2 people with his cords and all that. So her and I are doing that and Pam is doing his pump and meds and he is screaming and we are all running around frantically in my bathroom trying to calm him. He runs the universe and I think he knows it.

His diaper rash still hasn’t cleared up but the only thing that seems to be working is yogurt. Plain yogurt. Weird. We started yesterday and it’s working! So we were trying to slap yogurt on his tush and brush his hair while the other dries him off and starts his food. We are a sight to be seen. No wonder they had a whole nursing team at the hospital!

I keep saying this but I have NO idea how I will ever do this alone. It will be so lonely and so hard. I dread the day.
Until then, I will rely on the couple people who are offering to help take care of him. I need it.