Join the 14 donors who have made a tribute gift in honor of Maxley Russell
Your tribute gift is a donation to CaringBridge that’s made in dedication to Maxley Russell. For $50, you can power a page for one month, helping them stay connected to family and friends.
Will you join the 14 other donors who have kept this page online for Maxley Russell and for you?
September 22, 2018
We started the morning with Maxley’s first outing!!
We did a 5K for vasculitis. A woman named Terry set it up. Her son passed away of a different form of vasculitis than Scott had about 4.5 years ago. Their missing is to bring awareness of the disease to people and physicians. Doctors have never even heard of it so when you’re symptoms don’t go away, advocate! Don’t take no for an answer. Scott would maybe be here if we hadn’t.
I had so many family and friends show up for the walk. It’s amazing the support I feel from everyone. Maxley did really well on the walk, we bundled him good and he slept the whole time! It was a beautiful fall day and felt good to get out with him. It was nice we didn’t have to worry about feeding him!
He came home exhausted and so he slept most of the afternoon too. I was able to finish his room from putting the stuff from my baby shower away. The house is slowly coming together. People have been so incredibly generous since I was admitted and so I have so many amazing gifts to put away. From blankets my grandma has made for him to random gift baskets that show up in the mail, it’s so sweet and makes my day! Speaking of blankets, my grandma sewed over 100 blankets for us to donate to the Children’s hospital! They are so thankful and love the donations!
Mom and I finally relaxed after dinner and watched TV for the first time. We have been so busy since we got home we haven’t really relaxed with him much. If one person is holding him, the other is making formula, cooking, cleaning, making bottles, etc.
He slept through the night again except one diaper change!! Here is to another good night.
The picture:
This sums up the 99 days we spent in the hospital.
Some size comparisons; diaper, pacifier, booties and hat. The hat on the left wore the day he was born and it was actually way too big for him but it was lined with plastic to keep him warm for the first time I held him and the hat on the right was what he came out from surgery in 10 days ago.
My hospital bracelet. Maxley’s hospital bracelet. Glove so he didn’t pull on his cords. Maxley’s bili light shades. Fabric heart that I slept with and then put in the isolet so he could smell his mommy when I couldn’t hold him. Octi the octopus, he lived in his isolet so Maxley would pull on his tentacles instead of his cords. His blood pressure cuff. I’m sure there is stuff I am forgetting. If only I could put his nurses in there too!
We did a 5K for vasculitis. A woman named Terry set it up. Her son passed away of a different form of vasculitis than Scott had about 4.5 years ago. Their missing is to bring awareness of the disease to people and physicians. Doctors have never even heard of it so when you’re symptoms don’t go away, advocate! Don’t take no for an answer. Scott would maybe be here if we hadn’t.
I had so many family and friends show up for the walk. It’s amazing the support I feel from everyone. Maxley did really well on the walk, we bundled him good and he slept the whole time! It was a beautiful fall day and felt good to get out with him. It was nice we didn’t have to worry about feeding him!
He came home exhausted and so he slept most of the afternoon too. I was able to finish his room from putting the stuff from my baby shower away. The house is slowly coming together. People have been so incredibly generous since I was admitted and so I have so many amazing gifts to put away. From blankets my grandma has made for him to random gift baskets that show up in the mail, it’s so sweet and makes my day! Speaking of blankets, my grandma sewed over 100 blankets for us to donate to the Children’s hospital! They are so thankful and love the donations!
Mom and I finally relaxed after dinner and watched TV for the first time. We have been so busy since we got home we haven’t really relaxed with him much. If one person is holding him, the other is making formula, cooking, cleaning, making bottles, etc.
He slept through the night again except one diaper change!! Here is to another good night.
The picture:
This sums up the 99 days we spent in the hospital.
Some size comparisons; diaper, pacifier, booties and hat. The hat on the left wore the day he was born and it was actually way too big for him but it was lined with plastic to keep him warm for the first time I held him and the hat on the right was what he came out from surgery in 10 days ago.
My hospital bracelet. Maxley’s hospital bracelet. Glove so he didn’t pull on his cords. Maxley’s bili light shades. Fabric heart that I slept with and then put in the isolet so he could smell his mommy when I couldn’t hold him. Octi the octopus, he lived in his isolet so Maxley would pull on his tentacles instead of his cords. His blood pressure cuff. I’m sure there is stuff I am forgetting. If only I could put his nurses in there too!