Join the 14 donors who have made a tribute gift in honor of Maxley Russell
Your tribute gift is a donation to CaringBridge that’s made in dedication to Maxley Russell. For $50, you can power a page for one month, helping them stay connected to family and friends.
Will you join the 14 other donors who have kept this page online for Maxley Russell and for you?
September 18, 2018
Maxley passed his hearing test today. They hook him up to all of these wires and things and test the vibrations and waves. I don’t get it, but he passed!
He has been fussy and I think his stomach is taking longer to adjust to that new formula. He gained weight last nigh so I think he is up to 5lbs 11oz. He is still in preemie clothes and some are still too big but I think the sizing is off. He has outgrown only 2 items and they were both footie pjs.
We practiced measuring his med doses and we gave all of his meds. We practiced cleaning his g-tube and hope that we can do all this on our own soon.
Occupational therapy came today and gave us these braces to have Maxley wear on his wrists that attach to his thumbs. He clenches his first a lot with his thumb enclosed in his fingers like you were going to punch. They are worried it might hinder his ability to start grasping and grabbing so he has to wear them half of the day. Usually about 2 hours on and 2 hours off. It looks like he had carpal tunnel from typing on his laptop too much!
Physical therapy came and worked with him. Cardiology came by and his case worker, my mom stays busy when she is here all day with him. She is amazingly productive!
We will meet with the doctor tomorrow and find out more of an ETA on going home. I am not nervous to take him home or to take care of him. I am most nervous to be home. To be in the home that Scott and I JUST bought to raise a family, a big family! We wanted lots of kids and a dog or 2. We wanted a loud, fun house with tons of noise and laughter. Now it will be a house that’s way too big but I’m too attached to, with Maxley and I. Just us. My mom will stay for a while but she has to go eventually.
It’s horribly depressing and hard to breathe. I can not believe I am going to be taking my son home to our house without him. I hate this. I want my old life back. I want my overly excited husband who told everyone and anyone that I was pregnant. He was so proud and would have been far and away the best daddy.
Take me back to a time where life made sense and I was happy.
He has been fussy and I think his stomach is taking longer to adjust to that new formula. He gained weight last nigh so I think he is up to 5lbs 11oz. He is still in preemie clothes and some are still too big but I think the sizing is off. He has outgrown only 2 items and they were both footie pjs.
We practiced measuring his med doses and we gave all of his meds. We practiced cleaning his g-tube and hope that we can do all this on our own soon.
Occupational therapy came today and gave us these braces to have Maxley wear on his wrists that attach to his thumbs. He clenches his first a lot with his thumb enclosed in his fingers like you were going to punch. They are worried it might hinder his ability to start grasping and grabbing so he has to wear them half of the day. Usually about 2 hours on and 2 hours off. It looks like he had carpal tunnel from typing on his laptop too much!
Physical therapy came and worked with him. Cardiology came by and his case worker, my mom stays busy when she is here all day with him. She is amazingly productive!
We will meet with the doctor tomorrow and find out more of an ETA on going home. I am not nervous to take him home or to take care of him. I am most nervous to be home. To be in the home that Scott and I JUST bought to raise a family, a big family! We wanted lots of kids and a dog or 2. We wanted a loud, fun house with tons of noise and laughter. Now it will be a house that’s way too big but I’m too attached to, with Maxley and I. Just us. My mom will stay for a while but she has to go eventually.
It’s horribly depressing and hard to breathe. I can not believe I am going to be taking my son home to our house without him. I hate this. I want my old life back. I want my overly excited husband who told everyone and anyone that I was pregnant. He was so proud and would have been far and away the best daddy.
Take me back to a time where life made sense and I was happy.
0 comments