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September 17, 2018
Mom and I worked on giving him all of his meds today and practiced with his feeding pump. It all seems pretty easy but as soon as we get home and have to do it, we won’t be able to get it to work I’m sure! So we are trying to practice as much as we can here.
I think I have Maxley down but it’s all of his cares that are different from a “normal” baby. There are so many tubes, wires and things that it’s a lot to remember. Certain meds are 3 times a day, some are once a day but different times than his other meds, you have to clean his tube twice a day for so many weeks and then once a day. You have to rotate the tube 4 times a day for 6 weeks, etc. They might as well be speaking Spanish!
It’s all going to be on our discharge paperwork but to have to look it up when we get home is going to be a pain to do each time.
He slept about a 7 hour chunk last night with just 1 diaper change around 3am and then fell right back asleep. He does like waking up about 5:30 and be fussy but other than that he has been good. They don’t wake him for cares anymore since we are almost home. They do them when he is awake and up for it. Before, they had to do them like clock work and chart it all. It’s more flexible now.
I would really like to try to take care of him on my own when we get home. In a traditional situation the Mom stays home on maternity leave and the other parent goes back to work during the day. That was always going to be Scott and I’s plan and so I would like to try. I won’t be very good at it but we will just have to see. I’m a single parent now and people won’t be around forever. I have to try and make a life for Maxley and I.
I think I have Maxley down but it’s all of his cares that are different from a “normal” baby. There are so many tubes, wires and things that it’s a lot to remember. Certain meds are 3 times a day, some are once a day but different times than his other meds, you have to clean his tube twice a day for so many weeks and then once a day. You have to rotate the tube 4 times a day for 6 weeks, etc. They might as well be speaking Spanish!
It’s all going to be on our discharge paperwork but to have to look it up when we get home is going to be a pain to do each time.
He slept about a 7 hour chunk last night with just 1 diaper change around 3am and then fell right back asleep. He does like waking up about 5:30 and be fussy but other than that he has been good. They don’t wake him for cares anymore since we are almost home. They do them when he is awake and up for it. Before, they had to do them like clock work and chart it all. It’s more flexible now.
I would really like to try to take care of him on my own when we get home. In a traditional situation the Mom stays home on maternity leave and the other parent goes back to work during the day. That was always going to be Scott and I’s plan and so I would like to try. I won’t be very good at it but we will just have to see. I’m a single parent now and people won’t be around forever. I have to try and make a life for Maxley and I.