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September 16, 2018
Today was a really good day for Maxley. He was more himself and only spit up a couple times. That is normal for any baby! We didn’t need to vent him as much with his new tube and he bottled 3 partial bottles today. He was so happy and in a good mood most the day!
He is 5lbs 9 oz. He has bounced up and down from his IV fluids and retaining from surgery but he looks normal again.
The IV came out this morning and we are up to 18 ml per hour continuous feedings which is actually more than he was getting before surgery! We want to get him up to 22 ml per hour and we will be up to 20 tonight so we are pretty much there. We just need to do his car seat test and we can go HOME!!!!!!! We are hoping the next couple days, unless something big changes! Amazing news!
Getting ready for home we should have everything we need! People have been asking how to help and so my friend Megan set up a meal train. A meal train is a calendar of days that people can sign up to bring dinner to our house. You can just bring dinner and put it in the cooler on the porch! It can be ready to eat or ready to heat. There is instructions on our calendar link provided.
It’s so incredibly helpful to have one less thing to worry about when I get home from work. We would also love some small portion frozen meals to heat on nights we don’t have meals provided or weekends. ((My Mom is gluten and dairy free and since she will be living with me there are some restrictions))
I wanted to provide the link in case anyone wanted to sign up. It’s no pressure to at all! (grocery gift cards are appreciated too if you don’t live around here. I have a target grocery delivery service and we shop at Cub Foods)
https://www.mealtrain.com/trains/1mnr26
I am already so thankful for the love and support I have received already and I know Maxley is so loved by many of you. Thank you again.
I’m off to bed, tomorrow is Scott’s birthday and it’s going to be a rough one.
He is 5lbs 9 oz. He has bounced up and down from his IV fluids and retaining from surgery but he looks normal again.
The IV came out this morning and we are up to 18 ml per hour continuous feedings which is actually more than he was getting before surgery! We want to get him up to 22 ml per hour and we will be up to 20 tonight so we are pretty much there. We just need to do his car seat test and we can go HOME!!!!!!! We are hoping the next couple days, unless something big changes! Amazing news!
Getting ready for home we should have everything we need! People have been asking how to help and so my friend Megan set up a meal train. A meal train is a calendar of days that people can sign up to bring dinner to our house. You can just bring dinner and put it in the cooler on the porch! It can be ready to eat or ready to heat. There is instructions on our calendar link provided.
It’s so incredibly helpful to have one less thing to worry about when I get home from work. We would also love some small portion frozen meals to heat on nights we don’t have meals provided or weekends. ((My Mom is gluten and dairy free and since she will be living with me there are some restrictions))
I wanted to provide the link in case anyone wanted to sign up. It’s no pressure to at all! (grocery gift cards are appreciated too if you don’t live around here. I have a target grocery delivery service and we shop at Cub Foods)
https://www.mealtrain.com/trains/1mnr26
I am already so thankful for the love and support I have received already and I know Maxley is so loved by many of you. Thank you again.
I’m off to bed, tomorrow is Scott’s birthday and it’s going to be a rough one.