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September 3, 2018
Today was a day full of snuggles and smiles (mostly snuggles). He slept most of the day. We slept at RMH which was nice! We got our fav room and so we slept well. When we came in this morning he had his stickers off for his oxygen... not sure if I should get my hopes up but so far so good. He always does well with his oxygen levels when he is up on my chest but when he is laying he doesn’t do as well.
He has been really fussy around feeding time. He gets fed every 3 hours (8-11-2-5) and like clockwork he is STARVING and the only way to calm him is to give him a bottle. Normally we try and bottle every other so we don’t wear him out but lately we can’t calm him without it! I think that’s a really good sign! He took a full bottle this morning and then just little bits out of the others.
Mom and I walked to Lake street today (just under a mile) and went to a cool little Mexican restaurant. It was hot and muggy but nice to get out of the hospital. Maxley slept in his Mama Roo swing the whole time we were gone and forgave us for not bringing him enchiladas.
We have gotten to know the staff here really well and feel like we have had about every nurse but there are over 100 on staff so we couldn’t have. We love our primary nurses and it will be sad to not see them when we leave.
Yesterday when Kaitlin and I got back from the wedding we walked into the ICC to see Maxley and all the ladies at the front desk and all the nurses at each nurses station said hi to me and said, “oh, your back!?” Kaitlin asked if I felt like a celebrity because she felt like she was with one. Ha ha ha, it’s crazy when you live here. We have been here 13 weeks tomorrow and everyone has made this more bearable. The nurses are so kind and so friendly.
He has been really fussy around feeding time. He gets fed every 3 hours (8-11-2-5) and like clockwork he is STARVING and the only way to calm him is to give him a bottle. Normally we try and bottle every other so we don’t wear him out but lately we can’t calm him without it! I think that’s a really good sign! He took a full bottle this morning and then just little bits out of the others.
Mom and I walked to Lake street today (just under a mile) and went to a cool little Mexican restaurant. It was hot and muggy but nice to get out of the hospital. Maxley slept in his Mama Roo swing the whole time we were gone and forgave us for not bringing him enchiladas.
We have gotten to know the staff here really well and feel like we have had about every nurse but there are over 100 on staff so we couldn’t have. We love our primary nurses and it will be sad to not see them when we leave.
Yesterday when Kaitlin and I got back from the wedding we walked into the ICC to see Maxley and all the ladies at the front desk and all the nurses at each nurses station said hi to me and said, “oh, your back!?” Kaitlin asked if I felt like a celebrity because she felt like she was with one. Ha ha ha, it’s crazy when you live here. We have been here 13 weeks tomorrow and everyone has made this more bearable. The nurses are so kind and so friendly.
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