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August 27, 2018
Maxley is 5lbs 5oz and 18inches long! He has gained 3lbs 2oz and grown almost 4inches since he was born. That seems like so much for such a little man.
Today the cardiologist changed Maxley’s range of what the saturation level of the oxygen in his blood. He has a window of 10% now that he can be at, it used to be 5% so he should beep less now. He is also at 21% oxygen which is room air. It’s what you and I breathe. So, as long as he can do ok on this for a day or 2, he should be able to come off of the oxygen! That’s amazing! One less cord to deal with and less dinging. Of course, it’s just another great step toward going home. This wasn’t keeping us here since he could go home on oxygen but it would be nice to not have to.
Cardiology stopped by and will plan another echo this week. He doesn’t have to get his glucose checked for a while now. They had been pricking his heels several times a day for weeks now and they are so badly bruised and poked. I think he is actually traumatized from them and that’s why he flips out for his diaper changes.
It’s weird here (isn’t everything?) because you just change diapers and do cares and everything right on his bed. It’s the right height for all of that and the sides click down to make it easier but it’s a strange concept. You wouldn’t ever change their diaper in their crib at home! I think he is scarred from his pokes in his bed. We aren’t sure but we have a lot of time to come up with theories around here.
We talk a lot about the neighbors here and wonder what these other families are like! We have THE neighbor. Like the neighbor you hope doesn’t move in next door when they come to tour the house. Yup, I got lucky enough to have them. They get security called on them once every couple weeks. They little boy screams and swears and fights with the mom of he baby. It’s awful and entertaining. We feel bad for them both as nobody wants to be in this situation but they aren’t helping anyone.
Too bad my son will be perfect, he will never yell at me! :) Maxley also gave me a little smile tonight! He is just so sweet!
Today the cardiologist changed Maxley’s range of what the saturation level of the oxygen in his blood. He has a window of 10% now that he can be at, it used to be 5% so he should beep less now. He is also at 21% oxygen which is room air. It’s what you and I breathe. So, as long as he can do ok on this for a day or 2, he should be able to come off of the oxygen! That’s amazing! One less cord to deal with and less dinging. Of course, it’s just another great step toward going home. This wasn’t keeping us here since he could go home on oxygen but it would be nice to not have to.
Cardiology stopped by and will plan another echo this week. He doesn’t have to get his glucose checked for a while now. They had been pricking his heels several times a day for weeks now and they are so badly bruised and poked. I think he is actually traumatized from them and that’s why he flips out for his diaper changes.
It’s weird here (isn’t everything?) because you just change diapers and do cares and everything right on his bed. It’s the right height for all of that and the sides click down to make it easier but it’s a strange concept. You wouldn’t ever change their diaper in their crib at home! I think he is scarred from his pokes in his bed. We aren’t sure but we have a lot of time to come up with theories around here.
We talk a lot about the neighbors here and wonder what these other families are like! We have THE neighbor. Like the neighbor you hope doesn’t move in next door when they come to tour the house. Yup, I got lucky enough to have them. They get security called on them once every couple weeks. They little boy screams and swears and fights with the mom of he baby. It’s awful and entertaining. We feel bad for them both as nobody wants to be in this situation but they aren’t helping anyone.
Too bad my son will be perfect, he will never yell at me! :) Maxley also gave me a little smile tonight! He is just so sweet!
Marie Lukes — 8/28/18
Karen Ueland — 8/28/18
I have done daycare for almost 30 years. I find many babies just don't like to have their diapers changed and scream when you do so. These are healthy , normal babies. I guess the cool air and having someone wipe them with a cool wipe really isn't that comfortable. He is acting like a normal baby!!
Glenn and Iona Rozenberg — 8/28/18
Maxley is such a strong little guy. Hopefully it won't be too long until you are home with him.
Trish Chard — 8/28/18
Yes Hon MAXLEY IS PERFECT!!!!! How could he not be with such a LOVING CARING MOM AND DAD!!
You have to give him credit with all the tubes, needles, beeps, interruptions and chaos that must be his daily (and yours) routine he still has Smiles for All! 😘👍🏻
You have to give him credit with all the tubes, needles, beeps, interruptions and chaos that must be his daily (and yours) routine he still has Smiles for All! 😘👍🏻
way to go M on no more heel pricks and getting oxygen levels adjusted to normal!
always working on something!
happy 11 weeks little buddy!
xoxo love you!