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Maxley Russell Ferguson
241039
visits
Maxley Russell Ferguson
241039
visits
Maxley Russell Ferguson
241039
visits

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August 12, 2018

2 Months Old!



I can’t believe he is 2 whole months old. I feel like time is different here in the hospital.



It’s also National Elephant Day today. Anyone who knows me knows what a holiday this is for me! 🐘



Today he woke me up about 5:30 but I got a solid 5.5 hours of sleep so I felt pretty good! I went downstairs about 6:45 for breakfast at the cafeteria and came up and made coffee and snuggled with peanut the rest of the day. My mom came back up about 1 and we ran to target quick to get some groceries for work.

Ronald McDonald House is closed until Friday for remodel and we normally eat at least a couple meals a day there. It will be tough to not have that option for food.

His IV was compromised again and so they had to take this one out too. They called the doctor and they said to administer orally for tonight’s round and tomorrow we can ask the new rounding doctor if they want a new IV, a PICC or to continue orally for the next 7 days.

I hate to keep putting in new IVs if we can do it orally but the oral meds aren’t as strong so they might have to redo it. Putting one in takes a few pokes too. It doesn’t usually work the first time so it’s a lot for him to go through. He also does this weird crying thing where he turns beet red and stops breathing. It really freaks the nurses out. But, maybe it can go back in his leg this time. That makes clothes easier too.


He has been spitting up a few big ones a day but when we asked the doctor about it he said it was a laundry problem not a developmental one so that’s good. He is gaining well and up to 4lbs 10oz. He is still way behind but it’s progress.



He took 3 half bottles since 8am so in the last 12 hours he took 30% of his feeds orally. This is how they start to measure how well he does. They measure it on a full 24 hour basis. Once he is up to 80% orally they go to an ad lib method so they let him eat when he wants and not on schedule every 3 hours. Once he does that well, we go home.



People keep asking me when we are going home and the truth is nobody knows. I’ve been saying a couple weeks for a couple weeks and we aren’t close. I would say at least a month but your guess is as good as mine. We have been here 10 weeks as of tomorrow (Monday) and it’s hard to sleep here and go to work and leave work and come back here.

I think it will come to wear on me/ us but for now you do what you have to for your kids, hence why my mom is still here.