August 6, 2018
Maxley is up to 4lbs 3oz.
His glucose levels keep dropping and so they were able to get a lab draw and we met with endocrinology. His levels all came back relatively normal so they think it may be related to his chromosomal abnormality. They don’t know enough to say for sure but they put him a medication that should really raise his glucose levels. It’s not a permanent solution (at least they are hopeful it’s not). With growth, his pancreas should secrete insulin appropriately and he can get off the medication. They say usually after age 3 he should be able to get on growth hormone if/ when they fall behind in growth which can help with glucose too.
He has had a few really big spit ups too. His little tummy can’t handle the volume of feeds he needs to. It’s 2 steps forward and 3 steps back. He threw up so much and so hard today that his feeding tube came out his mouth (see attached picture). He is up and down with his bottles too.
It sounds like it could still be even a couple months in here. It’s really hard to hear. I am headed back to work on Wednesday. It’s going to be really hard, everything in my life reminds me of Scott. Being “back to normal” as people keep saying, is going to blow.
I joined our monthly conference call today since I’m headed back now. I was announced as sales person of the year. I am equally proud of myself and sick to my stomach. I did this for him, no question. We pushed each other and I know I am who I am because of him. God I miss him. I hope I still have motivation for M and I, I’m not sure how I’ll even live one more day much less succeed at my career without him. We were an amazing team.
Scott was awarded a top 25 salesman award for the 2nd year in a row at Luther, even after he had passed. It was so nice of them to give me the award to cherish. Scott was amazing at his job and took a lot of pride in it. He pushed himself and could do and sell anything he put his mind to.
I start therapy tomorrow, more to come with that. I hope my therapist is a good fit, I might have to Goldilocks until I find one that’s “just right.”
We are planning the Vasculitis Walk in Prior Lake on September 22nd. I would love to raise awareness and funds for this horrible disease. Email me for more information, I would love for anyone to join! Kelseyjeanferguson@gmail.com
His glucose levels keep dropping and so they were able to get a lab draw and we met with endocrinology. His levels all came back relatively normal so they think it may be related to his chromosomal abnormality. They don’t know enough to say for sure but they put him a medication that should really raise his glucose levels. It’s not a permanent solution (at least they are hopeful it’s not). With growth, his pancreas should secrete insulin appropriately and he can get off the medication. They say usually after age 3 he should be able to get on growth hormone if/ when they fall behind in growth which can help with glucose too.
He has had a few really big spit ups too. His little tummy can’t handle the volume of feeds he needs to. It’s 2 steps forward and 3 steps back. He threw up so much and so hard today that his feeding tube came out his mouth (see attached picture). He is up and down with his bottles too.
It sounds like it could still be even a couple months in here. It’s really hard to hear. I am headed back to work on Wednesday. It’s going to be really hard, everything in my life reminds me of Scott. Being “back to normal” as people keep saying, is going to blow.
I joined our monthly conference call today since I’m headed back now. I was announced as sales person of the year. I am equally proud of myself and sick to my stomach. I did this for him, no question. We pushed each other and I know I am who I am because of him. God I miss him. I hope I still have motivation for M and I, I’m not sure how I’ll even live one more day much less succeed at my career without him. We were an amazing team.
Scott was awarded a top 25 salesman award for the 2nd year in a row at Luther, even after he had passed. It was so nice of them to give me the award to cherish. Scott was amazing at his job and took a lot of pride in it. He pushed himself and could do and sell anything he put his mind to.
I start therapy tomorrow, more to come with that. I hope my therapist is a good fit, I might have to Goldilocks until I find one that’s “just right.”
We are planning the Vasculitis Walk in Prior Lake on September 22nd. I would love to raise awareness and funds for this horrible disease. Email me for more information, I would love for anyone to join! Kelseyjeanferguson@gmail.com
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Trish Chard — 8/7/18
We all feel You are amazing Sweetie and I just know that Scottie is watching over You and Maxley and is so VERY PROUD!!!!
LOVE YOU 😘 XOXOX