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July 9, 2018
Mom and I started our morning at 6am when the eye doctor came in to look at Maxley’s eyes. They were dilated at 5:30 and then she came in and put these things under his eyelids to keep them open. That was hard to listen to him scream but... he passed!! His eyes are mature and so he doesn’t need another eye exam until he is one unless I think otherwise (lazy eye, etc.) Our primary nurse, Chris, said she hardly ever sees babies pass on the first exam! GO MAXLEY!!
We were able to drift in and out of sleep after that until about 8:45 since we were back in his room last night, it’s pretty noisy in here. He was really stressed from his eye exam and so he kept desaturating so his alarms were going off every few minutes. Most babies heart rates drop all day and their bodies get really stressed. M did ok, considering but it’s hard to listen to his alarms go off all day because they are annoying, you don’t know how to help and you just don’t get any relief from the constant beeping and babies crying in the ICC unit. His eyes were red and puffy most the day and he couldn’t open them for several hours, he was also kinda out of it. It’s weird seeing him act different than his normal self, even though I am still getting to know him and his personality!
He is up to 3lbs 3oz and has officially grown an inch! (I think we were told he had before but we think that was an error, now he officially has!)
His Bolus feeds are trucking along. His glucose is so up and down and they were checking it every 2 hours and so having to poke him that often sucks. They decided to slow down his feeds since there is no rush and just keep it at 75 minutes of feeding, and 45 minutes of no food. Sounds like we will stick with this for a few days. His glucose levels are pretty stable at his time level.
Tomorrow we are meeting with the funeral home and church for the funeral on the 21st. It will be a hard day but I have to get through it.
We were able to drift in and out of sleep after that until about 8:45 since we were back in his room last night, it’s pretty noisy in here. He was really stressed from his eye exam and so he kept desaturating so his alarms were going off every few minutes. Most babies heart rates drop all day and their bodies get really stressed. M did ok, considering but it’s hard to listen to his alarms go off all day because they are annoying, you don’t know how to help and you just don’t get any relief from the constant beeping and babies crying in the ICC unit. His eyes were red and puffy most the day and he couldn’t open them for several hours, he was also kinda out of it. It’s weird seeing him act different than his normal self, even though I am still getting to know him and his personality!
He is up to 3lbs 3oz and has officially grown an inch! (I think we were told he had before but we think that was an error, now he officially has!)
His Bolus feeds are trucking along. His glucose is so up and down and they were checking it every 2 hours and so having to poke him that often sucks. They decided to slow down his feeds since there is no rush and just keep it at 75 minutes of feeding, and 45 minutes of no food. Sounds like we will stick with this for a few days. His glucose levels are pretty stable at his time level.
Tomorrow we are meeting with the funeral home and church for the funeral on the 21st. It will be a hard day but I have to get through it.