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Maxley Russell Ferguson
240993
visits
Maxley Russell Ferguson
240993
visits
Maxley Russell Ferguson
240993
visits

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Genetics Update

Since we were advised of possible chromosomal abnormalities around 24 weeks of pregnancy, after he was born we decided to do a test on his cord blood for genetics.







We got his genetics screening back and he has a deletion (missing piece) of chromosome 12. It sounds like it affects his growth among other things which explain why he was so small in utero. So, he will be small his whole life. He will be in the 2nd - 3rd percentile for height and weight and can have developmental challenges along with that. Speaking and motor skills may come later than other kids. We will put him in some programs and things to help early on and get ahead of the challenges he is sure to face.







Overall, not the worst news considering the initial diagnoses was terminal back in April but disappointing for sure. I am hoping his “Scott” genetics of his dad being 6’6” shine through more than his missing chromosome piece and he will be bigger than they expect but for now we can go off of the small bits of research we have seen.







Maxley has already shown us how brave, strong and resilient he can be. He will no doubt continue to show us those things despite his “differences.”







I hope as his mom, I can learn those things too.