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Thanks for visiting our guestbook!(This is an open guestbook. Please feel free to add an entry to the guestbook for others to read.)IF YOU DON'T SEE YOUR ENTRY AFTER ADDING -- PLEASE CLICK ON RELOAD/REFRESH Click here to sign the guestbook. Click here to go back to the main page. I Mona how are thing going? Have alot going on I went down by Allen's all is good there. They have not sold ther house but I am sure it will get there soon. bonnie godin <bongodin@aol.com> appleton, wi usa - Monday, March 16, 2009 5:23 PM CDT kaylablair how is she doing I am friend of grandmother tamera betty mittan <bjm_540@yahoo.com> bakersfield, ca kern - Tuesday, August 19, 2008 10:52 PM CDT my friend just found out her child which is 10 months old is the only child in west virginia to have MPS-1. she is not doing so well. my friend is overwhelmed. i hope things work out. and for you as well. your such a sweet looking boy. clara thomas <clarathomas_63@yahoo.com> alderson, west virginia us - Wednesday, June 4, 2008 9:26 AM CDT Wishing you a very Merry Christmas and a Happy New Year! Love and Hugs, Tami Slawson Tami - Wednesday, December 19, 2007 3:20 PM CST printer :: [url=http://haappowin648.150m.com]printer[/url] :: http://haappowin648.150m.com printer :: printer <printer> Washington, Washington USA - Tuesday, June 26, 2007 12:41 AM CDT printer :: [url=http://haappowin648.150m.com]printer[/url] :: http://haappowin648.150m.com printer :: printer <printer> Boston, Boston USA - Friday, June 22, 2007 5:04 PM CDT printer :: [url=http://haappowin648.150m.com]printer[/url] :: http://haappowin648.150m.com printer :: printer <printer> Washington, Washington USA - Friday, June 22, 2007 6:12 AM CDT printer :: [url=http://haappowin648.150m.com]printer[/url] :: http://haappowin648.150m.com printer :: printer <printer> Toronto, Toronto USA - Thursday, June 21, 2007 6:32 PM CDT  Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III)  BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>- Saturday, March 17, 2007 6:56 PM CDT A New Update!!!! Yeah! I'm glad to hear that Max is continuing to do so well! I love the new pictures, everyone looks great! Love, Jennifer & Allison jennifer Restemayer <jennmarie@bis.midco.net> Bismarck, ND USA - Sunday, February 25, 2007 1:49 PM CST hello this is amanda max's sister. I am glad that everyone was able to see my little brother. Amanda Forand Millville, NJ - Friday, February 9, 2007 1:40 PM CST Wow, been along time since we have seen Max and let me tell you the boy is getting BIG !!!! Glad to see he's doing so well. Jillian really had a great time playing with Max & Amanda. Hugz and prayer's Peace The Tobolski's <tobozone@comcast.net> Vineland, - Saturday, January 27, 2007 6:50 PM CST Hey, thanks for the update...... I thought I was bad!!! lol I love the new pics, looking forward to more close together updates too!! Tell Max that Austin says hello! carolyn caucci <tweet84675@verizon.net or www.caringbridge.org/page/austinc> philadelphia, pa - Monday, January 15, 2007 12:58 AM CST OK First update Second delete the evil ones posts. LOL Just wanting to wish you a very happy 2007!! Hugs, Tami Tami Slawson <TLSlawson@aol.com> - Wednesday, December 27, 2006 5:20 PM CST Hope you all have a Merry Christmas and a Happy New Year. Can't wait to hear about it on your next update!! Tracy, Dennis, Emily & Lauren Morales Vineland , NJ - Saturday, December 23, 2006 8:14 PM CST  Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>- Tuesday, October 31, 2006 10:04 AM CST Enough already!! I need an UPDATE! Don't make me fly to FL! LOL Love and Hugs, Tami <TLSlawson@aol.com> - Saturday, September 9, 2006 6:10 PM CDT I am so delighted to hear about Max's progress!! It is looking like my 21m old has some form of MPS and to read Max's story with all his great health and successes was very heartwarming. Much love to all of you. Amy Donaldson - Friday, September 1, 2006 10:06 PM CDT  Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com> - Sunday, July 2, 2006 1:22 PM CDT  Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy - BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com> - Saturday, April 15, 2006 4:42 PM CDT Happy Easter Love Tina,Padraic,Amy+Sophie Tina <tina@melroseroad.co.uk> London, UK - Friday, April 14, 2006 1:41 PM CDT HELLO, HOW IS EVERYONE IN MILLVILLE? I AM THINKING ABOUT YOU! LOVE AUNT DIANNE DIANNE FORAND <Forand2@yahoo.com> PAULSBORO, NJ USA - Sunday, April 9, 2006 9:02 AM CDT  Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy - BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com> - Saturday, April 8, 2006 11:41 AM CDT  Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy - BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com> - Thursday, March 16, 2006 10:20 AM CST  Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com> - Saturday, March 4, 2006 9:04 PM CST Hey Paul, congrats to you and Kelly!!! I know you will have a lifetime of happiness!!! Wow a golf event!! That's is soooooooo great! Keep up the good work! I will be thinking of you guys! Love and Hugs, Tami ( www.caringbridge.com/ca/slawson ) <tlslawson@aol.com> - Thursday, February 23, 2006 6:29 PM CST Hey Paul, congrats to you and Kelly, I have been wondering how you have all been since there has been no update! (can you hear me yelling at you??!!!) I know how it is though, I never get the chance to update anymore and it just seems that life is so (dare I say it) "normal"? Give Max a big hug from me and Austin!! Please keep me updated on the golf outing, we have run several of them over the years for various foundations so any questions call me and also I will have a ton of people that will go!! If you need any help getting it together please let me know as I would love to be involved with it! give me a call, (H) 215-632-3965 or cell 215-410-4341 carolyn and austin caucci <tweet84675@verizon.net or www.caringbridge.org/page/austinc> philadelphia, pa usa - Thursday, February 16, 2006 8:34 AM CST  Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com> - Sunday, February 12, 2006 5:30 PM CST Just popping in to say hello!!!   Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com> - Thursday, January 26, 2006 2:00 AM CST Merry Christmas and Happy New Year. Love Tina,Padraic,Amy+Sophie Tina <tina@melroseroad.co.uk> London, UK - Saturday, December 24, 2005 3:34 PM CST HI,IM GLAD TO SEE YOU DOING SO WELL.LOVE TOSHA AND SYDNEY. WWW.CARINGBIDGE.COM/SYDNEYVANHOOK. LATOSHA VANHOOK BLOOMINGTON, ILLINOIS USA - Wednesday, November 30, 2005 7:49 PM CST  Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com> - Thursday, November 24, 2005 0:54 AM CST HI eVERYONE. We (ME, Dennis and G.G.G. ) have been enjoying your photos. Every child is so beautiful. Looking forward to seeing you next week. love Aunt Pat, Uncle Dennis and G.G.G. pat gearhart <pattibgearhart@yahoo.com> bellmawr, nj USA - Sunday, November 6, 2005 5:48 PM CST   Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com> - Thursday, October 20, 2005 2:48 PM CDT HI Everyone So sorry I haven't written soon. Don't really know where the time goes. Just know we think of you all often. Yeah!!!!!!!!!!that Max is doing so good. We Continue to keep ALL of you in our prayers. Hope to see you soon. love Aunt Pat and Uncle Dennis pat and dennis gearhart <pattibgearhart@yahoo.com> bellmawr, nj USA - Sunday, October 16, 2005 6:59 PM CDT Hi, This is Aunt Dianne and Uncle Dave, We are happy to hear max is doing well, Uncle Dave says GO EAGLES also!!!!Aunt Dianne rolls eyes, and says (ho boy!)God bless and take care. We hope to see you soon! Love, Aunt Dianne and Uncle Dave dianne forand <forand2@yahoo.com> paulsboro, nj usa - Tuesday, October 11, 2005 8:30 PM CDT  Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com> - Tuesday, October 4, 2005 1:27 AM CDT Have a great year in school Max! Janelle (Alli's Nana) Janelle Kunellis <janellekunellis@yahoo.com> - Tuesday, September 27, 2005 6:09 AM CDT CAN'T BELIEVE THE SUMMER IS OVER ALREADY. MAX LOOKS GREAT!!!!!!!. So glad to hear the summer was fun.Hope Everyone is doing well too. We are all fine here We are just waiting for Ava Rose'S HEART echo in a few weeks, to know if Dupont is back in our future. Thinking of ALL OF YOU LOVE Aunt Pat and Uncle DENNY PAT AND DENNIS GEARHART <pattibg@verizon.net> BELLMAWR, NJ USA - Tuesday, August 30, 2005 5:14 AM CDT  Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com> - Saturday, August 13, 2005 2:39 PM CDT  Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com> - Saturday, July 30, 2005 1:40 PM CDT HI EVERYONE Always good to hear that Max is doing well.Your summer sounds busy...but good busy. I am hoping , one day Ava will be as active as Max is now. Ashley had her to the dr. yesterday. It seems her Aorta is narrowing again, which could mean more heart surgery. Ashley has another appointment in September. iT SEEMS THESE "WONDERFUL " CHILDREN are keeping us all on our toes. And really on our knees! It's encouraging to see how Max has been doing these past few years. Keep up the good work.!!!!!! We love you all Aunt Pat and Uncle Dennis pat and dennis gearhart <pattibgearhart@yahoo.co,> bellmawr, nj USA - Thursday, July 21, 2005 9:40 PM CDT Sounds busy and FUN!!! Janelle (Alli's Nana) Janelle Kunellis <janellekunellis@yahoo.com> - Thursday, July 7, 2005 9:32 PM CDT I hope you all have a wonderful 4th of July!!!  Alicia , Ciara, Hunter & ^^Angel^^ Tommy Bennett Children's Journal <Lumberhead@twinwolf.net> - Saturday, July 2, 2005 6:55 PM CDT  Alicia , Ciara, Hunter & ^^Angel^^ Tommy Bennett Children's Journal <Lumberhead@twinwolf.net> - Sunday, June 19, 2005 10:44 AM CDT Max! Your smiles aways make me smile too! I read, I watch and I listen to your parent's words. You all are so lucky to have each other!!! Hugs, Janelle (Alli's Nana) Janelle Kunellis <janellekunellis@yahoo.com> - Saturday, May 28, 2005 8:33 PM CDT I am so happy to see Max doing so good. Maybe we could get to one of his games. Please tell Christine we are praying for her. We have a new granddaughter, also still in the NICU .My... this family is certainly learning a lot. Hope to see you all soon. love Aunt PAT and Uncle Dennis Pat and Dennis Gearhart <pattibg@yahoo.com> bellmawr, nj USA - Monday, May 23, 2005 5:34 PM CDT http://www.mpsrun.com/images/AlliHigh.wmv My Granddaughter's video on two years of her infusions. Smiles, Janelle Janelle Kunellis <janellekunellis@yahoo.com> - Tuesday, May 17, 2005 8:21 PM CDT Happy Mother's Day Love Tina,Padraic,Amy+Sophie Tina <tina@melroseroad.co.uk> London, UK - Sunday, May 8, 2005 8:38 AM CDT Happy Mother's Day! Janelle (Alli's Nana) Janelle Kunellis <janellekunellis@yahoo.com> - Saturday, May 7, 2005 9:06 PM CDT  Alicia , Ciara, Hunter & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net> - Thursday, May 5, 2005 5:13 PM CDT hi, its me great aunt dianne again!!!!!!!!!god bless you and your family. I know this is probably not the appropriate venue to ask a favor, but, do you think you Paul, Kim and Kelly could possibly foward recent school pictures to me , and if you could ask your siblings, Paul i would appreciat it. I try to keep my refridgerator picture gallery up to date.and it is difficult with all the family members. Thanks and god bless. dianne forand <forand2@yahoo.com> paulsboro, nj usa - Tuesday, May 3, 2005 11:48 AM CDT Hey Max! You look awesome!!!! Hugs, Janelle (Alli's Nana) Janelle Kunellis <janellekunellis@yahoo.com> - Tuesday, April 26, 2005 7:55 PM CDT I am so glad Max was able to get out of the hospital without having to spend too much time there! Strep infections can be so awful! Please give him a hug and a kiss for me! Paul~ Thanks again for the info on the home infusions! I really think talking directly to Terri made a big difference and is why we are getting them now! :) Love, Jennifer Jennifer Restemayer <jennmarie@bis.midco.net> Bismarck, ND 58501 - Sunday, April 17, 2005 9:36 PM CDT Praying that everything is ok for your sister. Love Tina,Padraic,Amy+Sophie Tina <Tina@melroseroad.co.uk> London, UK - Monday, April 4, 2005 3:05 AM CDT Blessed Easter to all of you. Janelle (Alli's Nana) Janelle Kunellis <shoe111550@yahoo.com> - Saturday, March 26, 2005 11:24 PM CST HAPPY EASTER!!! Alicia , Ciara, Hunter & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net> - Saturday, March 26, 2005 7:35 PM CST  HAPPY EASTER ANDREW'S WORLD Paulina and Andrew Jump MPS III B <caljump@msn.com > Sparta, Ky USA - Saturday, March 26, 2005 10:01 AM CST HAPPY EASTER LOVE KATHY AND KATILYNN www.caringbridge.org/ky/katilynnsmom KATHY AND KATILYNN PRESTON <katilynnsmom@yahoo.com> tomahawk, KY USA - Friday, March 25, 2005 5:17 PM CST Happy Easter Love Tina,Padraic,Amy+Sophie Tina <tina@melroseroad.co.uk> London, UK - Thursday, March 24, 2005 3:54 AM CST You BET! Brag about those kids of yours!!! I am as proud as I can be as well. All our thoughts and best wishes heading your way!! Hugs, Janelle (Alli's Nana) Janelle Kunellis <shoe111550@yahoo.com> - Monday, March 21, 2005 5:04 PM CST Paul and I went to Max's Parent teacher conference last week. His teachers are very impressed with his development. They feel he is doing great. He is definately ready for Kindergarden next year. Paul and I were also very impressed. We know he is an amazing child, but I just can not find the words to express my pride in him. They showed a self portrait that he drew in the beginning of the year and one he drew recently, what an amazing difference. I can say I floated out of the conference I was so happy for Max and could not have been any happier. It is always so thrilling to hear someone talk about how well your child is doing. I don't mean to brag but I am THRILLED and so very, very proud of him. Amanda and Max are both taking swimming lessons and doing very well. Amanda is learning the proper strokes so if she wants to join the swim team later she can. Maxwell is learning to swim. I had to go in the pool with him for the first two lessons. This week he went in all by himself with his teacher. I can't wait, he will be willing to go in a pool this summer and not just sit on the steps. I am signing Amanda up for Softball this week and I am trying to sign Max up for T-Ball. I think it will be good for him to try since he likes hitting the ball so much. Wish us luck. Hopefully it will go better than Soccer. Try everything once and if it does not work out then we will try something different next time. I have gone on enough, I hope everyone is doing well. I am only on the computer at work and do not get to post or check into other sites often but I appreciate everyone's support and do think of you often. Thanks again. Kim Forand <kforand@bnh.org> Millville, NJ - Saturday, March 19, 2005 8:42 AM CST hey everyone! love the new update, yeah I thank God every day that Austin is a boy and hopefully wont be in to those sleepovers!! He did have his friend spend the night a couple weeks ago for the first time and they were up till about 2am (and crazy me, I had a 3 hour job interview the next morning at 7am!) they had fun though. We are so happy that spring is supposedly around the corner, we will definetly have to get together again soon! We had fun! carolyn and austin caucci <tweet84675@verizon.net or www.caringbridge.org/page/austinc> philadelphia, pa usa - Thursday, March 17, 2005 4:04 PM CST  Alicia , Ciara, Hunter & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net> - Thursday, March 17, 2005 3:30 PM CST Here's betting you won't have another sleep over again!!!(I only did it once!)Glad Max is well and doing good!! love Laura (mum to Will MPS2) Laura Brodie <labro4will@yahoo.co.uk> Birmingham, England - Monday, March 14, 2005 1:34 PM CST I, too, have noticed how tall Max is getting. GREAT!!! All sounds well and tell me about girls and all night sleep overs!!!!! They are all the same and it takes days to catch up on sleep missed!! lol Janelle (Alli's Nana) Janelle Kunellis <shoe111550@yahoo.com> - Sunday, March 13, 2005 8:54 PM CST Just found your site. Max will be in my prayers. Tina & ~Lance~ <lneonkia@comcast.net> - Sunday, March 13, 2005 8:18 PM CST Hi Max sweetie! Just wanted to stop by and send you big ol huggerz from all of us at the Bridge of Dreams! You are on our minds, in our hearts and in our prayers! Blessingz & Hugz, Melissa  Bridge Of Dreams Melissa <melissa@bridgeofdreams.org> Lancaster, CA USA - Thursday, March 10, 2005 11:57 AM CST Great photo, very cool. Glad things are going well Love Tina,Padraic,Amy+Sophie Tina <tina@melroseroad.co.uk> London, UK - Monday, March 7, 2005 12:04 AM CST Hi Max, Just wanted to stop in and say hi. you are in our thoughts and prayers. Jaime www.caringbridge.org/nj/jaimelynn <jaime13042@aol.com> nj usa - Monday, March 7, 2005 6:03 AM CST  Alicia , Ciara, Hunter & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net> - Monday, February 14, 2005 9:36 AM CST HAPPY VALENTINE'S DAY TO ALL!! Love, Janelle (Alli's Nana) Janelle Kunellis <shoe111550@yahoo.com> - Monday, February 14, 2005 6:40 AM CST hey guys!!! yeah i have been avoiding the dreaded line, "how bout those eagles?" oh well, we'll get em next year! me and Austin went to the mall and he wanted to make wishes in the wishing thing so he said he wished that the eagles won, i told him my wish was that we didnt embarress ourselves! (maybe i should have wished for a win!!!) well, we had a taste of it and they'll want that taste again next year! Lets just hope it doesnt take 4 superbowls for a win !! lol great news with the underwear at night!! Austin went almost a full year without wearing the pull ups and then started wearing them again last year and we just stopped again last week, I ran out of pull ups and I told him I was not buying them anymore! He has only had 2 accidents in almost 2 weeks and he was sick last weekend so I couldnt blame him, he was knocked out on cough meds! Well, we definetly have to get together again, we had lots of fun together! Maybe we could do a phillies game?!!! I still havent seen the new park yet! Well, I have babbled on and on enough ! talk to ya soon carolyn caucci <tweet84675@verizon.net carolync@uservices.com www.caringbridge.org/page/austinc> philadelphia, pa usa - Tuesday, February 8, 2005 8:28 PM CST Great News about the pullups. Still trying at our house. Sorry about the Eagles. Keep up the good work with the infusions. Jeanne and "Taylor" Blair <jbbbtbbb@cox.net or caringbridge.org/va/taylor_blair> Va Beach, Va USA - Monday, February 7, 2005 3:54 PM CST  Alicia , Ciara, Hunter & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net> - Wednesday, February 2, 2005 0:05 AM CST Just checking in to see how Max is doing. Everything about the home infusions sounds great! We are hoping that for Alli soon! Smiles, Janelle (Alli's Nana) Janelle Kunellis <shoe111550@yahoo.com> - Monday, January 24, 2005 4:21 PM CST WELL I MUST SAY, WE DID IT!!!!!! WOOOOO HOOOOOOO GO EAGLES!!!!!! OK NOW THAT IS OUT OF THE WAY, CONGRATS KELLY AND PAUL, SO HAPPY FOR YOU GUYS! SORRY I HAVENT SIGNED IN SO LONG BUT WE HAVE BEEN SO BUSY! TALK TO YA SOON, CAROLYN AND AUSTIN CAUCCI <TWEET84675@VERIZON.NET OR WWW.CARINGBRIDGE.ORG/PAGE/AUSTINC> PHILADELPHIA!!!!!!! GO EAGLES!, PA - Monday, January 24, 2005 8:24 AM CST Hello, Just thinking of our MPS children. Kelly welcome to the forum. You can find Reilene and Nikkolas' site through the links on the forum.Don't forget to sign the guest book. Hope Max is feeling better! Gabrielle Rivas <gabbi_001@msn.com> South El Monte, ca USA - Friday, January 21, 2005 6:44 PM CST Congratutlations Kelly and Paul. I am in the process of reading your entry on the forum Kelly. Glad you signed in. Anne Anne Himes <arhimes@msn.com www.caringbridge.org/page/andrewh> Boonsboro, md USA - Thursday, January 20, 2005 12:40 AM CST Hey Paul, Congratulations!! I wish only the best for you and Kelly! Poor Max.... I hope he heals quickly!! Love and Hugs, Tami ( www.caringbridge.com/ca/slawson <tlslawson@aol.com> - Thursday, January 13, 2005 8:58 AM CST Max I hope that your finger gets better soon and hoping you have a better year in 2005. You are just the cutiest little boy...my prayers goes to all in his family, God bless you guys, I know it gets rough but God has all the answers to things that lie in his hands, so put faith in God and he will take care of this in his own ways, HUGS to you MAX : ) GET WELL SOON,BUDDY!! Gladys Miller <hotfox81@aol.com> Clear Fork, WV USA - Monday, January 10, 2005 1:47 AM CST Your son is a cutie patutie!! Gabrielle Rivas <gabbi_001@msn.com> South El Monte, c USA - Sunday, January 9, 2005 10:13 PM CST Hapy New Year to everyone. The pictures are great . Max looks GOOD and ready to enjoy 2005. Amanda is growning prettier every day. Happy to hear about you and Kelly, It takes a special lady to want to walk into a life that might not always be easy. HOPE TO SEE YOU ALL SOON. LOVE Aunt Pat and Uncle Dennis Patti and Dennis Gearhart <PATTIBGEARHART@YAHOO.COM> Bellmawr, NJ USA - Friday, January 7, 2005 2:54 PM CST Congrats Paul and Kelly!!!!! We wish you the best! I'm so glad Max's infusions are going well at home! I will keep you posted when I hear anything about Alli getting home infusions. So sorry to hear that Max broke his finger :( I hope he is feeling better! Love, Jennifer Jennifer Restemayer <jennmarie@bis.midco.net> Bismarck, ND USA - Thursday, January 6, 2005 9:17 PM CST Dear Max & Family Sending prayers and wishes for a safe, healthy and happy 2005 from all of us over here at Bridge of Dreams, www.bridgeofdreams.org . May your New Year be filled with love, laughter and lots and lots of smiles! Blessingz & Big Huggerz, Melissa Melissa <myss911@juno.com> Lancaster, CA USA - Monday, January 3, 2005 10:34 AM CST  Alicia , Ciara, Hunter & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net> - Friday, December 31, 2004 12:24 AM CST Merry Christmas! Janelle (Alli's Nana) Janelle Kunellis <shoe111550@yahoo.com> - Saturday, December 25, 2004 4:14 AM CST Have a very Merry Christmas ! love Laura(mum to Will MPS2) Laura Brodie <labro4will@yahoo.co.uk> Birmingham, England - Friday, December 24, 2004 2:59 PM CST  Alicia , Ciara, Hunter & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net> - Friday, December 24, 2004 1:24 PM CST Merry Christmas!! I'm so glad the home treatments are going well. Trust me you will get spoiled very fast! Keep up the good work Max, You are just toooo cute! Love and Hugs, Tami Slawson (www.caringbridge.com/ca/slawson ) <tlslawson@aol.com> - Friday, December 24, 2004 8:37 AM CST What a wonderful heart warming story... kids say the cutest things and isn't it fun to be able to listen? Merry Christmas!! Janelle (Alli's Nana) Janelle Kunellis <shoe111550@yahoo.com> - Saturday, December 18, 2004 0:51 AM CST Super! Home infusions!!!! I am hoping that Alli can get them soon too but ND is a bit S-L-O-W-E-R when it comes to doing what the rest of the nation has already done. Thanks for the update! Smiles, Janelle (Alli's Nana) Janelle Kunellis <shoe111550@yahoo.com> - Sunday, December 12, 2004 10:23 PM CST Yea MAX!!! We are so excited for you guys! I'm so happy you are doing home treatments. It will make your life so much easier. We call home treatment day "Movie Day" at our house and my kids each get to pick a movie and we have pizza for lunch. So make sure your Dad does something special for your treatment days too! (evil grin LOL). If you have any questions call me. I glad I fought so hard to get home treatments because now cute little boys (and girls) can get their treatment at home now too. I'm doing the happy dance! I'm not sure how far disney world is from your house but we will be in FL in March 2005 and although we will be very busy granting Sammie's Make a Wish maybe we could get together for dinner or something??? Keep it in mind? Happy Home Treatment Day!!!!! Love and Hugs, Tami Slawson (www.caringbridge.com/ca/slawson ) <TLSlawson@aol.com> La Verne, CA - Friday, December 3, 2004 7:50 AM CST Hi Max! It seem as though you are just 3 days older than Elliot (April 19, 2000) who also has Hurlers (Transplanted 12/26/2001). We also live just up the street in New Hampshire, you know 5 or 6 hours up the street. I love your pictures, it looks as though you are just as busy as Elliot. We will be checking on you often! You can visit Elliot at www.caringbridge.com/nh/elliot Kristin L Mattheson <krmattheson@verizon.net> Jaffrey, NH - Thursday, December 2, 2004 6:27 PM CST Hi Max!!! Love the picture and love that you are getting treatment. : ) Andrew’s Journal Paulina Jump <caljump@msn.com> Sparta, Ky 41086 - Thursday, December 2, 2004 4:57 PM CST Max I finally found the sight didnt take to long about 6 months. Enjoyed the pictures and hope you dont mind that I printed the one of you and Triston on the first day of school. We are going to be working on a little fund raiser. And will be updating you on the info when details are complete. Have a wonderful Thanksgiving... Love Cheryl and Rusty Cheryl Hyson <Chyson325@aol.com> Millville , nj cumb - Monday, November 22, 2004 6:31 AM CST Hi Max, Just checking in to say Hi!!! Janelle (Alli's Nana) j <shoe111550@yahoo.com> - Thursday, November 4, 2004 6:57 PM CST  Alicia , Ciara, Hunter & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net> - Friday, October 29, 2004 1:39 PM CDT HAPPY HALLOWEEN!!!!  Trisha Athy caringbridge.org/il/aaronathy <aaronsmom1027@sbcglobal.net> Belleville, IL - Monday, October 25, 2004 3:35 PM CDT  Alicia , Ciara, Hunter & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net> - Saturday, October 9, 2004 9:47 AM CDT Hey Max! I think you look GREAT heading to school. School is fun and by the sounds of it, you like it. Playing soccer sounds good too...play when you want and rest when needed! Good Luck!! Janelle (Alli's Nana) Janelle Kunellis <shoe111550@yahoo.com> - Saturday, October 9, 2004 3:57 AM CDT Happy Birthday Paul!! Love you muches and muches. Kell - Saturday, September 25, 2004 6:41 AM CDT Hi Max!!! How are you? I miss seeing you on Tuesday's at Daddy's work. I hope you are doing well. Keep up the good work in soccer and at your big school. Stay sweet. Love, Nicole Nicole Gilson <NGilson03@aol.com> Millville, NJ USA - Friday, September 24, 2004 3:28 PM CDT HEY GUYS, SORRY WE HAVENT WRITTEN IN AWHILE!! BEEN PRETTY BUSY! AUSTIN HAD HIS HAND SURGERY THIS MONTH AND STARTED KINDERGARTEN!!! YIPPEE, HE IS DOING GREAT!!! THANKS AGAIN FOR THE DR SHARIFF REFERRAL, WE JUST LOVE HER!!! AUSTIN TOLD ME THIS WEEK THAT HE WANTS TO START PLAYING SOCCOR TOO, I SAID I WOULD THINK ABOUT IT! WRITE BACK WHEN YOU GET A CHANCE BUT USE MY WORK EMAIL AS I NO LONGER HAVE THE AOL ONE!! CAROLYN AND AUSTIN CAUCCI <CAROLYNC@USERVICES.COM> SWEDESBORO, NJ USA - Friday, September 24, 2004 12:59 AM CDT  Alicia , Ciara, Hunter & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net> - Thursday, September 23, 2004 8:48 PM CDT Hi Maxie, Aunt Tine signing in to tell you how proud I am of you!!! You show so much courage & strength in any 4 year old I know!!! For you who sign in every now and then and read up on the updates, I just want you to know what a wonderful person Maxwell is!!! He is sweet, gernerous, very outgoing, and very smart!! Even though Maxwell has MPS, I sometimes forget because he to me is such an extordinary child. I have a 4 year old my self named Tristan. Max sometimes could not keep up with Tristan and I did not know how to explain it to him as to why. He would say "Why does Max get so tired so quickley?" "Why does Max call me Twistan and not Tristan?" How do I explain this to a 4 year old? I explained to Tristan what MPS was and at first he just kept thinking Maxie had a cold and he will be getting better soon. As time passed, I think he was starting to realize that Tylenol cold was not working. He is now very over protected of Maxie. I find it sweet but not nessesary. Maxie is more than able to take care of himself. He is THE MAX!!! And I myself am proud and extremeley lucky to have a nephew as wonderful as Maxie. I love it that he is always in good spirit every Thursday after treatment. There has never been a time when I have seen Maxie without a smile. Maxie, Unlce Jimmy, Tristan and I love you just the way you are!!!!! Never forget that!!!! Aunt Tine!!!! christine forand harris <tristan1108@comcast.net> millville, nj usa - Saturday, September 18, 2004 10:41 PM CDT Hi Max! My name is Jenna and I came across your website. You are a very specail young boy with a great love for life. I love meeting new friends and I will come by your site again. You are a fighter, and an inspiration. Your in my thoughts and prayers. Your new friend Jenna www.caringbridge.org/canada/jenna Jenna <hockeykid@telus.net> Kamloops, BC Canada - Monday, September 13, 2004 11:20 PM CDT Sounds like a bit of progress but I always wonder why the delays as well?? Sending positive thoughts your way. Janelle (Alli's Nana) Janelle Kunellis <shoe111550@yahoo.com> - Monday, September 13, 2004 5:17 AM CDT HI Looks like everyone has had a fun summer. So good to see Max and all his peers playing and having such a good time. Just wanted to stop by and let you know we are always thinking of all of you and EXCITED that Max is doing so well!!. You have a lot to be thankful for. love Aunt Pat and Uncle Dennis Dennis and Pat Gearhart <pattibgearhart@yahoo.com> bellmawr, nj USA - Wednesday, September 8, 2004 12:53 AM CDT Hey Max! I am proud of you as well! Great schooling with all the others. Prayers being sent your way!! Janelle (Alli's Nana) Janelle Kunellis <shoe111550@yahoo.com> - Sunday, September 5, 2004 7:13 PM CDT Glad you all had such a good time on vacation -enjoy the football love Laura (MUM To Will MPS2)www.caringbridge.org/europe/willbrodie Laura Brodie <labro4will@yahoo.co.uk> Birmingham, England - Sunday, September 5, 2004 3:56 PM CDT Max, I am soo happy to hear that you are doing so well. Sounds like you had a few great trips this summer. I hope that you enjoy playing soccer this year, I think you will have a lot of fun!! Karen Bensalem, PA U.S.A. - Saturday, September 4, 2004 3:58 PM CDT Hello, I was just popping in to see how you were all doing. How was your trip, did you go to Dutch Wonderland? I have 3 children with Sanfilippo (MPS-III) and we are going there for Hunter's Make-A-Wish trip in a couple weeks. I hope you all have a great time! Alicia , Ciara, Hunter & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net> - Thursday, September 2, 2004 10:32 AM CDT hey we love the pictures of the canoe trip ! I know max and the rest had a great time. uncle dave says to tell you that he prays for you every sunday. (did i tell you max is on our prayer list in our church and his name is printed in our bulliten every week?) God bless you too Amanda , we love you Great Aunt Dianne and Great Uncle Dave Dianne Forand <forand2@yahoo.com> Paulsboro, nj 08066 - Monday, August 30, 2004 7:03 PM CDT Hey Max! You are growing so big!!!! Just stopping in to say hi since I got my computer back since my move. Keep up the fun adventures!! Janelle (Alli's Nana) Janelle Kunellis <shoe111550@yahoo.com> - Monday, August 30, 2004 6:53 PM CDT Hi Max, (and Paul) Found your site through the MPS Forum. Max looks great! I liked the canoeing story too.. "I didn't have fun".. LOL! So much like young ones to say something like that. I'm so glad he is doing well! Stop by online and say hi when you time. Patty and Jesse http://www.caringbridge.org/md/myjesse Patty Taormino <wordinedge@aol.com> Baltimore, MD USA - Wednesday, August 25, 2004 2:11 PM CDT HI Everyone Every time we check , Max is looking better and better !!!!! Amanda is getting prettier and prettier.It is such a blessing to see Max look so happy and strong. Keep up the good work, love Aunt Pat and Uncle Dennis pat and dennis Geahart <pattibg@yahoo.com> bellmawr, n.j. USA - Saturday, August 21, 2004 11:59 AM CDT HI Max & Family, Great photos! Looks like Max is having a wonderful summer. You look very hansome max.Happy to see you all are doing well. Lots of love, hugs & kisses, Great Aunt Helen Helen L. Willis <Sunshine 4943 @AOL.COM> Millville, N.J. Cumberland - Friday, August 20, 2004 10:44 PM CDT Hi Paul, Just dropping by to let you know that I linked your site to mine at MPS Forum.com on the “Links” page. I hope this was okay and thank you for sharing your site with other MPS/ML parents! I enjoyed looking at your pages! Jessica (Mom to Kaity~Hurler Syndrome age 13) Jessica Wellman <jessicalw@earthlink.net> Crandall, IN USA - Friday, July 30, 2004 7:18 PM CDT Hi! Just checking in. I have tried several times to add an entry and i couldn't get it to go . The pic is great and am happy to hear Max is doing well. I LOVE YOU MAX !!!!!! Hugs and kisses. Great Aunt Helen Helen Willis <Sunshine4943@AOL.COM> Millville, N.J. Cumberland - Sunday, July 25, 2004 10:28 PM CDT HEY PAUL AND MAX!!! GUESS WHAT MAX??? AUSTIN IS GOING TO SEE DR SHARIF AT DUPONT NEXT FRIDAY!!!! THATS YOUR DR RIGHT ???? I'LL CALL YOU SOON PAUL AND LET YOU KNOW ABOUT THE DR APPT! CAROLYN CAUCCI <CAROLYNC@USERVICES.COM OR WWW.CARINGBRIDGE.ORG/PAGE/AUSTINC> PHILADELPHIA, PA USA - Wednesday, July 21, 2004 10:26 AM CDT Paul glad Max is doing so well. And having a good summer. Zach is going grate but still does not like his port if they don't hit it the first time. take care Shaun <zplane@charter.net> KlamathFalls , Or Us - Tuesday, July 20, 2004 9:25 PM CDT My vote is to keep the home picture! It would be hard to top that one. I love it. Mary Ellen Caucci <CAUCCIME@AOL.COM> Philadelphia, PA USA - Tuesday, July 20, 2004 4:52 PM CDT Update?? We all want to know how The Max is doing!! And new pictures would be nice too! Dustin (the Yellow Ranger) - Tuesday, July 20, 2004 12:28 AM CDT HEY GUYS!! JUST CHECKING IN TO LET YOU KNOW WE ARE HOME FROM DUKE NOW!! EVERYTHING WENT GREAT BUT HE DEFINETLY NEEDS THE CARPAL TUNNEL SURGERY NOW!!! I AM HOPING TO SEE MAX'S DR FROM DUPONT, HEY PAUL I WILL PROBOBLY BE CALLING YOU TONIGHT TO GET THE NAME OF THE DR AGAIN BECAUSE ABSENT MINDED ME MISPLACED IT! I WILL TALK TO YA SOON AND GLAD TO HEAR EVERYTHING IS GOING GREAT!! LUCKY YOU MAX TO GO IN A HELICOPTER!!! WISH I COULD!!! CAROLYN AND AUSTIN CAUCCI <TWEET84675@AOL.COM OR WWW.CARINGBRIDGE.ORG/PAGE/AUSTINC> PHILADELPHIA, PA USA - Monday, July 19, 2004 10:01 AM CDT Hi Max, it is good to hear everything is good with you. Hope you are enjoying your summer. Sharon Cochenour (MPS FORUM) mother to Andrew MPS II Sharon Cochenour <scochenour@hotmail.com> Clarksburg, OH USA - Friday, July 16, 2004 10:01 PM CDT Hi! Sorry i haven't checked in for awhile. Love the hair !!!!!!! You look great Max !!!!!! Happy to hear Max is doing well. Hugs and kisses. Love,Great Aunt Helen Helen L. Willis <Sunshine4943@AOL.COM> Millville, N.J. Cumberland - Sunday, July 11, 2004 10:35 PM CDT HI Everyone Max is looking beter and better, each time I see his picture. So glad you can see the change in him after a year. What a blessing, to see that things are working well. We missed you at the Graduation Party. Looking forward to see you soon. Keep up the good work Max!!!!!!!!! love to all..... Aunt Pat and Uncle Dennis dennis and Patti Gearhart <pattibgearhart@yahoo.com> bellmawr, NJ USA - Tuesday, June 29, 2004 1:11 PM CDT Paul, you take such great pictures! I love all the pics you put on the site. What a wonderful father you are. Keep up the good work! Max is a darling little boy. God bless your family. Mary Ellen Caucci (Austin's grammy) <cauccime@aol.com> Philadelphia, PA USA - Monday, June 21, 2004 7:58 PM CDT Hi Max! I hope you fun at the Phillies game! Paul, I hope you have a wonderful FATHERS DAY!!!!! Happy ERT Anniversary, too! Take Care! Kris Klenke <kris@mpssociety.org www.caringbridge.org/il/kraig/> Worden, IL - Sunday, June 20, 2004 7:58 PM CDT Hi! Glad to hear Max is doing good.Have a great time at the game!!!!!!!!! Give Max hugs and kisses for me. God Bless. Love, Great Aunt Helen Helen L. Willis <Sunshine4943@AOL.COM> Millville, N.J. Cumberland - Saturday, June 19, 2004 10:49 PM CDT hello just wanted to stop by and check on you all and to see how everything was going hope that u update soon to lets us know how everything is going.hugs and kisses kathy and katilynn kathy and katilynn preston <katilynnsmom@yahoo.com> tomahawk, ky usa - Thursday, June 17, 2004 2:58 PM CDT HEY EVERYONE!!!! SORRY ABOUT THE CAPS! I AM AT WORK AND I HAVE MY CAPS ON ALL DAY AND NOW I AM TOO LAZY TO DELETE THIS AND MAKE IT IN REGULAR LETTERS!!! LOL WELL. I HAVE SOME QUESTIONS FOR YOU PAUL ABOUT THE SURGEON WHO DID MAX'S HANDS, I THINK WE WILL BE NEEDING THIS SURGERY (AND VERY SOON) AND I DONT THINK OUR ORTHO HERE IS GOING TO GO FOR IT! WE SEE HIM TOMORROW BUT I KNOW WHAT HIS ANSWER WILL BE! I WAS THINKING OF GETTING A 2ND OPINION AT DUPONT, I WAS GOING TO TRY TO CALL YOU TONIGHT MAYBE SO BE EXPECTING A CALL SOON!!!! TALK TO YA SOON AND SAY HELLO TO EVERYONE FOR US! CAROLYN AND AUSTIN CAUCCI <TWEET84675@AOL.COM OR WWW.CARINGBRIDGE.ORG/PAGE/AUSTINC> PHILADELPHIA, PA USA - Thursday, June 17, 2004 12:51 AM CDT Hi Max, I'm so glad to hear you are doing so well. It looks like you had a great time on your birthday! Hope your birthday was the best ever! Love, Kim and Ty Kim Downham <jdownham@earthlink.net> TX - Wednesday, June 16, 2004 8:01 PM CDT Hi there big 4 year old!! Are you really 4 now? Wow. I'm stopping by to catch up on the news, and to spend some time praying for you and your family. Stephanie & RachelJoy <mom2rj@comcast.net> - Tuesday, June 8, 2004 10:12 AM CDT HI!! MY NAME IS YIRA AND IM FROM PUERTO RICO I HAVE A 3 1/2 YEAR OLD GIRL NAMED ALANIA THAT HAS HURLER SYNDROME ALSO SHE STARTED HER TREATMENT ON JUNE 8 2003 AND I HAVEN'T HAD THE CHANCE TO READ OR TALK TO NO ONE ELSE THAT IS GOING THROW THE SAME AS ME. i WOULD LOVE TO TALK TO YOU PLEASE KEEP IN TOUCH YIRA YIRA ALFARO <yira_alfaro@yahoo.com> LAJAS, P.R. - Monday, June 7, 2004 10:34 AM CDT Hi Max! Just checking in on you! Glad you are feeling better! Lisa Post <ltjpost@cox.net> - Saturday, June 5, 2004 2:58 PM CDT Hi everyone!! Sorry we havent signed in awhile but our home computer was down for awhile and we have been running around like crazy!!! You can tell summer is here!!! Glad to hear the party was great and sorry we couldnt make it, also thanks for the invite to the airshow! Sorry we couldnt come down, we ended up going to the shore for the weekend! talk to ya soon, have fun in the sun!!! carolyn and austin caucci <tweet84675@aol.com or www.caringbridge.org/page/austinc> philadelphia, pa usa - Wednesday, May 19, 2004 5:03 PM CDT Hello everyone! So far we have not had to use the oxygen except for one night. Max was sick this week and as soon as the nasal congestion starts his oxygen level in is blood drops. We were supposed to go for our final sleep study thursday night but I cancelled it. No sense going when we know it will not be accurate. I want a true baseline study done when he is not sick. The results of the first two were already too varied. The sleep study is rescheduled for August. First available appointment, can you believe it? Oh well!! Everything else is going well. Max and Amanda are both doing great. I feel like I have to be the luckiest mom in the world to have two such incredible kids. I hope everyone had a great mothers day! I know I did! As always thanks for checking in on us. Your thoughts and words of kindness are greatly appreciated. Kim Forand <kforand@bnh.org> Millville, NJ - Saturday, May 15, 2004 1:22 PM CDT Happy birthday Max and Andrew. The photos are wonderful. I'm glad that all is going well. I will continue to pray for you. Stephanie and RachelJoy <sstrom@quik.com> - Friday, May 14, 2004 9:58 PM CDT Happy Mothers/Father's Day!!! How's the Oxygen going? I think I could get you to CA for the meeting if you want? Email me!! Hugs, Tami Slawson (www.caringbridge.com/ca/slawson <TLSlawson@aol.com> - Saturday, May 8, 2004 11:38 AM CDT Happy Mother's Day! Love, Janelle (Alli's Nana) Janelle Schumacher <shoe111550@yahoo.com> - Friday, May 7, 2004 8:08 PM CDT Hello Paul, Kim, Amanda & Max, Just got a few minutes to check out the birthday photos, They are terriffic!!!!!!! They all look like they had a fun day. God Bless you all and i think & pray for all of you. Lots of hugs & kisses. Love, Great Aunt Helen Helen L. Willis <Sunshine4943@AOL.COM> Millville, N.J. Cumberland - Tuesday, May 4, 2004 10:53 PM CDT Happy Birthday, Max and Andrew! You're party looked so cool!!!! Glad everyone is well. Tell your dad and Kelly I miss them and give Amanda a big hug from me! Just thinking of you. Hugs to everyone!!! Alexis :-) <sweeti6964@aol.com> Bensalem, PA Bucks - Monday, May 3, 2004 7:09 AM CDT Happy Belated 4th Birthday MAX!!!! Sounds like you had a great Birthday! Lisa Post <ltjpost@cox.net> - Friday, April 30, 2004 10:02 PM CDT HAPPY BIRTHDAY, HAPPY BIRTHDAY, HAPPY BIRTHDAY, HAPPY BIRTHDAY! 4x's!!! Janelle (Alli's Nana) Janelle Schumacher <shoe111550@yahoo.com> - Wednesday, April 28, 2004 5:54 PM CDT HAPPY LATE BIRTHDAY MAX WE HOPE THAT YOU GOT EVERYTHING THAT YOU WANTED SORRY THAT WE ARE LATE SIGNING KATILYNN HAS KEPT US REALLY BUSY HERE LATELY BUT THATS A GOOD THING LOL .I LOVE THE NEW PICTURES MAX YOU HAVE GOTTON TO BE SUCH A BIG BOY KEPT UP THE GOOD HEALTH AND KEEP GROWING.I WILL BE BACK TO CHECK ON U ALL U HAVE A GREAT REST OF THE WEEK AND WEEKEND AND MAX HAVE FUN ON THAT NEW BIKE OF URS HUGS AND KISSES KATHY AND KATILYNN KATHY AND KATILYNN PRESTON <katilynnsmom@Yahoo.com www.caringbridge.org/ky/katilynnsmom> TOMAHAWK, KY USA - Wednesday, April 28, 2004 1:40 PM CDT Sorry we missed Max and Andrew's birthday. Max looks great in his picture. So happy things are going well. We loved Tenn.!! hope to see you all soon. love to everyone Aunt Pat and Uncle Deennis pat and dennis gearhart <pattibg@comcast.net> bellmawr, nj USA - Monday, April 26, 2004 11:37 AM CDT HAPPY, to hear Max is doing so well. Great picture of the Birthday boy !!!!!!!! I am late checking the site, sorry. Hope all is well with the rest of the family. Tell Amanda, GO SLUGGER !!!!!!!!!! God Bless. Lots of hugs and kisses to you all. Love, Great Aunt Helen Helen L. Willis <Sunshine4943@AOL.COM> Millville, N.J. Cumberland - Sunday, April 25, 2004 0:39 AM CDT I love the new picture on the home page! Thanks Kim! I have been giving Alli the Zyrtec at bedtime, and it seems to be working for her except that we all have some sort of sinus stuff going on at our house! So I have not really been able to tell. She is still stuffy~ I think we may need a round of antibiotics to clear this up and then see if the Zyrtec works! I would LOVE to see a clear nose again! I hope this workd as weel with ALli as it seems to be working with Max! Love, Jenn Jennifer Restemayer <jennmarie@bis.midco.net www.caringbridge.org/nd/allison> Bismarck, ND USA - Saturday, April 24, 2004 9:52 PM CDT Hi! I'm glad your birthday party was so fun! Allison started on Zyrtec last week! Have you noticed any side effects? What time of day do you give it to him? Have a great day! Jennifer Restemayer <jennmarie@bis.midco.net www.caringbridge.org/nd/allison> Bismarck, ND USA - Thursday, April 22, 2004 9:53 AM CDT HAPPY BIRTHDAY MAX!!!!!!! sorry it is belated, we had a very busy weekend!!! Glad you had a great time at the game last week even though it rained!!!! I drive by it all the time now and they always have the lights on and it looks soooo cool!! we will have to get together and go there sometime soon!!!! talk to ya soon and hope your party was lots of fun!!! tell everyone we say hello carolyn and austin caucci <tweet84675@aol.com or www.caringbridge.org/page/austinc> philadelphia, pa usa - Monday, April 19, 2004 2:31 PM CDT HI MAXI, JUST WANTED TO WISH YOU A HAPPY BIRTHDAY. YOU ENJOY YOUR SPECIAL DAY TODAY. LOOKING FORWARD TO YOUR BIRTHDAY PARTY SATURDAY. MAKE SURE YOU BRING YOUR BASEBALL GLOVE AND BAT TO PLAY WITH TRISTAN AND THE REST OF YOUR COUSINS. I LOVE YOU LOT AND LOTS. AUNT TINE! CHRISTINE FORAND HARRIS <HARRISC@LIBERTYTRAVEL.COM> MILLVILLE, NJ USA - Friday, April 16, 2004 2:35 PM CDT HAPPY BIRTHDAY MAX!!!!!!! We hope you have a great day! Love, Jennifer & Allison Jennifer Restemayer <jennmarie@bis.midco.net www.caringbridge.org/nd/allison> Bismarck, ND USA - Friday, April 16, 2004 9:17 AM CDT Blessed Easter! Janelle (Alli's Nana) Janelle Schumacher <shoe111550@yahoo.com> - Sunday, April 11, 2004 4:54 PM CDT Wow!! It looks like you had a great weekend. Glad Max is doing so good. keep up the good work. What ever your doing , must be working You've got some great smiling kids there. HAPPY EASTER TO EVERYBODY!!! love Aunt Pat and Uncle Dennis WE LOVE YOU GUYS Pat and Dennis Gearhart <pattibgearhart@yahoo.com> Bellmawr, NJ - Friday, April 9, 2004 8:19 PM CDT Thank you for taking pictures of the "Boy Party"!! Looks like you all had a great time! I hope all is well and no oxygen! I hope you have a very happy Easter! Love and Hugs, Tami ( www.caringbridge.com/ca/slawson <TLSlawson@ao.com> La Verne, CA - Friday, April 9, 2004 3:45 PM CDT Forands! I love the new pictures of Max and Austin! Happy Easter! Love, Jennifer & Allison Jennifer Restemayer <jennmarie@bis.midco.net www.caringbridge.org/nd/allison> Bismarck, ND USA - Thursday, April 8, 2004 10:24 PM CDT We love the website!!! The pictures are awesome!! Max, you are a sweet and adorable little boy. Keep your spirits high and don't lose that outgoing personality. You are in our prayers always. Love, Kyle and Nicole Kyle and Nicole Gilson <NGilson03@aol.com> Millville, NJ - Wednesday, April 7, 2004 8:47 AM CDT Wonderful pictures,lots of happy faces. Hope you all keep in contact with one another. Happy Birthday Mighty Max. Love you lots. sending lots of BIG HUGS AND KISSES. Love, Great Aunt Helen. God Bless. Helen L. Willis <Sunshine4943@AOL.COM> Millville, N.J. Cumberland - Monday, April 5, 2004 10:05 PM CDT WOW! I love the pictures!!!!! Great update-makes us enjoy those fun moments more!! Hugs, Janelle (Alli's Nana) Janelle Schumacher <shoe111550@yahoo.com> Fargo, ND USA - Monday, April 5, 2004 12:31 AM CDT hey guys!!! we had soooo much fun this weekend!!!! i love the pics!! although i hate you for putting ones of me on there!! i think every girl hates pictures of themselves!!! lol i cant wait to see you all again!!! austin was telling everyone about his new friends!!! carolyn and austin caucci <tweet84675@aol.com or www.caringbridge.org/page/austinc> philadelphia, pa usa - Monday, April 5, 2004 9:05 AM CDT I don't like you guys anymore! You get to meet Austin and Carolyn! Oh MY! Max and Austin!!! PA look out!! I want you to take lots of pictures! Love and Hugs, Tami Slawson <TLSlawson@aol.com> - Friday, April 2, 2004 7:28 PM CST Whoa!....shame on me! I haven't signed in since July 24th?!!! Somehow you slipped through my internet fingers! Sorry, buddy! Glad to hear you are doing good (well, except for this sleep apnea business!). Have a GREAT visit with Austin this weekend!!! He and his mommy are very FUN people and full of enthusiasm, so I know you will have a great time!!! I promise to come back and visit your site more often!!! Lisa Post <ltjpost@cox.net> South Windsor, CT - Thursday, April 1, 2004 1:08 PM CST Hey Paul!!! I didn't think Max's picture was sad!!!! I thought it was tooooooooo cute!!! He just looked tired! That's a good sign for the the sleep study, LOLOLOL. Like any of our kids sleep well for a sleep study???? PLEASE!! I hope your NEXT one goes better! I'm so sorry you guys have to do a third sleep study! Holly Buckets!!! I pray Max doesn't need oxygen or bi-pap! Please know you are in my prayers! Love and Hugs, Tami Slawson (www.caringbridge.com/ca/slawson ) <TLSlawson@aol.com> - Tuesday, March 30, 2004 7:18 PM CST Hey Max and Paul! It was great to finally talk yesterday!! Hope everyting turns out good with your sleep study and let me know if you are going to have another study done somewhere else and if the place in Voorhees is the one that I work for!!!! Looking forward to meeting you guys soon!! 3 weeks and counting!! WOO HOOOOOO!!!!! caroyln and austin caucci <tweet84675@aol.com or www.caringbridge.org/page/austinc> philadelphia, pa usa - Monday, March 15, 2004 9:18 AM CST Hey Paul, I did think the picture was sad but I think that all of us "out here" are pulling so hard for all of you babies that are fighting MSP, that when one picture touches us, we have tears! (I think it's a woman thing!! lol) Anyway, the updates are welcomed. Thanks!! Janelle (Alli's Nana) Janelle Schumacher <shoe111550@yahoo.com> - Sunday, March 14, 2004 10:45 AM CST WOW!!!! You guys really have A LOT going on. We will be praying for all of you. Just wanted to let you know we are thinking of you. Give everyone a hug.....from Aunt Pat and Uncle Dennis Pat and Dennis Gearhart <pattibgearhart@yahoo.com> BELLMAWR, NJ 08031 - Thursday, March 11, 2004 3:51 PM CST HEY LITTLE BUDDY!!!!! JOANN TROUT <JOA_TRO@MSN.COM> WILLIAMSTOWN, NJ GOUCERSTER - Thursday, March 11, 2004 8:14 AM CST Anybody else with a central port and frequent fevers? We need your advise. Max had his port placed in September and we had our 3rd blood culture done this past week. Max had a 102.8 fever on Wednesday. We went to the local pediatrician, they could not find much besides swollen glands and his throat was red. We went to the local ER for blood cultures. We found out that night his White Blood Count was elevated, but not to worry. The doctor wanted to see us back in the office the next day. Max was much better even the doctor agreed. She ordered some further studies on the blood work and according to these results she wanted us to go to DuPont. So off we went, against Max's wishes, he said he did not want to go to the doctor's any more. Everything was ok. No treatment required in the ER, they just evaluated him. The next day we found out that his blood cultures were negative. After all this Paul and I are thinking there has to be a better way. Any advise? To follow up on the latest sleep study. The second study was worse than the first. Now we have to see ENT and if they do not find a reason for obstruction we get to.........have another SLEEP STUDY.....Yeah!! This one will be a neuorlogical sleep study with Bi-Pap and oxygen on standby and they will try both during study if required. Paul said it's my turn he stayed for both the sleep studies so far, thanks Paul!. We also have another Orthopedic appointment coming up soon. Wish Paul luck he is having a sleep over for Amanda's birthday tonight with about 10 girls who are not planning on sleeping. Have fun!! Kim Forand <kforand@bnh.org> Millville, NJ - Saturday, March 6, 2004 5:14 PM CST Max and family-Have a great weekend! Janelle (Alli's Nana) Janelle Schumacher <shoe111550@yahoo.com> - Saturday, March 6, 2004 9:45 AM CST Hi Max and Family, Got your update. I pray for all of you. Hopefully the problem will be a minor one. The picture was heart breaking. God Bless. Love,Great Aunt Helen Helen L. Willis <Sunshine4943@AOL.COM> Millville, N.J. Cumberland - Wednesday, March 3, 2004 9:37 PM CST HELLO JUST WANTED TO STOP IN TO SEE HOW EVERYTHING WAS GOING I AM GLAD THAT THE INFUSHIONS ARE GOING WELL HOW MANY DOES THIS MAKE NOW.KATILYNN WILL BE ON #8 MONDAY AND SHE DOESNT HAVE A PORT YET.BUT THEY GET HER IV IN THE FIRST TIME ALWAYS SO WE ARE WAITING TILL THEY C ANT DO THAT KNOW MORE AND THEN MAYBE HAVE ONE PUT IN.WELL I WILL CHECK BACK SOON HUGS AND KISSES KATHY AND KATILYNN KATHY AND KATILYNN PRESTON <katilynnsmom@yahoo.com www.caringbridge.org/ky/katilynnsmom> TOMAHAWK, KY USA - Wednesday, March 3, 2004 7:31 PM CST Paul-Go ahead and vent!!!! We all need to hear how the parents are feeling about what happens so the next time someone will have a clue! Max-hugs to you. I don't think there is a softer picture than a child in his jammys! Restful sleep! Janelle (Alli's Nana) Janelle Schumacher <shoe111550@yahoo.com> - Monday, March 1, 2004 3:09 PM CST Forand's~ Sorry to hear that Max will have to have a third sleep study! Glad that the infusions are going well though! Thinking of you, Jennifer Jennifer Restemayer www.caringbridge.org/nd/allison <jennmarie@bis.midco.net > Bismarck, ND Usa - Sunday, February 29, 2004 3:48 PM CST Hey Guys, Just checking on Mr. Max! I hope all is well and treatments are going great! Your always in my prayers. Hugs, Tami www.caringbridge.com/ca/slawson <TLSlawson@aol.com> La Verne, CA - Friday, February 27, 2004 8:20 AM CST Hi Max and family. Just checking in to see if there were any new updates. There are no new ones, so, that means all is good right now. Happy for you all. God Bless. Love Great Aunt Helen. Helen L. Willis <Sunshine4943@AOL.COM> Millville, N.J. Cumberland - Wednesday, February 25, 2004 10:37 PM CST Hi Max! I hope your snow is melting like here in North Dakota! It's so much fun to get outside with the sun shinning!! Have a great week. Love, Janelle (Alli's Nana) Janelle Schumacher <shoe111550@yahoo.com> - Sunday, February 22, 2004 6:15 PM CST Hey Guys, Sorry about the oxygen. Prepare for lots of fun :( When my kids were little it was a pain to get the oxygen on and to keep it on. Now it's just a normal part of getting ready for bed! I hope Max doesn't fight it too much! He will feel much better on it! Please know you are in my prayers even if I don't sign as often as I should! Hugs, Tami www.caringbridge.com/ca/slawson <TLSlawson@aol.com> La Verne, CA - Thursday, February 19, 2004 10:44 AM CST Kim and Paul, Wonderful news!!!! So glad to hear it all. I loved reading the last email...Max is special because of Max, not special because of his needs. What a lovely statement. Kindness sent your way! Love, Janelle (Alli's Nana) Janelle Schumacher <shoe111550@yahoo.com> - Tuesday, February 17, 2004 5:39 PM CST HI Everyone, We are still thinking about all of you often. Sound like Max is a strong one. Thankfully his spirit is sweet. He is going to surprise all of us , by his courage and determination. Believe me(I know) when a child has special needs,it's important for them to know how wonderful they are. IT seems you are doing a great job of that. You let Max know he is special because he is Max, not special because of his needs. This little boy is smiling and happy, what a great testmoney to the people who surround him and the way you treat him. You are in our prayers love to all Aunt Pat and Uncle Dennis Pat and Dennis Gearhart <pattibgearhart@yahoo.com> Bellmawr, N.J. - Friday, February 13, 2004 1:47 PM CST YEAH MAX!! It has got to be so nice for our kids to go without that annoying nasal drainage! Aldurazyme is good! I love hearing that his Liver and Spleen are about normal size! Kim~ did the Dr. mention anything about the excessive thirst? Best wishes! Love, Jennifer Restemayer Jennifer Restemayer www.caringbridge.org/nd/allison <jennmarie@bis.midco.net > Bismarck, ND Usa - Wednesday, February 11, 2004 10:10 PM CST Dear Kim,Paul,Amanda&Max, Glad to hear Max is doing good. I check in every couple of days to find out how MIGHTY MAX is doing Lots of hugs and kisses.God Bless and watch over all of you.Love,Aunt Helen Helen L. Willis <Sunshine4943@AOL.COM> Millville, N.J. Cumberland - Wednesday, February 11, 2004 3:21 PM CST Just checking in to read the latest... Always in my thoughts and prayers! Janelle ( Alli's Nana) Janelle Schumacher <shoe111550@yahoo.com> - Monday, February 9, 2004 7:33 PM CST Paul, Kim and MAX! Sorry it has been so long since I have signed~I do check in often and you are always in my prayers! Max looks great! I love the pictures playing in the snow! I wish Alli could go out and play in the 10+ inches we have gotten this week but the wind chills are around 60 below! Too cold for anyone to enjoy all of this snow! Love, Jennifer Jennifer Restemayer www.caringbridge.org/nd/allison <jennmarie@bis.midco.net > Bismarck, ND Usa - Friday, January 30, 2004 9:54 PM CST Paul, Kim and MAX! Sorry it has been so long since I have signed~I do check in often and you are always in my prayers! Max looks great! I love the pictures playing in the snow! I wish Alli could go out and play in the 10+ inches we have gotten this week but the wind chills are around 60 below! Too cold for anyone to enjoy all of this snow! Love, Jennifer Jennifer Restemayer www.caringbridge.org/nd/allison <jennmarie@bis.midco.net > Bismarck, ND Usa - Friday, January 30, 2004 9:54 PM CST go Max! Play in that snow. Really cold here in North Dakota...please! Someone close the door!!! Janelle (Alli's Nana) Janelle Schumacher <shoe111550@yahoo.com> - Thursday, January 29, 2004 9:17 PM CST hey guys, I was starting to get a little worried since there was a lack of updating on your part!! ha ha ha!!! I guess your eagles depression is over though!!! I know the feeling about how you felt that his breathing seemed better at the hosp during the sleep study! It always works out that way!! Then they all think we are crazy parents!!!! Austin had his at home and after finally getting him hooked up, he slept for like 5 hours, I went in to check him and I (the idiot) forgot to hit the print button on the monitor so NOTHING was recorded!!! Then he kept waking up after that! It was horrible!!!! I hope everything comes out great! Wasnt the snow fun?? Austin was mad at me cause we havent been out to play in it but he will get over it! I wasnt feeling well! Well, tomorrow night I am off to the Philly Soul pep rally (and a bon jovi concert!) woo hoooooo!!!! maybe they can get us a win!!!! talk to ya soon! sorry for such a long guestbook entry!!! carolyn and austin caucci <tweet84675@aol.com or www.caringbridge.org/page/austinc> philadelphia, pa usa - Wednesday, January 28, 2004 4:46 PM CST Hi Max, Great pictures. Hope the test results are okay.Big hug and lots of kisses. Love Great Aunt Helen Helen L. Willis <Sunshine4943@AOL.Com> Millville, N.J. Cumberland - Wednesday, January 28, 2004 3:02 PM CST hi max and family just wanted to stop by and check on you all glad everything went well and that you all are home katilynn had a sleep study and she didnt like that one bit it was a long night and there wanting to make another appiontment for another which i dread so bad.but i am glad all is well.i will check back soon kathy and katilynn preson <www.katilynnsmom@yahoo.com www.caringbridge.org/ky/katilynnsmom> tomahawk, ky usa - Monday, January 26, 2004 1:28 PM CST Hey Guys, Good luck on the sleep study tonight!!! Jacob's adnoids grew back but Sami's didn't. Go figure. So who are you guys going for on feb 1???? Please know you are always in my prayers even when I don't post like I should, but I do check in on you daily! :) Hugs, Tami Slawson www.caringbridge.com/ca/slawson <TLSlawson@aol.com> La Verne, CA - Friday, January 23, 2004 9:30 AM CST Eagle Max! That picture of all the kids is just wonderful! Smiles enough to share and make my day! Thanks!! Janelle (Alli's Nana) Janelle Schumacher <shoe111550@yahoo.com> - Tuesday, January 20, 2004 4:31 PM CST hey there, just another heartbroken (but used to the feeling) philly fan checking in!! I had to update the website so I thought I would stop by and check in!! I will try to think of some ways to help with the nasal drainage and let you know!! Talk to ya soon! carolyn and austin caucci <tweet84675@aol.com> notitletown, pa usa - Monday, January 19, 2004 6:12 PM CST Hi Everyone. Glad Max is home. Zach tonsiles grew back along with the adnoids a few years ago. We had them taken out.Again then 3 years ago his adnoids came back so out they came. So far they have not come back. Zach had ben on ERT about a year when the nasial dranage and congestion stoped. Except for a cold. As for blowing his nose, he just started doing that about a year ago. What I did was hold his lips closed and told him to blow he finaly figured it out. Hope this helps. Take care Shaun and Zach. Shaun <zplane@charter.net> KlamathFalls , Or US - Monday, January 19, 2004 12:05 AM CST Hi Max and family, Glad to hear the infusion went well. Hope they can find the problem with the breathing. I'll be keeping Max in my prayers. I would like to invite you to visit Smile Quilts http://smilequilts.com and see if we can make a virtual on line Smile Quilt just for Max. If you would like a Smile Quilt, just fill out the request form and we would be happy to send some smiles and hugs your way. Sending prayers and lots of Hugs, Angel Sprite  Smile Quilts Angel Sprite <smilequilts@smilequilts.com> Eckert, Colorado USA - Saturday, January 17, 2004 5:43 PM CST HI Max and Paul, so happy to hear that you are home now! That is so weird about his tonsils possibly growing back, I mean I have heard of it so it really shouldnt surprise me that it would happen to one of our kids!!! ha ha ha Well, I hope everything turns out ok friday night! You better rest up there Max, 33 hours and 20 mins to kickoff!!! This is going to be a really long day!!!!!! GO EAGLES!!!!! carolyn and austin caucci <tweet84675@aol.com or www.caringbridge.org/page/austinc> philadelphia, pa usa - Saturday, January 17, 2004 8:23 AM CST Hey Guys, Just a quick note to say I'm thinking of you! I hope everything goes fine with the sleep study. Keep me updated! Hugs, Tami Slawson www.caringbridge.com/ca/slawson <TLSlawson@aol.com> La Verne, CA - Friday, January 16, 2004 5:15 PM CST Hey guys, just checking in (from work) ssh dont tell!! I am sorry to hear that you had to stay at the hospital, guess what Max??? I work at a place that does sleep studies! Cool huh? Austin had one done at home not long after he was diagnosed cause they thought he may have sleep apnea due to hurlers but he didnt, got rid of the tonsils and adnoids and he was fine!!!! Hope you are home by now, I will check back later tonight for an update!!! Stay warm buddy!!! Carolyn and Austin Caucci <tweet84675@aol.com or www.caringbridge.org/page/austinc> philadelphia, pa usa - Friday, January 16, 2004 12:16 AM CST Hey Max, sorry to hear you are having problems sweetie. I will always say prayers for you sweetie. The new photo is great.I love you sweetie,Great Aunt Helen Lots of hugs and kisses. Kim and Paul,May God give you both the strenght and blessings for the four of you. Your families and friends love all of you. Helen L. Willis Millville, N.J. Cumberland - Friday, January 16, 2004 10:16 AM CST ok first off, FLY EAGLES FLY..... ON THE ROAD TO VICTORY!!!! E A G L E S EAGLES!!!!!!!!!!! Wasnt the game awesome???? I just tried to do a eagles update on Austins page and bam, I hit the wrong button and it was gone so now I have to wait cause I am a little annoyed!!!!! Austin even watched the whole game with his grammy while me and his poppy went to the bar (which he called me at around 8:15 to say woo hoo!!!) Well, here's hoping for 2 more parties!! Sunday and then Houston baby!!!! Talk to ya soon!! Carolyn and Austin Caucci <tweet84675@aol.com or www.caringbridge.org/page/austinc> philadelphia,home of the eagles!!!!, pa usa - Monday, January 12, 2004 7:09 PM CST Hey Max, I am sooooo happy to hear that you are cast free! woo hoooo!!!!!! I hope you have lots of fun playing soccor this year! I am hoping that Austin will want to play softball (well teeball really) this year! It will be so much fun!! Looking forward to meeting you soon! You better put your jersey on today (me and austin have ours on) GO EAGLES GO!!!!! talk to ya real soon!! carolyn and austin caucci <tweet84675@aol.com or www.caringbridge.org/page/austinc> philadelphia, pa usa - Sunday, January 11, 2004 9:20 AM CST Kim and Paul- Great arm with no cast! Way to go Max! Love the updates and Paul, you are so right. A happy child is what we want for our children...we can't change things but we sure can try to make the ride as smooth as possible. Love really is the glue that holds us all together. Thanks both for the update-we all enjoy reading about the latest news. Have a great weekend! Janelle (Alli's Nana) Janelle Schumacher <shoe111550@yahoo.com> - Saturday, January 10, 2004 7:55 AM CST EXCITING NEWS!!! Maxwell is now cast free!! Yeah!! Everything went well today, his radius is healing well and the last cast is off. We have to be careful for the next four weeks, the bone is still fragile. We came home and got right into the tub!! It is so nice to not have to worry about getting a cast wet!! Max was thrilled to lay down put his face in the water and splash. We were both wet in the end!! On another note everything went great with his infusion yesterday. He is incredible with them accessing and de-accessing his port. No crying at all. An occasional ouch!! I had a long talk with Dr. Arch and we are going to see GI for follow-up of the enlarged liver. She feels he is doing great, but wants to make sure everything is okey. Also, before we get involved in sports we want to make sure there are no medical concerns. We also did a urinalysis, Paul has been concerned with excessive thirst. We are looking for spillover of sugar, don't expect anything to come up there either. Oh well it's okey to be safe, as far as I am concerned there is no such thing as being over cautious. We hope everyone had a great holiday. I want to send a special thank you to Paul for being such a wonderful dad. Kim Forand <kforand@bnh.org> Millville, NJ - Friday, January 9, 2004 12:29 AM CST hello max and family just thought i would stop by and check on you guys.thanking of u all hope the new year will be a great one for the mps1 children and familys. kathy and katilynn preston <katilynnsmom@yahoo.com www.caringbridge.org/ky/katilynnsmom> tomahawk, ky usa - Friday, January 9, 2004 11:26 AM CST Just checking in to see how Max is doing, hope all is going well. You remain in thoughts and prayers. Nikki Morrissey <slimpikens1@yahoo.com www.caringbridge.org/il/cademateo> Kewanee, Il USA - Wednesday, January 7, 2004 11:03 PM CST Hey Max and Paul, that sounds great about a get together!! We are keeping our fingers crossed for a big win on Sunday! Hopefully we can send those cheeseheads packing!!! I am a little worried though, would have rathered played seattle !!! oh well, time will tell!!! Let me know if you will be having a get together and me,Austin and my mom would love to come down! Just send directions!! I am not the best Jersey driver!! (can only get to the shore and back!!!) lol! Talk to ya soon and love the pics!!! p.s. I hope you dont mind but I put a link to Max;s page on Austins website!!! You can never get enough visitors right???? carolyn and austin caucci <tweet84675@aol.com or www.caringbridge.org/page/austinc> philadelphia, pa usa - Monday, January 5, 2004 8:27 PM CST Happy new Year! A VERY cute picture of all. It is nice to see everyone. Have a great new year!! Janelle (Alli's Nana) Janelle Schumacher <shoe111550@yahoo.com> - Wednesday, December 31, 2003 3:57 PM CST I found your site from another caringbridge child. My daugher was diagnosed with Krabbe Disease in June. She is now 129 days post transplant. I read through your journel history to discover that we have alot in common. Ashleigh was diagnosed at DuPont and Dr. Arch was incredible with getting Ashleigh treatment. I believe she saved Ashleigh's life. Best wishes for a healthy and happy new year to you and your family. With hope and prayer, Michelle Gwin caringbridge.org/nj/ashleigh.ryann Michelle Gwin <moocow517@att.net> Mullica Hill, NJ USA - Monday, December 29, 2003 12:34 AM CST Hey Max and family! Its me again signing in since you updated your page!! So glad to hear you had a great christmas!! WOW,a playstation 2!! You are soooo lucky!!! Austin is just starting to get the hang of my playstation so maybe next year he can get a new system too!! So happy to hear that there were no tears at your infusion friday!! You are getting to be such a big boy!! Cant wait to meet you someday!! carolyn and austin caucci <tweet84675@aol.com or www.caringbridge.org/page/austinc> philadelphia, pa usa - Sunday, December 28, 2003 8:40 PM CST Hey Max and Paul!! MERRY CHRISTMAS!! Sorry I havent signed in awhile, been running around like a crazy person finishing everything for Christmas!!! I hope santa brought you and your sister everything you wanted!!! Austin got lots of stuff, he loved his wiggle dolls and dvd player and radio!!! Well, I better go for now, 45 mins till kickoff!!!! I hope you are watching the game tonight! I have to give Austin his bath so he can wear his new Eagles pajamas and then mommy can go out to watch the game!!! Talk to ya soon and Happy New Year!!!! GO EAGLES!!!!!!!!!!!!! carolyn and austin caucci <tweet84675@aol.com or ww.caringbridge.org/page/austinc> philadelphia, pa usa - Saturday, December 27, 2003 6:44 PM CST hi max and family i hope that everyone had a great christmas and got what they wanted.i hope that everyone will have a great new year and will bring better things for all the sick children in the new year i will check back to see how everyone is have a happy and safe new year. kathy and katilynn preston <www.katilynnsmom@yahoo.com www.caringbridge.org/ky/katilynnsmom> tomahawk, ky usa - Friday, December 26, 2003 9:28 PM CST Merry Christmas Forand family! I CAN IMAGINE HOW EXCITED MAX MUST BE TO OPEN THOSE PRESENTS! I know Alli can hardly wait. She told me today that Santa didn't bring her a baby.(she asked him for one) I think she meant that when she asked him for one.. he didn't give it to her. She wanted insant gratification, she does not understand why she has to wait! Love, jennifer Jennifer Restemayer www.caringbridge.org/nd/allison <jennmarie@bis.midco.net> Bismarck, ND Usa - Tuesday, December 23, 2003 11:06 PM CST Merry Christmas! I hope Santa gives Max everything he wants. Have a Happy and Healthy New Year!! Love and Hugs, Tami www.caringbridge.com/ca/slawson <TLSlawson@aol.com> - Tuesday, December 23, 2003 8:59 PM CST Hi Max, Just checking to see if you had gotten that final cast off. And now a black one!!! At least it won't show the dirt! Merry Christmas to you and your family. Janelle Janelle Schumacher <shoe111550@yahoo.com> Fargo, ND USA - Saturday, December 20, 2003 10:11 PM CST Hi Max and Paul, I'm Cade Morrissey's Nana Chris, we have all been following Max's treatments and hope Cade has the same results with ERT. Cade also has hearing aids, getting him to wear them continues to be a big problem! Wishing you all a Merry Christmas and New Year full of good health. You all remain in our thoughts and prayers and we look forward to your updates. Chris Chris Morrissey <crookiemorsi@yahoo.com> Kewanee, Il USA - Saturday, December 20, 2003 12:12 AM CST Hey Max,Paul, and Kelly! We're glad to see things are going well and we need to catch up. We wanted to wish you guys Happy Holidays and a healthy New Year! Cool hat dude, can I borrow it some time for a gig? Ask your dad if it's o.k. though as i'm sure he'll like to see that huh! Hopefully we'll see you guys soon and best wishes to you all. Drew & Susan Drew & Susan McGarrity <amcgarrity3@aol.com> - Thursday, December 18, 2003 9:31 PM CST Hi Max, Glad to hear you are doing better.Santa is coming soon and he will bring you lots of wonderfull gifts.I love you sweetie. Merry Christmas and a happy New Year.Lots of hugs,kisses,and Gods blessings. I Love You Sweetie, Great Aunt Helen Helen Willis <Sunshine4943@AOL.Com> Millville, N.J. Cumberland - Thursday, December 18, 2003 2:22 PM CST hi max im so thinkful to god you are doing so good. my little grandbaby katilynn has hurler 1 this week will make her 4 ert she is doing good think god.have a marry christmas. god bless you and your family. katiynn web page is www.caringbridge.org\ky\katilynnsmom frances sweeney <francesmccoy2001@yahoo.com> lovely, ky martin - Monday, December 15, 2003 12:15 AM CST hi max glad everything is going well and i hope ur infusion goes well also if katilynn saw ur pic with sponage bob hat on she would just go crazy she loves sponage bob i will check back later to see how u are doing kathy and katilynn preston <katilynnsmom@yahoo.com> tomahawk, ky usa - Sunday, December 14, 2003 10:35 PM CST Yeah Max!!!!! I'm so glad to hear that your down to just one cast! LOL. I'm so glad your hand is better! Keep up the good work! Good luck on Enzyme day. Hugs, Tami <TLSlawson@aol.com> - Thursday, December 11, 2003 9:08 AM CST One cast off and one to go Max! Was it the green one or the yellow one? Kids!! Don't they just adjust so quickly...now if only us adults could do the same!!? Enjoy the use of that healed limb!! Alli's Nana Janelle Schumacher <shoe111550@yahoo.com> Fargo, ND USA - Thursday, December 11, 2003 7:32 AM CST I just have to write one more time on that GREAT HAT! Brings a smile to my face each morning as I check in. Have a wonderful day Max! Janelle (Alli's Nana) Janelle Schumacher <shoe111550@yahoo.com> Fargo, ND USA - Tuesday, December 9, 2003 7:47 AM CST WE ARE THINKING OF YOU!~ AUNT DIANNE AND UNCLE DAVE <forand2@yahoo.com> paulsboro, nj usa - Sunday, December 7, 2003 11:58 AM CST Hope your weekend is peaceful. Janelle Janelle Schumacher <shoe111550@yahoo.com> Fargo, ND USA - Saturday, December 6, 2003 7:24 PM CST Hi Max, Your hat is great. Hope you are doing bettet.Love you sweetie.Lots of hugs and kisses.Great Aunt Helen Helen Willis <Sunshine4943@AOL.Com> MIllville, N.J. Cumberland - Saturday, December 6, 2003 7:52 AM CST Hey there Max and Paul!! I am so sorry to hear about your little accident on turkey day! But you must say, you look too cute with your little casts! I hope you are coping ok with them! Lots of love from across the bridge! and please try to be a little more careful there buddy!! carolyn and austin caucci <tweet84675@aol.com or www.caringbridge.org/page/austinc> philadelphia, pa usa - Tuesday, December 2, 2003 9:23 PM CST Hi MaX! That hat is just too cute and you have the tongue for it!! LOL Well you certianly have a match set of casts...I am thankful that you went in even though it was Thaksgiving. The stories you'll be able to tell about this particular Thanksgiving!! Greetings to your family! Janelle Schumacher (Alli's Nana) Janelle Schumacher <shoe111550@yahoo.com> Fargo, ND USA - Tuesday, December 2, 2003 12:15 AM CST Oh Max, what a trooper! You are too cute. I am glad you are not old enough to have to do a lot of writing. Now that they have you all fixed up, try to stay safe. Love, Anne Anne Himes <arhimes@ msn.com, www.caringbridge.org/page/andrewh> Boonsboro, md USA - Monday, December 1, 2003 10:29 AM CST Max you look too cute!!!! I'm glad you still are your sweet self with both arms casted! No more falls OK? Love and Hugs, Tami <TLSlawson@aol.com> - Saturday, November 29, 2003 8:00 PM CST Oh Max! I'm so sorry that you fell, and now have a cast on each arm! Our babies have to stop falling! Hope you feel better soon! Love, Jennifer Jennifer Restemayer www.caringbridge.org/nd/allison <jennmarie@bis.midco.net> Bismarck, ND Usa - Friday, November 28, 2003 9:40 PM CST Poor MAX! I'm so sorry buddy that your Thankgiving day was spent at the hospital. I hope you heal soon. I bet you look too cute with both of your casts. Be safe OK!!! Love and Hugs, Tami Slawson www.caringbridge.com/ca/slawson <TLSlawson@aol.com> - Friday, November 28, 2003 10:46 AM CST Our prayers are with you Max Great Aunt Helen <Sunshine4943@aol.com> Millville, nj usa - Tuesday, November 25, 2003 7:49 PM CST Way TO GO MAX!!!! I love the new picture and you are adorable!! Your eyes shine like new pennies! Happy Thanksgiving to your family. Janelle (Allison's Nana from ND) Janelle Schumacher <shoe111550@yahoo.com> Fargo, ND USA - Saturday, November 22, 2003 9:07 PM CST Hey there Max! YOU ARE TOOOOOOOOOO CUTE!!!!!! I just love your new picture! You get cuter and cuter every time I see a new pic!!! That is awesome that his surgery went so well, and with the pain issue, I sometimes think its a hurler issue, Austin has such a high pain tolerence, much higher than I could ever stand! Even still, they say that after his transplant there isnt really any or much joint pain or anything but with all the other stuff likehis constant major ear infection to the point that the ear drum is about to burst! (yes that is another story, we are now on our 5 & 6th infection since sept 15th! and are heading back to the ent next week and hopefully will be getting our 4th set of tubes soon) he never complains, so when he does tell me something hurts I know it must be bad! Oh and by the way, tell Max that Austin is also a Mcnabb every sunday!! He walks around wearing it and tries to spell E A G L E S but then to be funny he says Phillies instead of eagles! he keeps doing it cause everyone laughs at him! I am still hoping to get together someday ! I just think the boys would have lots of fun and we could talk about stuff! I am very interested in the ERT as well! Well, I guess I have babbled on long enough! Talk to you soon! Give Max a hug and I love the cast! Happy Thanksgiving if I dont sign again by then! We all have lots to be thankful for now!!! Carolyn and Austin Caucci <tweet84675@aol.com or www.caringbridge.org/page/austinc> philadelphia, pa usa - Friday, November 21, 2003 10:45 PM CST Hey Max!!! You're green cast is soooo cool!! It'll go great with that new Eagles jersey. Glad to hear your doing well. You're picture is up on my wallpaper at work. :-) I can't wait to see you again and give you a big hug for being so much braver than any of us silly grown ups. I miss your dad and Kelly too. Love and hugs to all. Alexis :-) <Sweeti6964@aol.com> Bensalem, PA US - Friday, November 21, 2003 7:42 AM CST So glad surgery went well for Max today...sure you'll be glad to get back home tonight. Take care and look forward to future updates. Chris Morrissey <crookiemorsi@yahoo.com> Kewanee, Il USA - Wednesday, November 19, 2003 8:44 PM CST I'm so glad Max did good today with surgery. I can't wait to see pictures of his green cast!!! Give him a big hug from the Slawson's Hugs, Tami www.caringbridge.com/ca/slawson <TLSlawson@aol.com> - Wednesday, November 19, 2003 7:01 PM CST Good Luck with your surgery tomorrow Max, will be thinking of you and keeping you in my prayers. So glad ERT is going well and you got your hearing aids. Chris Morrissey <crookiemorsi@yahoo.com> Kewanee, Il USA - Tuesday, November 18, 2003 9:52 PM CST HEY MAXI!! GOOD LUCK TOMARROW! I"LL BE THINKING OF YOU AS I ALWAYS DO. lOVE YOU LOTS AND LOTS!! HUGS AND KISSES!! AUNT TINE! CHRISTINE FORAND-HARRIS <HARRISC@LIBERTYTRAVEL.COM> MILLVILLE, NJ USA - Tuesday, November 18, 2003 12:10 AM CST Hey Paul, I'm thinking about Max this week!! I know he will do great in surgery! Keep up your smile Max! Your Mom and Dad are right! You are too sweet! Quick note: If Max is drinking apple juice, stop it. For some reason apple juice does not agree with our MPS babies. If you know what I mean! LOL Hugs, Tami www.caringbridge.com/ca/slawson <TLSlawson@aol.com> - Monday, November 17, 2003 5:40 PM CST I have missed my Max updates. I go glad he is getting the hearing aids and is doing great! I will keep Max in my prayers next week! Keep up the good work Max! Hugs, Tami Slawson www.caringbridge.com/ca/slawson <TLSlawson@aol.com> - Friday, November 14, 2003 6:52 PM CST Yea!! Sounds like progress is being made....and such a nice sound!! Good to hear about Max and his hearing. Good News! Crossing my fingers about the surgery. Janelle (Allison's Nana from ND) Janelle Schumacher <shoe1115@yahoo.com> Fargo, ND USA - Thursday, November 13, 2003 7:37 PM CST Hi!~ I'm so happy for the update! I have been thinking of you and Max and wondering how things were going!! Yeah! Max gets his hearing aids! Were you able to get the insurance company to cover thwm? or did you find some help elsewhere? I will be thinking and praying for Max as he has his surgery~ I glad to hear that his right hand is improving and that the Dr. thinks the ERT has helped it! The new pictures are great!!!! Max looks wonderful~ his tummy looks great too! His Liver and Spleen must be close to normal size! Amanda seems like she is a wonderful big sister! There is something Special about our babies! Hope to hear from you soon! Love, Jennifer Restemayer Jennifer Restemayer www.caringbridge.org/nd/allison <jennmarie@bis.midco.net> Bismarck, ND Usa - Thursday, November 13, 2003 12:24 AM CST I had originally planned to visit as many caringbridge sites as possible, and leave some encouraging words, prior to my daughters passing. Unfortunately her passing came sooner than we had expected, but longer than any of her doctors expected. Another angel takes flight. My daughter Pam had a brain tumor and was fighting the fight since November 4th, 2002, after the birth of her daughter (Casey Morgan). My youngest daughter, Karen, set up a caringbridge website for Pam. Karen's friends mother shared a prayer with us, that I would like to share with you and Max. It's called DON'T QUIT: Don't Quit - When things go wrong, as they sometimes will, When the road you're trudging seems all uphill, When the funds are low and the debts are high, and you want to smile, but you have to sigh, When care is pressing you down a bit - Rest if you must, but do not quit. Life is queer with its twists and turns, As every one of us sometimes learns, And many a fellow turns about, When he might have won had he stuck it out. Don't give up though the pace seems slow - You may succeed with another blow. Often the goal is nearer than it seems to a faint and faltering man; Often the struggler has given up when he might have captured the victor's cup. And he learned too late when the night came down, How close he was to the golden crown. Success is failure turned inside out - The silver tint of the clouds of doubt, And you never can tell how close you are, It may be near when it seems afar, So stick to the fight when you're hardest hit, It's when things seem worst that you mustn’t quit.(Just call on Jesus). I would also like to share a saying that was on the card my wife Diane picked out, and we bought for Pam: If you were a star That wasn’t expected back In the universe For a thousand years, I’d wait. If you were the sky And everyone went inside When you got sad And started to rain, I’d stay. And if you were a peach And the world decided to get rid of all peaches, I’d pick you up, Put you in my pocket… AND KEEP YOU…. FOREVER.. Prayers have scientifically been proven to work. REMEMBER NEVER GIVE UP THE FIGHT. You are in our prayers. GOD bless you all. Frank father of ANGEL Pam (www.caringbridge.org/ny/pamostrowski) <frmurato@nyct.com> SYOSSET, NY USA - Monday, November 10, 2003 2:34 PM CST Max and family, Struggle, struggle! I'll never know why insurance companies make us struggle. There are a lot of good suggestions posted already. I have to agree with the political one. I know the names of my representives personally and they know me. If the need ever arises, they will be my first call. I'm sure you are checking all options. Thoughts and prayers coming your way!! Janelle (Alli's Nana) Janelle Schumacher <shoe1115@yahoo.com> Fargo, nd c - Wednesday, November 5, 2003 4:27 PM CST Hi everyone! I was glad to read that everything is going good with Max's treatments!!!! About the insurance thing.... first of all, I hate them! They have denied 99% of what Austin had done and after fighting and getting it approved they still arent paying for it, they find little reasons all the time that it wont be paid for, anything to save themselves a dollar right?! Anyway, what I did to get Austin's transplant approved, besides calling every news station and 60 mins, dateline,rosie o'donnell, (anyone who would listen or pretend to) I went straight to a local state senator, called the number from the phone book and after telling them my story I had the 2 heads of the insurance company on the phone, along with the evil woman who called me to deny it in the first place apologizing to me and they approved it! Within about 4 hours!!!!!! Politicians can be helfpul at times and I tell you that man will have my vote for life!!! Just an idea! Might be helpful! Or ask his therapists for some ideas, they would know what to do in your area for help! Well, sorry to ramble on, hope he had a great Halloween last night! I am still hiding Austins candy so he doesnt eat it all tonight!!!! Hope to hear from you soon! Good luck at your next infusion and I hope to hear good news on the hearing aids soon! Carolyn and Austin Caucci <tweet84675@aol.com or www.caringbridge.org/page/austinc> philadelphia, pa usa - Saturday, November 1, 2003 7:09 PM CST Hi Max & Family... I am the other Max's Aunt Nancy. Thank you for posting on his web page. I checked in to see how you are doing too. Good job with the ERT. I hope you have great success with it. I'm a Phillies Fan too from Langhorne, PA (home of Sesame Place!!!) Nancy Kenney Langhorne, PA USA - Thursday, October 30, 2003 9:07 AM CST  Hi Max and Family, What a cutie you are Max! I really like the your Treat or Treating costume! I want you to know that you are in my prayers for complete healing and comfort. Mom, I'm Gloria, a uilting Angel from Smile Quilts. We would love to make a virtual quilt for Max! If you would be interested, click on the graphic and it will lead you to instructions. In the meantime, Max is in my thoughtful prayers. Blessings, Gloria <SimplicityMD@comcast.net> Owings Mills, MD USA - Thursday, October 30, 2003 6:41 AM CST Hi, My name is Page and I'm a Special Education student (emphasis in hearing impairements) who had to do a project on Hurler/Hunter syndrome (MPS). I want you to know I check in here often and think of Max. I have three boys of my own who Max reminds me of and when I read your story it touched me. About the hearing aids. I have worked in Deaf Education for a while now and there is one thing I know of for sure: Where there is involved parents, there are ways to find things! You might want to try your local school district and find out what kind of program they offer for children with hearing impairements. I know that here in Utah, they have 'loaner' hearing aids for parents to use on their children. Because hearing aids come in all different styles and various benefits to each kind, it is best for you to 'test drive' hearing aids out before you buy (especially if they're 5k, that's not an easy thing to come by). I don't know if you are already involved with Early Intervention yet, but Max would probably qualify for services because of his speech delays and hearing impairement. The best way to look for that number is through your local school district. They are required to provide services, as long as he qualifies. And I remember reading that you had him evaluated too, but sometimes service isn't rendered unless it's asked for (always a budget crisis in Early Intervention and schools). Another thing is to fight the insurance company. I don't know what basis most people use, but most of the time they just require persistance. If you do raise a fuss and write a letter, explaining that it will help his speech problem, etc.. you may get the hearing aids paid for. It won't hurt to try, right? Good luck to you and know that I'm checking in on little Max often! I hope that he can get the much needed hearing aids!!!! ~Page Page <page@worrells.org> - Thursday, October 30, 2003 0:36 AM CST HI EVERYONE. WE CHECK IN OFTEN...MAX IS ALWAYS IN OUR PRAYERS. WE ALSO PRAY FOR ALL OF THE WONDERFUL FAMILY SURRONDING HIM. HE IS A VERY SPECIAL LITTLE BOY, WITH AN AMAZING SUPPORT SYSTEM. .... MOM AND DAD, SISTER, GRANDPARENTS, GREAT-GRANDPARENTS,AUNTS, UNCLES,COUSINS AND MANY OTHERS WHO ALL LOVE HIM VERY MUCH. Please know we think of all of you often. Let us know how we can be more involved much love Aunt Pat and Uncle Dennis dennis and pat gearhart <pattibgearhart@yahoo.com> BELLMAWR, NJ USA - Wednesday, October 29, 2003 9:28 AM CST Hi Guys, Just checking on Max. I hope all is well and treatments are going well. Give Max a hug from me! Hugs, Tami Slawson www.caringbridge.com/ca/slawson <TLSlawson@aol.com> - Friday, October 24, 2003 9:13 AM CDT Hello: It's been awhile since I have been on the site and was glad that I clicked onto your website. We also have a child with MPSI that was diagnosed 2 years ago at the age of 4. We also questioned his hands/fingers as well as joint stiffness and came to the diagnosis. We are currently into our 10 infusion and things are going well. Our son, Bryce, does not like the needles, etc. so we are now in the process of discussing a port/central line or a broviac. Did you have an option to choose or did your doctors recommend a port/central line. It's a difficult decision for us - we're not sure what is the better way to go. Any advice? I enjoy reading your updates and am glad things are going well for your family. My prayers are with you. Sheryl Sheryl Czekanski <sheryl.e.czekanski@marsh.com> Fairport, NY U.S. - Tuesday, October 21, 2003 7:44 PM CDT hello im a grade 9 student at st james colligiate in winnipeg manitoba, canada. and i hope your kid is feeling good and I wish you the best Rita Gordon <crazycircle@hotmail.com> winnipeg, mb canada - Tuesday, October 21, 2003 1:43 PM CDT Glad to hear that Max is doing well with the infusions. Best of luck with the appointment regarding his hands. My son has MPS II, we never used the hand splints, but did do a bi-lateral tendon release at 7 years of age. I am so glad we did that surgery, it really helped him a lot. I hope there are no more problems with the tubing during infusions. Kris Klenke <kris@mpssociety.org> Worden, IL - Tuesday, October 14, 2003 6:35 PM CDT Hi Maxi, Just wanted to say how proud I am of you. You are a very special little boy with so much strength and courage. You amaze me every day. I love the way you laugh, I love the way you smile, I love it when you run up to me and give me great big hugs & kisses. You stay as brave as you are today and keep on getting better. We need you in all of our lives. I love you! Aunt Tine!! P.S. Tristan wants to come over this weekend and play Baseball. christine <harrisc@libertytravel.com> millville, nj usa - Tuesday, October 14, 2003 5:36 PM CDT Hey Max! Just checking up on you. It sounds like everything is going good! I just wanted you to know I am still checking on you. I will be keeping you and your hands in my prayers. Love and Hugs, Tami Slawson www.mpsrun.com La Verne , CA - Monday, October 13, 2003 8:44 AM CDT So glad to indirectly hear from you guys. I trust you have begun to recover from the initial diagnosis shellshock and are plugging along. I am happy to see that treatment is progressing for Max. This drug holds so much promise for our children. I hope its affects are even grander for the younger (and less severe) MPS kids than we anticipated. Laura Burke <burkenc@charter.net> Asheville, NC - Tuesday, October 7, 2003 9:11 PM CDT hi. My name is Debbie. I work at a law firm and we have a case regarding a child with MPS. I was trying to find more information on it and I found your site. I think you have a beautiful family and my prayers are with you. I will continue to pray for your baby in my women's group at church. GOd Bless. Debbie hackensack, nj usa - Thursday, October 2, 2003 3:15 PM CDT Great to hear the Max is adjusting to the infusions. I check often and send your my prayers. Janelle (Allison's Grandmother) Janelle Schumacher <shoe1115@yahoo.com> Fargo, n cass - Thursday, October 2, 2003 6:50 AM CDT Hey guys, Just a quick note to say hi! I'm sorry Max may have to have surgery on his hands. You might want to talk to Steve or Amy Holland about this. I think at least 2 of the 3 had surgery on their hands. They may be helpful with this. Jacob just broke down the cartlage (sp?) in his hands. His hands would lock all the time, he would call it his special trick and "pop them" back into place. It was yucky and I would always yell at him. But I think it worked for him. He still has to be careful, now if they "lock" it can take a 15 minutes to "unlock" them. Sami due to her keloids, I'm putting off her surgery. She will lose more than she will gain. I hope treatments are going well. Max will love his hearing aids once he gets use to them. It's a great thing to hear! And your hearing will recover too because he will not have the TV up so loud! LOL Love and Hugs, Tami Slawson - Wednesday, October 1, 2003 7:57 PM CDT Paul, Kim, Amanda, and Maxwell, You are wonderful people and I hope everyone is staying strong. If there is anything we can do for you, remember to contact us. God Bless, Uncle Dave and Aunt Dianne Rebecca and Sarah Uncle Dave and Aunt Dianne Forand <Forand2@yahoo.com> Paulsboro, NJ USA - Wednesday, October 1, 2003 10:46 AM CDT Paul, Max and all, I so enjoyed your new pictures! Hopes and prayers are going your way on a daily basis. Janelle Schumacher ( Allison Grandmother)- Janelle Schumacher <shoe1115@yahoo.com> Fargo, nd cass - Saturday, September 27, 2003 10:40 PM CDT Hey Guys, Just a quick note to see how Max is doing. I hope no news is good news. How are treatments going? Talk to you soon! Hugs, Tami Slawson <TLSlawson@aol.com> La Verne, CA - Tuesday, September 23, 2003 2:31 PM CDT OK Forand's! How is Max?! I hope all is well and you are just having too much fun to update! :) Love, Jennifer & Allison Jennifer Restemayer www.caringbridge.org/nd/allison <jennmarie@bis.midco.net> Bismarck, ND Usa - Monday, September 22, 2003 8:52 PM CDT Hey Max! So glad your surgery went well. You'll be hearing and talking so much very soon. Keep the faith and sending all my hopes your way. Janelle Schumacher <shoe1115@yahoo.com> Fargo, nd Cass - Saturday, September 13, 2003 8:42 PM CDT Hey Max and family!! So glad to hear everything went well with your surgery! I hope you are feeling alot better! I know what you mean about getting on the drs about the whole sedation thing! I think they all hide when they see me and Austin coming! Me and Austin just got our tickets for the next to last Phillies game here! I figured you would be excited for us since you love baseball so much!!!! Hope to check back in and hear nothing but good news soon!!!!! Carolyn & Austin Caucci <tweet84675@aol.com or www.caringbridge.org/page/austinc> Philadelphia, PA USA - Sunday, September 7, 2003 9:39 PM CDT Hi Guys, Just a quick note to say I'm thinking about Max! I hope all is well and surgery went great. Paul, the "hated parent" is the best way to be for our babies. I don't care how many surgeries a doctor has done. My question is always have many MPS babies have you done surgery on!!! This always gets them. LOLOLOL Keep up the good work! Hugs, Tami Slawson www.mpsrun.com <TLSlawson@aol.com> La Verne, CA - Friday, September 5, 2003 7:55 AM CDT Well wishes coming your way from Alli's Nana. I check and recheck all the time to find out how Max is doing. Keep the faith and hold on to each other! Janelle Janelle Schumacher <shoe1115@yahoo.com> Fargo, nd Cass - Tuesday, September 2, 2003 6:22 PM CDT HI Everyone Just want you to know we will be thinking about Max and all of you as this important proceedure takes place next week. As always, let us know if there is anything we can do. Can't believe Amanda is in 3rd grade already. WELL MAX...REMEMBER YOU ARE LOVED. We will be praying!!!!! LOVE TO ALL Aunt Pat and Uncle Dennis Pat and Dennis Gearhart <pattibgearhart@yahoo.com> BELLMAWR, NJ USA - Tuesday, September 2, 2003 1:32 PM CDT Forand's I will be thinking of you this week while you prepare for Max's surgery to place the port. Alli had hers put in in May. She also had the ear tubes put in, and an MRI under the same anethetic. I was really nervous but everything went really well, I'm sure Max's surgery will go very well too! Way to go Dad with insisting on the Bronchoscopy! You are a wonderful advocate for Max! He is lucky to have you in his corner! THINKING OF YOU! Jennifer & Allison Jennifer Restemayer www.caringbridge.org/nd/allison <jennmarie@bis.midco.net> Bismarck, ND Usa - Monday, September 1, 2003 9:20 PM CDT Hey Guys, I'm sorry about last week. I hope Max's port surgery went well. Sami Loves Hers!!!!! It makes it so much easier. I hope he get treatment on Thursday! Keep me updated. Love and Hugs, Tami Slawson www.mpsrun.com <MPSwalkrun@aol.com> La Verne, CA - Wednesday, August 27, 2003 10:12 PM CDT Hey Max, I am so glad you are doing so good with your treatments! Good luck and lots of prayers for your upcoming central line placement! You will love them!! I loved not having to get poked all the time!! I used to call them my tubies! I just started playing baseball recently! I will have to get mommy to help me practice and we can have a little game one day!!! Hope to meet you soon!!! Oh and mommy sayd hello too!! Austin Caucci and my mom Carolyn! <tweet84675@aol.com or www.caringbridge.org/page/austinc> Philadelphia, PA USA - Sunday, August 17, 2003 7:28 PM CDT Here's another good wish that the treatment goes well this week. Max, you are always in my thoughts and prayers. Janelle (Alli's Nana) Jessica Schumacher <shoe1115@yahoo.com> Fargo, ND cass - Thursday, August 14, 2003 6:31 PM CDT HI ALL! I have been out of town but what to check in with you all. Glad Max continues to do well. Thoughts coming your way!! Allison's Nana Janelle Schumacher <shoe1115@yahoo.com> Fargo, nd cass - Monday, August 11, 2003 9:42 PM CDT Hello! Just checking in and hoping all went well on Thursday with Max's infusion! Have his Liver and Spleen gone down in size at all yet? What are some of the improvements you have noticed? Thinking of you! Love, Jennifer & Allison Jennifer Restemayer www.caringbridge.org/nd/allison <jennmarie@bis.midco.net> Bismarck, ND Usa - Monday, August 11, 2003 9:59 AM CDT HI EVERYONE, JUST CHECKING IN ON THAT HANDSOME LITTLE BOY OF YOURS. SO HAPPY TO HEAR THINGS ARE GOING WELL.HEY MAX, KEEP UP THE GOOD WORK.!!!!!!!!!!!!!! LOVE AUNT PAT AND UNCLE DENNIS PAT AND DENNIS GEARHART <pattibgearhart@yahoo.com> BELLMAWR, NJ USA - Sunday, August 3, 2003 11:57 PM CDT Hi Guys, Just checking to see how Max's treatment went. I hope all is well and Max is over the evil pink eye. lol You are in my thoughts and prayer. Hugs, Tami - Saturday, August 2, 2003 8:34 AM CDT Paul, Kim, and Max! I hope everything went well today! You have been in my thoughts. Love, Jennifer & Allison Jennifer Restemayer www.caringbridge.org/nd/allison <jennmarie@bis.midco.net> Bismarck, ND Usa - Thursday, July 31, 2003 9:56 PM CDT Good Luck Max on yet another infusion!! I'm thinking about you! Alli's Nana Janelle Schumacher <shoe1115@yahoo.com> Fargo, n Cass - Wednesday, July 30, 2003 3:30 PM CDT Hey Guys, I'm so sorry Max has pink eye! That's the pits! Be careful or you all will have it soon! I'm glad they didn't hold back treatment and all was well! I will be praying for a quick recovery. Oh, quick note: Sami started speech when she was a year old and they kicked her out in third grade!! She speaks clearer than I do! So don't worry, he's speech will be fine and he will love it! I'm glad you like the forum idea. I think well all need some parent support;) Hugs, Tami Slawson www.caringbridge.com/ca/slawson - Friday, July 25, 2003 5:22 PM CDT Hi Max and Family, My name is Kelly Waddell and my little boy has Hurler. Just saw your entry on the other Max's page and thought I would see how things were going with your little angel. I will keep him in my prayers. Kelly Waddell <http://www.geocities.com/calebwaddell> Southaven, MS USA - Friday, July 25, 2003 1:03 PM CDT Hey Max, Paul and Kim! Just wanted to check and see how enzyme day was? I know Max did fine. I also wanted to share that we started a new MPS ERT forum. I'm hope it will become a sorce of information for all us on ERT. Here's the site.... http://pub151.ezboard.com/bmpsenzymereplacementtherapy Keep up the good work Max! Oh, a cute note! My husband saw max's picture and remarked how much he looked like Jacob when he was young! I knew Max was cute! LOL Love and Hugs, Tami Slawson www.caringbridge.com/ca/slawson La Verne , CA - Thursday, July 24, 2003 11:08 PM CDT Kim, I'm glad to hear things are going well. The pictures are great! Max looks like a happy guy! Sometimes it is very difficult being a parent, but it is truly the most rewarding job in the world. Keep up the good work. You, Max and your family are in my prayers. Carole D'Ascenzo Haddon Heights, NJ Camden - Thursday, July 24, 2003 1:45 PM CDT Hi Max! Checking back in on you and you know what? You are just TOO CUTE!!!! Glad to hear things are going well with the ERT. I am excited about the prospects that is has to offer. You continue in my prayers! Love, Lisa Post <ltjpost@cox.net> South Windsor , CT - Thursday, July 24, 2003 7:11 AM CDT HI Max and All! Another week, another milestone! After spending the weekend with my Granddaughter Alli, I am amazed at the progress! You have so much to look forward to. It is a blessing each and every day! Thinking of you as you received yet another infusion! Good luck this week!! Janelle Schumacher Janelle Schumacher <shoe1115@yahoo.com> Fargo, nd Cass - Wednesday, July 23, 2003 7:52 AM CDT It's just me Droopy signing the guestbook and whatnot. Paul, Kim and the whole Forand clan rock with pointy guitars and the love they have for Max. I am glad that everything is going well and hope that it continues in bushels and droves. Andrew Sholly <shollyac@yahoo.com> Riverside, NJ USA - Tuesday, July 22, 2003 3:57 PM CDT Just checking in on Max to see how everything is going. So glad to hear things are progressing well. You are on our hearts, always. Basketball, huh...... Maybe he can teach his uncle Matt some moves(giggle). We are praying for you all. Please give Max and Amanda a big hug from us. Max you are a super little boy!!!!!!!!!!!! Love Aunt Pat and Uncle Dennis Pat and Dennis Gearhart <pattibgearhart@yahoo.com> Bellmawr, ,.J. 08031 - Monday, July 21, 2003 8:37 AM CDT Hey Max!!! Just checking in to see how you are doing!!! Good job with your infusions!! looking forward to meeting you sometime soon I hope!!!! You will have to teach Austin how to play baseball, he just likes swinging the bat!!! Carolyn and Austin Caucci <tweet84675@aol.com or www.caringbridge.org/page/austinc> philadelphia, pa usa - Friday, July 18, 2003 9:48 PM CDT Glad to hear infusion went well. I'm sure he'll catch up soon on speech. Most hurler kids have to go 2 times a week to speech and need hearing aids. So, we'll just pray that he speech starts coming quickly after therapy begins. I also heard that these infusions could help the hearing! Jennifer Jennifer Awrey caringbridge.org/me/morgan <ammawrey@cableaz.com> Mesa, AZ - Friday, July 18, 2003 10:05 AM CDT Hi Guys! Just a quick note to tell you I'm thinking about Max on Enzyme Day! I'm so happy for him and all our aldurazyme babies. I can't wait for an update to see how he is improving! Keep up the good work Max! You are a brave little boy and you are lucky to have such wonderful parents! Love and Hugs, Tami Slawson www.caringbridge.com/ca/slawson <TLSlawson@aol.com> La Verne , CA - Thursday, July 17, 2003 9:03 AM CDT HI EVERYONE! iT'S Wonderful to hear Max is doing so good. I'll let G.G.G. know the lastest. We think about you all often!!!. Lauren said say hi to Max and also Amanda. Please know we are here for all of you. Max is such a great little boy. We am so happy about the good progress he is making. Your All in our prayers. Aunt Pat and Uncle Denny Dennis &Pat Gearhart <pattibgearhart@yahoo.com> Bellmawr, NJ 08031 - Tuesday, July 15, 2003 1:30 PM CDT Super Kim and Paul! Sounds like Max is moving right along. I contiune to check in and read about his progress. Take care! Janelle Schumacher (Allison's Nana) Janelle Schumacher <shoe1115@yahoo.com> Fargo, nd cass - Saturday, July 12, 2003 1:20 PM CDT You are right! Our children really are the stong ones. I'm so happy Max is feeling better and he is able to keep up better with his friends and family! Thank God! It is so fun to watch them become more active and be able to do all these new things! Love, Jennifer Restemayer Jennifer Restemayer www.caringbridge.org/nd/allison <jennmarie@bis.midco.net> Bismarck, ND Usa - Saturday, July 12, 2003 12:46 AM CDT Hi! I hope everything went well for Max's psych evaluation yesterday! I will be thinking of you tomorrow, I know you will have a great day! Allison seems to have SOO.. much more energy since she started ERT...Does Max too? Just wondering. Good luck for your infusion Max! Love, Jennifer & Allison Jennifer Restemayer www.caringbridge.org/nd/allison <jennmarie@bis.midco.net> Bismarck, ND Usa - Wednesday, July 9, 2003 11:44 PM CDT Good Luck tomorrow Max! Alli came through her 7th infusion with ease. It is starting to become a part of life for her and it will for you too! Thinking of you all! Allison's Nana Janelle Schumacher <shoe1115@yahoo.com> Fargo, nd Cass - Wednesday, July 9, 2003 7:23 PM CDT Hi Guys, Just checking in on Max! I wanted you to know I'm keep you in my prayers. Keep up the good work Max. Jacob says you will be feeling great soon. Soon you will not even know you have MPS! The enzyme is working and my kids are feeling so much better! Love and Hugs, Tami Slawson www.caringbridge.com/ca/slawson or MPSrun.com <TLSlawson@aol.com> La Verne , CA - Monday, July 7, 2003 9:33 AM CDT Just wanted to let you know we are still thinking of all of you and praying for you. Again what ever we can do to help, we are here. AUNT PAT AND UNCLE DENNIS pat and dennis gearhart <pattibgearhart@yahoo,com> bellmawr, nj USA - Wednesday, July 2, 2003 12:12 AM CDT Dear Kim I just want to encourage you to stay strong as you have already have been through out this whole ordeal. As you have said you still have a long way to go, but with all the prayers going up, your blessings will come down. You know that Max and the rest of your family are in our prayers as well. God Bless and remeber to take care of yourself for Max and Amanda, they need a good "mommy" like you. Keep praying and keep the faith. I'll see you soon. Sincerely, the Whaley's <www.ladawn8 @aol.com> - Tuesday, July 1, 2003 8:08 PM CDT Just checking up on Max to see how he's doing. Hope his infusions went well today. Please let us know. Take care. Max, I don't know you, but you've won my heart over. Kim & Paul, good luck with everything you've been going through. I'll be back soon to check the updates. Dave (lead singer from the band Caught in the Zipper & formerly of Bottoms Up!) <zipper@icdc.com> Fairless Hills, PA USA - Monday, June 30, 2003 6:42 PM CDT I'm loving those pictures! I'm so glad that Max's infusions are going so well with little or no side effects. As always, you are all in my prayers. Traci Parrotti <atparrotti@comcast.net> Philadelphia, PA USA - Sunday, June 29, 2003 8:54 PM CDT thanks Kim for the update...Mom's know a lot and your Max sounds wonderful! I keep sending positive thoughts your way!! Janelle Schumacher <shoe1115@yahoo.com> Fargo, nd cass - Friday, June 27, 2003 9:19 PM CDT Best wishes from a friend of so many MPS families! My very good friend's daughter has Hurlers and through them I have met so many wonderful families and sweet children. I am very excited about the prospects of ERT and will be checking in on Max and keeping him in my prayers! Best Wishes! Love, Lisa Post <ltjpost@cox.net> South Windsor , CT - Friday, June 27, 2003 4:02 PM CDT Hello, another Hurler family here and we live nearby! We are right in Philly! I just saw your guestbook signing on Jacob's site and saw you were from NJ and then couldnt believe you were MPS also! Lots of luck with your treatment! Austin is 4 yrs old and 2 yrs out of stem cell transplant (today actually!!!) Please stop by and visit our page! I will be checking daily on you guys!!! GOOD LUCK AND LOTS OF PRAYERS!!!!!!! Carolyn and Austin Caucci <tweet84675@aol.com or www.caringbridge.org/page/austinc> Philadelphia, PA USA - Friday, June 27, 2003 10:23 AM CDT Glad to hear he feels better today. Keep up the great job! Well be praying for you. Jennifer Awrey caringbridge.org/me/morgan <ammawrey@aol.com> Mesa, AZ - Thursday, June 26, 2003 10:43 PM CDT Hi Max, Paul and Kim, Most positive thoughts on the infusions! We are all excited! Janelle (Alli's Nana) Janelle Schumacher <shoe1115@yahoo.com> Fargo, n Cass - Thursday, June 26, 2003 2:15 PM CDT Dear Max,Kim and Paul, I really enjoyed reading your web page. It had lots of good information that answered things that I was wondering about. My son Andrew is 3 and 1/2 he was diagnosed with MPS1 2 years ago and will be 2 years post-transplant in Aug. He is doing very well and we are eagerly following the new families we are meeting that are doing ERT. It sounds great. I am so glad for Max. Please feel free to come visit our web page. Anne Anne Himes <www.caringbridge.org/page/andrewh> Boonsboro, md USA - Thursday, June 26, 2003 10:04 AM CDT Good luck on the treatments, Max looks great! OUr prayers and thoughts will be with you from Texas. David Verret <dverret@us.ibm.com> Coppell, TX USA - Thursday, June 26, 2003 9:27 AM CDT Good Morning Max, Paul, and Kim! Just a quick note to tell you we are thinking about you! Good luck with treatment today. I know you will do great Max!!!!! Love and Hugs, Tami Slawson www.caringbridge.com/ca/slawson <TLSlawson@aol.com> La Verne , CA - Thursday, June 26, 2003 9:10 AM CDT I just wanted to drop in and say good luck tomorrow on your second infusion! We will be thinking of you! Love, Jennifer & Allison Jennifer Restemayer www.caringbridge.org/nd/allison <jennmarie@bis.midco.net> Bismarck, ND Usa - Wednesday, June 25, 2003 10:18 PM CDT Another MPS1 family checking in on Max...we are so happy to hear that Max is able to begin his Aldurazyme so soon after diagnosis. He is a beautiful little boy and I look forward to hearing how he is doing now and in the future! Our son Jacob had an unrelated umbilical cord blood transplant at Duke in May of 2002. He will be 3 in July. Take care and know that Max is in our thoughts! ~Melanie, Steve, Jacob (www.caringbridge.org/wa/jacobirish), & Matthew The Irish's <mairish@hotmail.com -OR- www.caringbridge.org/wa/jacobirish> Marysville, WA USA - Wednesday, June 25, 2003 9:57 AM CDT Hi, we are another MPS 1 Family....Hurlers. Riley will be four on Saturday and we just had his one year anniversary for his second BMT in Minneapolis. He is doing great, just developmentally delayed. We want to wish you well and know that you are in our prayers. xoxoxoxox........Jeanne Jeanne Joiner <jeannejoiner@hotmail.com caringbridge.org/ok/rileybear> Del City, OK USA - Wednesday, June 25, 2003 8:32 AM CDT To all in the Family, My daughter Jennifer sent your website out today. Please know that you are not alone. For such a rare disease, there are a lot of prayers that will float your way. There is power in the strength of circles of friends. As we cirlce around Alli and try to give her our strength, I want to extend that strength to Max as well. I really believe that our day will come when we all meet and share our loved ones with a lot of hugs for everyone. I can't tell you how well Alli is doing with her treatments. The scary part is always the beginning (for both Alli and Jenn) but with age, that will get better. Thank you for sharing your story and hang tight...there are a lot of people behind you! I will check in to your site for all the updates. Janelle Schumacher (Allison Restemayer's Nana) Janelle Schumacher <shoe1115@yahoo.com> Fargo, nd cass - Tuesday, June 24, 2003 3:46 PM CDT Hi I'm new to your site and I think Maxwell looks great! My daughter had Hurler's syndrome. Maxwell sounds like her with all the problems. I hope this new treatment goes well for him. Jennifer Awrey ammawrey@aol.com <www.caringbridge.com/me/morgan> Mesa, AZ - Tuesday, June 24, 2003 12:32 AM CDT I have never heard of this illness before but you and your uncle have educated me. I send my best wishes to you and Max. I will "pitch" a story on little Max although I'm not sure we will be able to do it. Good luck with the new drug and with Max's care. Cherie Bank NBC 10 News Cherie Bank/NBC10 News Bala Cynwyd, PA Montgomery - Tuesday, June 24, 2003 9:57 AM CDT Hi Max, Kim and Paul!! I'm sorry you are feeling under the weather :( I hope you feel better today!!!! I will keep you in my prayers. Keep up the good work with aldurazyme. You will start feeling better in a few more weeks. I Promise! Love and Hugs, Tami Slawson www.caringbridge.com/ca/slawson <TLSlawson@aol.com> La Verne, CA - Monday, June 23, 2003 10:06 AM CDT Hello Max and family!! I was so happy to see your entry in Aaron's guestbook. Although I would never wish this horrible disease upon any child it is always nice to come in contact with other MPS1 parents. I wish you all the best with Max's treatments. I will pray for him and your family and follow his web page. Until next time....... Trisha Athy <caringbridge.org/il/aaronathy> - Sunday, June 22, 2003 9:25 PM CDT Max Paul,Kim,and families..we are thinking about you all of the time, and we have Maxwell posted in our church bullitin for the prayer list. God Bless him and his family. Love, Uncle Dave, Aunt Dianne, Rebecca and Sarah Forand dave and dianne forand <forand2@yahoo,com> paulsboro , nj gloucester - Sunday, June 22, 2003 8:58 PM CDT So glad to hear Max did well with his first treatment. We are praying for you all. He is a wonderful little boy.!!!!!!!!!!!! Let us know if we can help with anything. Aunt Pat and Uncle Denny: Pat and Dennis Gearhart <pattibgearhart@yahoo.com> Bellmawr, NJ 08031 - Sunday, June 22, 2003 6:34 PM CDT Hi Max and Paul!! Happy belated Enzyme Day!! Way to go Max! I will keep you in my prayers and will be checking up on you progress! Email my anytime! I know Max is going to do great on the enzyme! I'm so happy for you all! Hugs, Tami Slawson www.caringbridge/ca/slawson/ <TLSlawson@aol.com> La Verne , CA ` - Saturday, June 21, 2003 12:37 AM CDT Hi Max and Famiy, I followed you from the Slawson's guestbook. I am sorry you have been diagnosed with this terrible disorder, but I am happy to hear you are now getting treatment. It's wonderful news that Aldurzyme has finally been approved. I wish you the best of luck with all your future treatments. My 11 yr. old son is dx. with MPS II (Hunter Syndrome) . . . we know Dr. Muenzer very well. I hope you don't mind if I check on your progress from time to time. God Bless! Kris Klenke <kris@mpssociety.org> Worden, IL - Saturday, June 21, 2003 8:01 AM CDT Forand Family! Thank you so much for signing Allison's guestbook! I am so excited to learn that Max is getting Aldurazyme! Allison has already seen some small progress and she has only had 4 infusions! I have added you to my favorites and I will visit often to keep track of Max's progress. I wish you the best! Max is adorable! Jennifer Restemayer www.caringbridge.org/nd/allison <jennmarie@bis.midco.net> Bismarck, ND Usa - Friday, June 20, 2003 10:51 PM CDT Hey Maxie and Paulie!! Just wanted to say good luck with everything tommorrow and I'll be thinking of you both all day!! Love, Kelly K Kelly Kerrigan <Forandkerrigan@aol.com> - Wednesday, June 18, 2003 8:47 PM CDT Hey there Paul, Just want to let you know that George and I think of you and Max often. Although I get updates from Christine, and she may forward them to you, I just wanted you to know the Joyce's have you in there prayers personally nikki joyce <woobjoy@earthlink.net> Bridgeton, NJ - Sunday, June 8, 2003 6:49 PM CDT Thanx again everyone for writing in. Max is going to the ENT at duPont today, so hopefully I'll have an update. The tubes in his ears have been clogged, and he may need them replaced if the drops we've been using didn't work. So look for a new journal entry soon!! Paul <forandkerrigan@comcast.net> Millville, nj - Thursday, June 5, 2003 6:40 AM CDT Hi guys!!! The site is a great idea. :-) You, Max, and the rest of your family are in my thoughts daily. I'm so glad to hear things are looking well, and we're all pulling for you and Max. I love you guys! Alexis :-) - Monday, June 2, 2003 1:30 PM CDT Paul- Glad to hear some good news about Max. Your family will be in my prayers. Hope to see you soon! Love you and miss you!! Cathy <foxydmcjr@aol.com> - Sunday, June 1, 2003 9:29 PM CDT Hi Paul and Kim: My thoughts and prayers are with you and your son. Your website is a good idea. Mike Bolkus Langhorne, PA - Saturday, May 31, 2003 10:26 PM CDT Thanx everyone!! We've been lucky to have so many people be there for us. I hope this site is a way to keep everyone updated on Max. I'll also change the pictures often, since we only get the four. Again, thanx everyone!! Paul - Saturday, May 31, 2003 9:13 PM CDT Your precious baby is in our prayers. Please update us and let us know how Max is doing. Glad to hear that you've gotten some better news. Crysty & Dave (Caught in the Zipper - www.zipperrocks.com) <zipper@icdc.com> Fairless Hills, PA 19030 - Saturday, May 31, 2003 9:29 AM CDT Hey Paul....wanted to let you know that my thoughts and prayers are with you and Max always. Glad to hear better news. Talk to you soon. Karen - Friday, May 30, 2003 12:45 AM CDT Hey Paul, glad to hear some good news about Max. Hope things are going well and the band misses ya!! Johnny - Friday, May 30, 2003 11:33 AM CDT Hi there!! Welcome to Max's guestbook. Please feel free to drop a line or ask questions. Paul Forand <forandkerrigan@comcast.net> Millville, NJ - Thursday, May 29, 2003 10:40 PM CDT |
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