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Sorry babygirl that it has been such a long time that mommy has signed ur guestbook. I just wanted to let u know that i love u and still think about u everyday. You & Your brother and little sister is mommy's life. I love you all. Watch over all of us. I miss you so much.
love always
your mommy

Tammy <kybabygirl_24@yahoo.com>
Wallins, ky harlan - Thursday, March 26, 2009 11:18 PM CDT
hey wat up
kevin proutey <proutey@hotmail.com>
legunior, ky u.s - Thursday, June 12, 2008 8:31 PM CDT
CommentYou.com is your One Stop Shop
Make your Comments HEARD using COMMENTYOU.com
thinking of you guys and missing you guys hope all is well hugs kathy and katilynn

kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Saturday, March 31, 2007 10:00 PM CDT


Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Tuesday, February 13, 2007 6:57 PM CST
hi guys
just wanted to let u guys know that you are still in our thoughts and we miss talking to you guys hugs and kisses kathy and katilynn

kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Tuesday, January 16, 2007 5:57 PM CST
hey guys
just wanted to stop by and let you know that you guys are still in our thoughts and we miss hearing from you guys.hope all is well with the new baby talk to u soon hugs and kisses kathy and katilynn

kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Tuesday, January 16, 2007 5:56 PM CST
Have a Great New Year
Maria Tuckett <maria.tuckett@jetblue.com>
Layton, UT US - Tuesday, January 2, 2007 1:05 AM CST
Photobucket - Video and Image Hosting
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Tuesday, December 19, 2006 12:59 AM CST
Photobucket - Video and Image Hostinghi guys i am so sorry it has been so long since i came by i redid my computer and i lost everything so again i am sorry.i have missed hearing from you guys i hope that u all have a great thanksgiving maybe now we can keep in touch loe kathy and katilynn and the whole preston family
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Thursday, November 23, 2006 7:12 AM CST



Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Wednesday, November 22, 2006 3:41 PM CST



Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Tuesday, November 14, 2006 0:08 AM CST
Hi,
I just wanted to let you guys know that you are in my thoughts and prayers as you face this anniversary.
Much love,

Leslie Phillips (MPS/ML Forum) <Leslie42457@yahoo.com>
Winston-Salem, NC USA - Monday, November 13, 2006 11:50 AM CST
myspace iconsyou are a beatiful angel....
becky bourassa <beckers@netzoola.com>
new milford, pa - Friday, November 3, 2006 8:01 PM CST


Myspace Codes & Myspace Code

Myspace Glitters

-
Free Image
Hosting

love and miss you beatifull

rebecca <beckers@netzoola.com>
new milford, pa - Wednesday, October 25, 2006 6:11 PM CDT
Photobucket - Video and Image Hosting

Thought I'd stop in and wish a Happy Mother's Day!
Keeping you in prayer also.
Hugs,
Patty and Jesse MPS IIIA


Patty Taormino <woridnedge@aol.com>
Balto, MD USA - Saturday, May 13, 2006 11:21 AM CDT
Happy Easter

She will always part of your family, she was so special how could you not talk about her all the time. You would probably go crazy if you didn't.

Love Tina,Padraic,Amy+Sophie

Tina <tina@melroseroad.co.uk>
London, UK - Friday, April 14, 2006 1:54 PM CDT
tammy and cheryl
tammy let me tell you this.dont ever ever let anyone tell you what you should feel or what you can tell tommy about his sister.you know whats right for you and how you want to feel.if you wanted to lay in the floor and sream your brains out then thats what you should do.or if you want to tell tommy every sec of the day about his sister you do that.i hate when people try to tell you how you should feel.those people have probly never lost a child and its none of there bussiness what you do you keep you head up and do what you want to do.evline will always be a part of your familyeven if she isnt there physical.she is there in your heart and mind.so dont listen to other people you do what you want to do.im not sure what you meant by regrets.if its putting evline through bone marrow transplant its because you wanted what was best for her and you were trying to make her well.no one would blame anyone for wanting whats best for there child.so you are a great mom and you were doing what you thought was best.so just tell all those other people to go fly a kite or even worse lol tell them to keep there nose to there self.i hope to talk to you soon hugs and kisses i hope you guys have a great easter and give tommy kisses from me and katilynn love you guys

kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Wednesday, April 12, 2006 10:34 PM CDT
i thought i would stop in to say hi and congradulations on the baby i am so happy that he is doing good. i read the update and that brought back some memories and i shared a tear or two but i am fine now. we still think of all the memories that was shared with all of you and lil evline she really did have a smile that was beautiful. she was your alls lil angel and she was precious to everyone. i look at her pictures evrytime that me and ronald comes to visit and it just doesnt seem real that she is in heaven now it was like only yesterday me and ronald came up there and cheryl would have her setting in her lap and she would smile at everyone that came through the door. she was truely a blessing. anyone could start out having a real bad day and just to go in the house at cheryls and see her would lighten the whole day. she was so beautiful. after me and ronald would leave to come home we would talk about how she smiled. i hope that you all are doing well and god bless each and everyone of you.
pauline & ronald & family <ronaldslady6907@yahoo.com>
evarts, ky usa - Saturday, March 25, 2006 0:41 AM CST
hi guys
just wanted to stop by and let you know that we are thinking of you guys often.i hope all is good with the new baby.katilynn is doing good for the most part.she got her wheel chair last week she seems to like it pretty good.well i hope to hear from you all soon hugs and kisses kathy and katilynn

kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Friday, March 10, 2006 12:01 AM CST
Dear Tammy, Just wanted you to know that I check your web site often. I am so sorry that Tommy is sick.Praying for a speedy recovery..I know our Hurler Angels are watching over us..Sending Love from Chicago..Mighty-Max's Granny Judie www.mighty-max.com
Judie Sweeney <judithsween@aol.com>
Chicago, IL USA - Saturday, March 4, 2006 5:29 PM CST
Congratulations on your new baby!!! I am so glad that he doesn't have Hurlers. I am thrilled that he is doing better but I am sorry that you have had to go through this hard time. Hannah, my first child, was 6 1/2 weeks early and weighed 4lbs 10 oz. I hope you will be home soon. We are going in to the hosptial on Thur to have hip/knee surgery for Andrew. love, Anne
Anne Himes <arhimes@msn.com www.caringbridge.org/page/andrewh>
Boonsboro, Md USA - Sunday, February 26, 2006 11:32 AM CST
Hey guys. Just stopping in to say "Hey." You guys have a beautiful baby boy. I know Evline is in Heaven bragging on her little brother right now. And I know she is telling him to take care of everyone until they can be with me. Evline, you are such an angel and we miss you terribly. You are always in our hearts. You are a true angel and your brother is too. We love you all and please remember we are always here for you guys.

Love, Renae, Rat& Bre

Renae Jones <boltman@mikrotec.com>
Evarts, Ky U.S.A. - Tuesday, February 21, 2006 9:36 AM CST
Congratulations!!! It is so nice to hear that the baby is here. Cheryl I am to having a very difficult time dealing with the loss of my baby Ashley. We wonder about just everything that we lived with them and the ways that each of these kids impacted us. It is really hard to have to let go, when you just don't want to because they are still very alive to you just in a different way. I just wish this was all a nightmare but this is our reality.
Evline will always be in my heart.
Cheryl, do you remember the pictures that you took of Ashley and Evline at the RM House? I know you tried emailing it to me but, I never got to access them. Is there any way that you can mail these pictures to me or email them agin??I would really love to have those pictures especially since that's all I have now is memories.
Just in case my address is 78-16 87 avenue Woodhaven,NY 11421.

Angela and Angel Ashley <angela_rosario35@hotmail.com>
- Saturday, February 18, 2006 7:32 PM CST
hi tammy
i am so glad that you all are doing good and i am so happy that the new baby is here.tammy dont worry about what other people think you should feel because other people dont know only you know how you feel in side.the pain of losing your child will always be there but it gets alittle easier they say.i couldnt tell you that and i hope that i wont have to ever say it but i know i will someday.i would love to hear from you and cheryl.please call me sometime.i am always home.606-298-0096.i would love to hear from you guys.well i hope to talk to you soon please keep the updates on here and please put somepictures of the new baby on here for us.thank you talk to you soon hugs and kisses kathy and katilynn

kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Sunday, February 12, 2006 6:25 PM CST


Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Saturday, February 11, 2006 8:22 PM CST
So good to hear from you Tammy!
I check the site all the time. Congrats on the the new baby! I know Evline is watching over him. I pray he is healthy and that you will have so much joy in watching him grow! Keeping you all in my thoughts and prayers!!
Bethany

Bethany Kistler (nurse 5200)
Elon, NC USA - Wednesday, February 1, 2006 4:57 AM CST
HI GUYS
JUST WANTED TO STOP BY AND WISH YOU A MERRY CHRISTMAS AND HAPPY NEW YEAR.HUGS AND KISSES KATHY AND KATILYNN PRESTON.wwwcaringbridge.org/ky/katilynnsmom

kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Thursday, December 15, 2005 2:26 PM CST





Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Thursday, November 24, 2005 0:00 AM CST
hi guys
just wanted to let you know that we are thinking of you and the whole family i havent heard from you in a while would love to hear from you guys to see how everything is going and im sorry for not coming by sooner katilynn has been pretty sick here lately and i havent had to much time.but i will do better from now on hope to talk you guys soon.good luck with the new baby.hugs and kisses kathy and katilynn preston www.caringbridge.org/ky/katilynnsmom

kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Sunday, November 20, 2005 6:25 PM CST
Thinking of you...hope to hear more about Evline's little brother or sister soon...
Michelle
Cincinnati, OH - Monday, November 14, 2005 9:53 AM CST
Thinking of you all.
Love Tina,Padraic,Amy+Sophie

Tina <tina@melroseroad.co.uk>
London, UK - Friday, November 11, 2005 7:25 AM CST
Just a note to let you know that I was thinking of all of you and hoping you are well. Your family is always in our hearts, and we know little Evline is watching us all from above. May God continue to bless you all... always. Wishing you always much peace. With love,
Claudina (Caterina's mom) <claubonetti@aol.com>
New York, NY - Tuesday, October 11, 2005 8:40 PM CDT



Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Tuesday, October 4, 2005 1:21 AM CDT
hi guys
just wanted to let you know that we are thinking of you all and that we would love to hear from you.i miss talking to you all and hope everyone is doing great and tammy i hope everything is going good with the baby please let me know.hugs and kisses kathy and katilynn

kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Monday, September 26, 2005 11:20 AM CDT
I'm just stopping by to let you know my thoughts & prayers are with your family. God bless and *warm hugs* ><>†<><
Image hosted by Photobucket.com

*Jennifer C* <jenniferc@ilovetocolor.com>
Eugene, OR USA - Saturday, September 24, 2005 4:52 PM CDT
hello guys
just wanted to stop by and say hello and hope all is well.please let me know how everything goes with the baby and let me know what it is going to be.love you guys kathy and katilynn preston www.caringbridge.org/ky/katilynnsmom

kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Sunday, September 4, 2005 9:34 PM CDT
Good to find an update, we think of you often.
Wonderful news about the new baby we will be praying that all goes well, no MPS.
Love Tina,Padraic,Amy+Sophie

Tina <tina@melroseroad.co.uk>
London, UK - Friday, August 26, 2005 11:54 AM CDT
CHERYL,TAMMY,JERRY,
I JUST THOUGHT I WOULD STOP BY AND SAY THAT WE ARE STILL PRAYING FOR ALL OF YOU GUYS, WE HOPE THAT ALL OF YOU ARE DOING WELL. I HAVE BEEN STILL TRYING TO DEAL WITH THE PASSING AWAY OF MY GRANDMOTHER. IT HAS BEEN HARD BUT I HAVE TRYED TO MAKE MYSELF BELIEVE SHE IS IN A BETTER PLACE. I CAUGHT MYSELF PICKING UP THE PHONE AND CALLING HER A FEW TIMES BUT THEN I REALIZE THAT SHES NOT GOING TO ANSWER. I HOPE THAT ALL OF YOU GUYS ARE DOING WELL AND I JUST THOUGHT I WOULD STOP IN AND SAY THAT EVERYONE I HAVE TALKED TO ABOUT YOUR LOSS IS STILL PRAYING FOR YOU ALL. EACH AND EVERYDAY ONE OF MY FAMILY MEMEBERS SAY A PRAYER FOR ALL OF YOU. WELL I GUESS ILL GO FOR NOW BUT ILL STOP IN AGAIN BEFORE LONG.

PAULINE & RONALD HOLMAN & FAMILY <RONALDSLADY25@YAHOO.COM>
EVARTS, KY USA - Tuesday, August 2, 2005 10:32 PM CDT
cheryl,tammy and jerry
i just wanted to stop by and check on you guys.ihope all is going well and that everyone is doing good.hope to hear from you all soon.hugs and kisses kathy and katilynn

kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Sunday, July 24, 2005 12:21 AM CDT
Cheryl, Tammy and Jerry,

Thinking about you'all and angel Evline, what a blessing she was to this world and what a blessing she is to all our MPS babies, taking care of and smiling down upon them from above!!
I hope you had a great visit with Joshua's family.
Love Kim and Ty

Ty and Kim Downham <jdownham@earthlink.net>
Houston, TX - Tuesday, July 19, 2005 9:04 PM CDT
cheryl,tammy,jerry
hello everyone sorry i havent signed in here in a while its just that last week on the 13th wednesday i lost my grandmother and i have been trying to deal with it. its been hard on dad and all the rest of the children but we know that gods got her home with him now. i hope that every thing is going okay with you guys. everyone one of you are in our prayers and in our hearts. i told ronald the other day that i couldnt get back on this sight because i had my computer repaired and it hasnt been doing to good. well my classes start the 15th of august so hopefully i can sign in here every now and then. well i guess ill go for now so talk to you all later.

pauline and ronald and family <ronaldslady25@yahoo.com>
evarts, ky usa - Monday, July 18, 2005 7:47 PM CDT
Dear Cheryl,
I have been thinking about you and I am sorry that I haven't checked in for awhile. I am glad that Jerry and Tammy have been keeping busy. I hope your visit with Joshua went well. I really miss being able to see the people I have met at Duke. Email is great but it isn't the same thing as being there. I hope you will stop in on our page to visit Andrew if you can. Keep the updates coming. Love, Anne

Anne Himes <arhimes@msn.com www.caringbridge.org/page/andrewh>
Boonsboro, Md USA - Friday, July 1, 2005 6:43 PM CDT
HI GUYS
JUST WANTED TO STOP BY AND SAY HELLO AND TO SEE HOW YOU GUYS ARE DOING.I MISS GETTING TO TALK TO YOU ALL.I HOPE THAT WE CAN MEET ONE DAY SOON I WOULD REALLY LOVE THAT.THANK YOU TAMMY FOR CHECKING ON KATILYNN THAT MEANS ALOT TO ME.I WILL BE BACK TO CHECK ON YOU GUYS IF YOU NEED ANYTHING OR JUST WANT TO TALK PLEASE FEEL FREE TO CALL ME.LOVE KATHY AND KATILYNN PRESTON

KATHY AND KATILYNN PRESTON <katilynnsmom@yahoo.com>
TOMAHAWK, KY USA - Wednesday, June 29, 2005 11:01 AM CDT
Thinking of you. Have a good 4th of July
Maria Tuckett <Maria.tuckett@jetblue.com;caringbridge.org/ut/tuckett>
Murray, U US - Tuesday, June 28, 2005 2:17 AM CDT
cheryl & family,
i am sorry that i havent signed in here in a while but i've
been so busy i had to take lil cheryl to the dentist and tiffany back and forwards to the doctor. i read the letter that you and tammy had written and it brought a tear to my eyes and my heart just sanked. me and mom was talking about you all the other day and she asked me how was you all doing and i told her you all was making it on all the prayers and the good precious memeories you all had in your hearts of her. dad and all of the family is praying for you all. i'm not good about writing things to exspress my feelings but i can set and think of what to say but when i try to put them in writting i can't remember half of them that i thought of. In everyones heart we miss the brightest star that was given for a short length of time but she just had a smile about her that could make a sad day into a happy one. we know that you miss her terribly and we are still holding you each and everyone in our hearts and prayers. well i guess this is long enough so if you need us call us anytime. love you all

Pauline & Ronald & family <ronaldslady25@yahoo.com>
evarts, kentucky united states - Monday, June 13, 2005 9:11 PM CDT
HEY BABY GIRL MOMMY AND DADDY AND EVERYONE LOVES YOU SO MUCH AND MISS YOU. MOMMY DON'T REALLY KNOW WHAT ELSE TO SAY BUT ONE DAY MOMMY AND DADDY HOPES TO JOIN YOU WITH JESUS. THEN WE CAN CATCH UP ON BLOWING BUBBLES. BE GOOD. TALK TO YOU LATER SISSY.
EVLINES MOTHER <tammy_thomas_18@yahoo.com>
EVARTS, KY 40828 - Saturday, June 11, 2005 1:02 AM CDT
HI TAMMY,JERRY AND CHERYL
I JUST WANTED TO SAY THAT YOU GUYS ARE STILL IN MY THOUGHTS AND THANK YOU SO MUCH FOR STOPING BY AND WISHING KATILYNN A HAPPY BIRTHDAY.WE LOVE YOU GUYS AND HOPE TO GET TO MEET YOU ALL SOON.LOTS OF LOVE KATHY AND KATILYNN

KATHY AND KATILYNN PRESTON <katilynnsmom@yahoo.com>
TOMAHAWK, KY USA - Thursday, June 2, 2005 6:21 PM CDT
Your family is in my prayers. God Bless.

http://www.geocities.com/calebwaddell

Kelly Waddell <kellywaddell@hotmail.com>
Southaven, MS USA - Wednesday, June 1, 2005 11:53 AM CDT
I am just stopping by to let you know that my thoughts and prayers are with you! God bless and *warm hugs* ><>†<><
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Lighting Children’s Lives
Caged Kids
Raise Awareness

*Jennifer C* from Lighting Children’s Lives, Caged Kids & Friends of Allie/Raise Awareness <jenniferc@ilovetocolor.com>
Eugene, OR USA - Wednesday, June 1, 2005 1:26 AM CDT
hi its me bre just wanted to tell every one that im doin okay but still pray 4 me because every now n then i still think that im gonna baby sit her again next week and i just miss her so much cause she was my favorite cousin and she was like my baby sister and thanks 4 n e 1 who prayed 4 the family god bless each and every 1 of u.

bre

bre-anna <way2kool01@hotmail.com>
Lejunior, Ky U.S.A. - Tuesday, May 10, 2005 5:54 PM CDT
cheryl,tammy,jerry
just wanted to let you know that we are thinking of you guys often and would love to here from you guys.i hope that you guys stay strong for one another and be there to help the other one when they are down.i couldnt imagine how life has changed for you guys since evline became a sweet little angel.please if there anything that i can do please let me know hugs and kisses kathy and katilynn preston

kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Tuesday, May 10, 2005 11:27 AM CDT
tammy i hope you are doing fine me and bruce send you our love i will be to see you this summer okay love you and take care of yourself you and evline are always in my dreams and in our hearts for ever
kayla artressia <artressiak05@portsmouth.k12.oh.us>
portsmouth , ohio usa - Monday, April 25, 2005 1:01 PM CDT
What a beautiful letter. I know that Evline knows how much you love her and that you were doing what you could to give her the best life she could have. She knows all that is in your hearts now. I think of you often. Love, Anne
Anne Himes <arhimes@msn.com www.caringbridge.org/page/andrewh>
Boonsboro, Md USA - Thursday, April 14, 2005 2:32 PM CDT
Thinking of your family often. You are in my prayers. Take care of each other.
Michelle Wojtasiak
Cincinnati , OH - Thursday, April 14, 2005 2:21 PM CDT
tammy i am thinking of you and evline on easter day i love you both with all my heart and dont forget that i love ya sis hang in there for me
kayla artressia <artressiak05@portsmouth.k12.oh.us>
portsmouth, oh usa - Tuesday, March 29, 2005 8:48 AM CST
May our Angels always watch over us. Please know that you are in my prayers..Angel Mighty-Max's Granny
Judie Sweeney <judithsween@aol.com>
Chicago, IL USA - Monday, March 28, 2005 4:31 PM CST
We are thinking of you and hope you have a Happy Easter.

Love Tina,Padraic,Amy+Sophie

Tina <tina@melroseroad.co.uk>
London, UK - Thursday, March 24, 2005 1:48 AM CST
Cheryl,

I hadn't signed in for awhile. I am so sorry for your loss. I have always thougt about Evline alot. She reminded me of my Natasha. Tasha passed away in May 15, 2001. I just found out and I can't even begin to tell how bad I feel. May her memory always bring you and your family peace and joy. Have a peaceful Easter

Maria Tuckett <maria.tuckett@jetblue.com;caringbridge.org/ut/tuckett>
Murray, UT US - Monday, March 21, 2005 3:04 AM CST
Cheryl,Tammy,Jerry&Family
I just wanted to drop in and say that we are all still holding you and evline in our hearts and prayers. It has been a while since i stopped in and wrote anything so i told ronald that i was going to stop in here today and write a few lines so here i am. I wanted to tell you all that we love you all and we are thinking of you all the time. i had a poem to place in the guest book for you all but i dont think it sounds right its missing some words so ill wait and write it the next time i sign in. i came up with it the other day or part of it and started crying so i had to stop writting it. well we just wanted to say hi and we love you all.

Pauline & Ronald & family <ronaldslady25@yahoo.com>
evarts, kentucky united states - Sunday, March 13, 2005 2:30 PM CST
we miss you evline. Mommy and Aunt Kayla loves you. I wish you was here with us. Mommy and Daddy loves you so much and miss you. I can't being to tell you what all I really want to say that you already haven't heard when mommy prays and tells you and Jesus. Watch over us baby girl. LOVE ALWAYS

your mommy and Aunt Kayla

kayla artressia <artressiak05@portsmouth.k12.oh.us>
portsmouth, oh usa - Sunday, March 6, 2005 8:23 PM CST
Dear Cheryl & family,
Just a note to tell you you are always in our thoughts and prayers. We hope you find peace every day and we know Evline is smiling from above. God bless you always. With love,

Claudina (Caterina's mom) <claubonetti@aol.com>
Durham, NC - Tuesday, February 22, 2005 10:00 PM CST
cheryl & family,
I just thought i would drop in to say hi and to check on you all i hope that everyone is doing good and is okay all of our thoughts and prayers are with you each and everyone. We love you all and may god bless each and everyone of you all. You all are still in our hearts and thoughts love you all lots.

Pauline & Ronald & family <ronaldslady25@yahoo.com>
evarts, kentucky united states - Sunday, February 20, 2005 9:43 PM CST
hi cheryl
i just wanted to stop by and check in on you all.i miss getting to talk to you all.please if you ever need anything or just to talk please feel free to call me 606-298-0096.love to hear from you.love kathy and katilynn

kathy and katilynn <katilynnsmom@charter.net>
tomahawk, ky usa - Thursday, February 3, 2005 6:37 AM CST
its not the same here without you miss evline, i miss you so much you touched my heart and i will never forget you or your wonderfull family....take care of my angel nicholas for me and tell him he better behave no monkey bussnis and now you both can play together with no pain love and miss you so much evline....love becky and family....
becky bourassa <beckers@netzoola.com>
new milford, pa susquhanna - Saturday, January 15, 2005 10:19 PM CST
Dear Cheryl,
I am checking in. I am glad you got throught Christmas and with so much family to join you. You could have that new grandchild tested if you want. I am sure he is fine but if something had to be done, it is so much better to do it as early as possible. My Hannah is a carrier, so when she wants to have babies her husband will have to be checked. I hope each day gets easier. You are in my thoughts. Love, Anne

Anne Himes <arhimes@msn.com www.caringbridge.org/page/andrewh>
Boonsboro, md USA - Saturday, January 15, 2005 7:47 PM CST
Dear Cheryl, Jerry, Tammy and Family
Sorry i havent stopped in here in a while but i have been pailed up with homeowrk and it has been mersiably seriously, but if it was easy everyone would do it. i was just talking to ronald the other day about you all. i hope everyone is doing great and im gonna try to get up that way to check on you all well guess ill run for now each end everyone of you are in our thoughts and prayers

Pauline & Ronald & family <ronaldslady25@yahoo.com>
evarts, kentucky united states - Saturday, January 15, 2005 6:03 PM CST
Just wanted to let you guys know that I think about you often. I hope and pray that this year brings you hope, happiness and lots of blessings. Evline was a blessing to many and is missed so much. I miss being able to see that sweet smile when I walk by the room.
Crystal Murphy, 5200RN <kerropi_18@yahoo.com>
Durham, NC - Wednesday, January 12, 2005 10:59 PM CST
Thanks for the update. I worry about you all and keep hoping that some healing is going on. Hard, I know and how it happens is God sent.
Thinking of you all, Janelle (Alli's Nana)

Janelle Kunellis <shoe111550@yahoo.com>
- Wednesday, January 12, 2005 9:50 PM CST
dear cheryl,jerry,tammy& family
im sorry i havent signed in here in a while classes started back and the girls have been sick alot. we are still thinking of you and wish you nothing but happiness through this year if you ever wanna talk just give us a call. i set and visit here as often as i can to check up on u all but i guess ill go for now god bless you each and everyone you are all in our minds and our thoughts and prayers

Pauline & Ronald & family <ronaldslady25@yahoo.com>
evarts, kentucky united states - Monday, January 10, 2005 10:26 PM CST
I just found your site through someone elses. I'm sorry to read about Evline. Your family will be in my prayers.
Tina-www.caringbridge.org/md/lance <lneonkia@comcast.net>
- Wednesday, January 5, 2005 12:35 AM CST
Evline I think of you often. I would love to talk to one of you my # is 1646-5237474. Please call me. God bless
Angela/Ashley <angela_rosario35@hotmail.com>
- Tuesday, January 4, 2005 6:15 PM CST
Hey just wanted to let you all know that we love you all very much and we're always here for you all. No matter what. We love and miss her so much. I know for me it doesn't get any easier. I can only imagine how you all feel. I can hardly read these entries still. It breaks my heart. Well I just wanted to let you all know I stopped in. And to let you know she will always live in our hearts. Kisses and hugs to you sweet angel.
Love Aunt Renae, Uncle Rat & Cousin Bre

Renae Jones <boltman@mikrotec.com>
Lejunior, Ky U.S.A. - Tuesday, January 4, 2005 12:33 AM CST
A safe and peaceful New Year.

Janelle (Alli's Nana)

Janelle Kunellis <shoe111550@yahoo.com>
- Saturday, January 1, 2005 9:32 PM CST
DEAR CHERYL
I HOPE THE NEW YEAR BRINGS A BETTER YEAR FOR FAMILY AND I JUST WANT YOU TO KNOW THAT I AM HERE IF YOU NEED SOMEONE TO TALK TO WE LOVE YOU AND THANK OF YOU VERY OFTEN HAPPY NEW YEAR LOVE KATHY AND KATILYNN

KATHY AND KATILYNN <katilynnmom@yahoo.com>
- Friday, December 31, 2004 10:11 PM CST
Dear Cheryl,
I continue to think of you and Evline and Tammy on a daily basis. Best wishes for a peaceful and healthy 05 to you and yours.
Much love,
Mati Buccini
(Caterina's aunt)

mati bonetti buccini <matibonetti@hotmail.com>
ny, ny - Wednesday, December 29, 2004 8:30 PM CST
Dear Cheryl,
You are all in our thoughts and prayers. May God bless you with Health and much Happiness in 2005. We hope little Evline continues to shine on all of us from above. We surely miss her. Our love to you and the entire family...

Claudina (Caterina's mom) <claubonetti@aol.com>
Durham, NC - Wednesday, December 29, 2004 10:25 AM CST
I would like to wish you a Merry christmas and a New Year that can help you all recover some what of all the things you have all had to face this year. God bless!!! Cheryl I have not been able to see the pic. of the girls together for some reason. I would like to talk to you my # is 1646-523-7474. Call me when you get a chance. Take care. Still missing angel Evline.
angela/ashley <angela_rosario35@hotmail.com>
- Monday, December 27, 2004 12:11 AM CST
Wishing you all a peaceful Christmas and a blessed New Year.

Love and Hugs,

Tami Slawson ( www.caringbridge.com/ca/slawson <tlslawson@aol.com>
- Friday, December 24, 2004 8:50 AM CST
I am thinking of you all today and I am hoping you will find some joy in tomorrow. Loving you. Anne
Anne Himes <arhimes@msn.com www.caringbridge.org/page/andrewh>
Boonsboro, md USA - Friday, December 24, 2004 7:04 AM CST
Thinking and praying for you and your family at this Holiday time! We will go without our little Kaitybug as well this Christmas but we know they are in Gods hands and are having a wonderful Christmas Celebration in Heaven!
Kaitybug's Aunt Rhonda( from the MPS forum) <rjapril@insightbb.com>
Jeffersonville, in - Thursday, December 23, 2004 7:43 PM CST
Wishing you a peaceful Christmas and New Year.
Love Tina,Padraic,Amy+Sophie

Tina <tina@melroseroad.co.uk>
London, UK - Thursday, December 23, 2004 9:12 AM CST
Dear Cheryl,
Just a note to let you know you are always in our thoughts and prayers. This is a difficult Holiday season, to say the least... we pray that your faith and love from your family will carry you through the days ahead. With love always,

Claudina (Caterina's mom) <claubonetti@aol.com>
Durham, NC - Tuesday, December 21, 2004 12:00 AM CST
The poem is very moving, a lovely tribute. Your are in our thoughts and prayers often. I just wish I know the answers, it just does not seem right.

Love Tina,Padraic,Amy+Sophie

Tina <tina@melroseroad.co.uk>
London, UK - Saturday, December 18, 2004 5:07 PM CST
Thanks Cheryl for the update. You are so right about time...it is the hardest to give. Our words of comfort will continue to come because all of you do not stand alone. Hold on to one another knowing that our strength is here for you...our prayers continue.

Warm thoughts, Janelle (Alli's Nana)

Janelle Kunellis <shoe111550@yahoo.com>
- Saturday, December 18, 2004 0:37 AM CST
Dear Cheryl,
I think of you often as I walk the track in the morning. I will add prayers for Tammy and Jerry. You are right, everyone grieves in a different way and sometimes it is hard to mesh those ways. I am so sorry that Evline is gone. It is hard for me sometimes to believe that such things can happen. I know how much harder it must be for you. Please know that you are always in my heart. Love, Anne

Anne Himes <arhimes@msn.com www.caringbridge.org/page/andrewh>
Boonsboro, md USA - Thursday, December 16, 2004 6:59 PM CST
hey cheryl and family hope you all are doing fine i know i haven't got to sign in here in a few days but i have been busy with the girls and with class i haven't hardly had time to do anything lately by the time i get home im so tired i try to catch a nap or two but then i wake up and its dark by then. ill have dad and mom to pray for you all and to give in prayer request at church for you all. little cheryl and tiffany says hi and sends their love to you all. if you all need anything feel free to call us at anytime. you all have been really great friends to us
Pauline & Ronald & family <ronaldslady25@yahoo.com>
evarts, kentucky united states - Tuesday, December 14, 2004 8:03 PM CST
hi cheryl
still think of you all i hope that every thing is ok with you all please let me know if you need anything love you all kathy and katilynn

kathy and katilynn <katilynnsmom@yahoo.com>
- Monday, December 13, 2004 1:36 PM CST
Still thinking of you all.

Warm thoughts, Janelle (Alli's Nana)

Janelle Kunellis <shoe111550@yahoo.com>
- Sunday, December 12, 2004 10:12 PM CST
Thinking of you all especially today.

You are in our prayers.

Katie, Hayley and Hunter <dugan2b@yahoo.com>
Franklin, MA - Sunday, December 12, 2004 12:13 AM CST
Just a quick and simple note to let you know that I am thinking about you all and keeping you close in thought and prayer.
Lisa Post <LMPOST@cox.net>
- Saturday, December 11, 2004 9:35 AM CST
Hey Cheryl, & Family,

Wonted to stop by again to say hey, and to hope your all doing some better, and my prayers are still with you and the family, and also wonted to say God is all ways watching over you and your whole Family

Love Rhonda, & H.l And Kenneth, Farley

Kenneth <simfreakman@alltel.net>
evarts, ky 40828 - Thursday, December 9, 2004 9:16 AM CST
hey sis sorry i havent signed in here in a while but i have been busy with work i hope that all of you guys are doing well and i love you a lot hope you all have a great christmas
john&roberta&family <MUNK606@YAHOO.COM>
evarts, ky usA - Wednesday, December 8, 2004 10:22 AM CST
hey sorry ive not signed in for a long time, wishing your whole family warm wishes for the holidays to come and many more we love you all we are still praying for you and your family
pauline & ronald &family <ronaldslady25@yahoo.com>
evarts, kentucky united states - Wednesday, December 8, 2004 6:02 AM CST
Sending warm thoughts your way.

Janelle (Alli's Nana)

Janelle Kunellis <shoe111550@yahoo.com>
- Monday, December 6, 2004 6:48 PM CST
I am so sorry for your lost i cant find the right words to say but i know that your little angel is doing good now no more suffering and she is happy my papaw always said that when you lost a loved one don't cry and i know sometimes that is hard to do because this is a person that you love deep down in your hearts but she is happy and probably playing and i know that she is probably looking down on you all and watching over you. i read what you wrote and it tore my heart out knowing that she was young but i know that it is gonna take some time for all the hurt and pain to resolve. I know that the lord up above is taking care of her now and keeping her safe out of harms way it hurt alot of people knowing that she is gone but god called for his little guardian angel and he decided that she was the perfect one. we are all still praying for you all and we love you all.
pauline & ronald <ronaldslady25@yahoo.com>
evarts, ky usa - Thursday, December 2, 2004 2:55 PM CST
Dropping by to let you know you are in my thoughts and prayers. I think of Evline often and I’m so sorry that her parents could not be with her when she went to heaven. That must have been very difficult for them. I truly believe things happen for a reason and maybe Evline just wanted her sweet Grandma there and no one else.


Jessica
Mom to Angel Kaity

Jessica Wellman <jessicalw@earthlink.net>
Crandall, IN USA - Tuesday, November 30, 2004 10:42 AM CST
I hope your family gathering this Thankagiving was strengthing for you all. My thoughts and prayers continue to head your way.

Janelle (Alli's Nana)

Janelle Kunellis <shoe111550@yahoo.com>
- Monday, November 29, 2004 3:42 AM CST
May God's presence fill you with a sense of peace in this most difficult time. I will remember you in my prayers.


Lisa <loumicsmom@comcast.net>
Dallas, TX USA - Saturday, November 27, 2004 9:40 PM CST
Thinking and praying for you during these difficult times. May God fill you with strength in these moments.
With much love,
Mati Buccini
(Caterina's aunt)

mati bonetti buccini <matibonetti@hotmail.com>
- Thursday, November 25, 2004 2:18 PM CST
Hey Cheryl, Jeff, Jerry and Tammy
I am here working on Thanksgiving and just read your update. I know the holidays are going to be tough, but know that I am thinking and praying for you all. Evline is missed so much!!! Please comfort each other during this time and know that you tried your best and she was well taken care of.
Thinking of you

Bethany Kistler
Elon, NC USA - Thursday, November 25, 2004 7:00 AM CST
cheryl
i am so glad to see you posted to let us know how you and the family are doing.i am so sorry that evline had to leave you it breaks my heart and i think of you all every day.please just know that evline isnt in any more pain and is sitting in heaven with jesus.i am so sorry that i didnt get to meet her and hold her just once.we are going to miss her so much.we love you guys and if there is anything we can do just let me know and if you just want to talk i am here for you.i well be back to check on you all soon with love and prayers kathy and katilynn

kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Wednesday, November 24, 2004 9:47 PM CST
I have been checking on your website every so often and it just breaks my heart to hear that your Evline has earned her Angel wings and gone to heaven!
Your family is in our prayers during this difficult time!

Trisha Jensen <trishajensen@hotmail.com>
Grapeland, Tx - Wednesday, November 24, 2004 9:28 AM CST
Hi i'm stephanie, your a little princess and i am here to say hello. You are precious. Well hello little one hello.
latisha stewart
evarts, ky harlen - Tuesday, November 23, 2004 11:17 AM CST
DEAR CHERYL,
MY HEART JUST ACHES FOR YOU AND YOUR FAMILY, SEEMS JUST YESTERDAY THAT I TOO LOST MY GRANDSON NICHOLAS. THEY SAY WTIH TIME IT GETS BETTER BUT I SEE A ROSE AND KNOW HE IS THERE, I SMELL THE GENTLE WINTER BREEZE AND KNOW HE IS THERE, I LOOK UP AT THE STARS AT NIGHT AND KNOW HE IS THERE, I CLOSE MY EYES AND SEE HIM THERE, AND THOUGH I KNOW HE IS OK AND IN A FAR BETTER PLACE THAN THAT OF WHAT HE HAD HERE GOD KNOWS HOW I MISS HIM EVERYDAY HE WAS MY SWEETYPEA AND I WOULD STILL GIVE ANYTHING JUST TO HOLD HIM ONE NO FOREVER AGAIN. YES YOU DO GO ON EVEN THE DAYS YOU DON'T WANT TO BUT YOU DO LIKE THE SONG AMY GRANT SINGS " THE RIVER KEEPS ON ROLLING" SO UNTIL WE MEET AGAIN WE MUST GO ON BUT KNOW THAT LITTLE EVLINE TOUCHED SO MANY HEARTS MY FAMILY IS FOREVER YOURS FOR THE FRIENDSHIP AND KINDNESS THAT YOU SHOWED US ALL ON OUR VISITS AND TO OUR DAUGHTER BECKY I AM NOT MUCH WITH WORDS TO PEOPLE BUT KNOW I UNDERSTAND AND AM HERE IF YA NEED ME EVLINE WAS AND ANGEL BUT SO IS HER GRAMA, I CAN CLOSE MY EYES AND SEE HER WITH MY NICHOLAS RUNNING AND PLAYING A LAUGHING ALL THINGS THAT CAME WITH GREAT PAIN HERE HAPPY ARE THEY FOR THEY STILL HAVE OUR HEARTS AND EACH OTHER THERE WITH JESUS. THANK YOU SO MUCH FOR ALL YOU HAVE DONE, EVEN IN YOUR OWN SORROW YOU STILL THOUGHT OF OTHERS AND YOUR REWARD WILL BE SO GREAT... AND EVLINE IS BRAGGEN UP IN HEAVEN """" LOOK EVERYONE THAT'S MY GRAMA!""""""" I'M HERE IF YA NEED LISA BECKY'S MOM

LISA WOJTKOWSKI <WOJTK@MSN.COM>
NEW MILFORD , PA SUSQ - Monday, November 22, 2004 4:57 PM CST
cheryl and tammy and jerry
i just wanted to come in and check on you all.pleaselet me know if there is anything that i can do and i wish i could been there for you all you are in my prayers and we love you guys and will miss evline very much so.please feel free to call me 606-298-0096 if you need to talk.

kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Sunday, November 21, 2004 2:41 PM CST
I am so very sorry for your loss. My thoughts and prayers are with your family. May the Lord grant you strength and courage during this difficult time.
Mieke Embry (mom to Luke, MPS-IIIA) <embry10198@wmconnect.com OR www.caringbridge.com/al/lukeembry>
Moody, AL USA - Friday, November 19, 2004 10:46 PM CST
Evline it is so hard to believe that you no longer are her with us. It was like yesterday when I finally got to meet you and actually hold atleast for a second. I will forever treasure that moment. Baby I know that you are in a better place because you are now living eternal life and free of all disease. My desires and wishes for you were totally the opposit but I guess that God only allows what he thinks is going to be best. All we can do is pray for understanding and acceptance to what is to come. Ashley will atleast get to have the picture of you two together and know that she too got to meet you like I did. You are now angel just ask God to help the rest of the children defeat this terrible syndrome because without his help we can not do this. May God bless you. We will miss you baby.

I just wanted to write this message to Angel Evline.
To the family: She was a true fighter but don't get disappointed if things didn't turn out how we wanted them to only God knows his plan for us all.

Angela/Ashley <angela_rosario35@hotmail.com>
- Friday, November 19, 2004 4:26 PM CST
This time is difficult. I send you all my support.

Janelle (Alli's Nana)

Janelle Kunellis <shoe111550@yahoo.com>
- Friday, November 19, 2004 4:12 PM CST
Keeping you and your family in our thoughts and prayers. I’m sure this week has been very difficult. Please know that we are all here for you if you need us.
Jessica
MPS Forum Dot Com
Mom to Angel Kaitlynn

Jessica Wellman <jessicalw@earthlink.net>
Crandall, IN USA - Friday, November 19, 2004 12:13 AM CST
To All: I am still thinking of you all and just wanted you to know that I am sending you my prayers.


Love, Janelle

Janelle Kunellis <shoe111550@yahoo.com>
- Thursday, November 18, 2004 4:13 PM CST
You know, Rat and I were talking yesterday and he said "you know what I think she's doing right now, I think she's pointing at all of us and laughing." And I thought yeah she's laughing, because she can do that now. She's laughing and playing and nothing can stop her from doing anything she wants. And I'm sure she has many friends there. And family. The pain and emptiness I feel is so much. I can only imagine how you all feel. I am so sorry. I wish there was something I could say or do. But there isn't. So I will send all our love to you all. Please if you all need anything or just need to talk please call or let us know. We are always here. And to our sweet precious angel our love for you is like numbers, it never ends. You're always in our hearts. Hugs and kisses to sweet baby.

Love Great Aunt Renae, Great Uncle Rat & Cousin Bre

Renae Jones <boltman@mikrotec.com>
Lejunior, Ky U.S.A. - Thursday, November 18, 2004 8:30 AM CST
Dear Cheryl,
I am sorry that i couldn't be there for you in your time of need. But not to long ago i lost my cousin back 3 months ago and had to go to that and i didnt wanna remeber him that way. But i know that today is gonna be a really hard day for you and the family memebers of dearst evline she was a beautiful daughter and granddaughter, I am so sorry that i couldnt be there for you, I was gonna come up to the church last night but i was in up over my head in homework and the girls was awake so i couldnt get out last night. But i will try to get up there today sometime if not tomorrow. Best wishes for you and the family form our family.
we love you all and you all will be in our hearts and prayers.
love
pauline ronald cheryl tiffany clara

pauline & ronald & cheryl & tiffany & clara <ronaldslady25@yahoo.com>
evarts, ky usa - Wednesday, November 17, 2004 8:40 AM CST
Our hearts and prayers are with you. May God bless you with strength and comfort during this very difficult time.
The Howells (www.caringbridge.com/nc/meredith)
Rocky Mount, NC USA - Tuesday, November 16, 2004 10:10 PM CST
My heart is breaking for you. I am so sorry for your loss and will pray for your family.
http://www.geocities.com/calebwaddell

Kelly Waddell <kellywaddell@hotmail.com>
Southaven, MS USA - Tuesday, November 16, 2004 3:53 PM CST
Cheryl & Jeff & Family

My prayers are with your family, an friend's , prayers what keeps us going thrue the good times and the bad times, God will be there to see you thrue every hard time, he's still beside you and your family , Rember God still loves you, and still cares for your family, thoe we may not understand why things turn out the way the do , we know God has a plan, Nothing will ever be able to take this love from your heart, nothing will ever be able to take this place , God has Your little angel beside him now hes takeing care of her watching her both day and night, rember we all love you all in Gods Eyes Love Henry & Rhondas Family.

Henry & Rhondas Family <once_bitten_19male@yahoo.com>
evarts, ky usa - Tuesday, November 16, 2004 1:31 PM CST
My heart and prayers are with you and your family.
Brandy Scott (www.caringbridge.org/nc/connorscott) <bscott108@nc.rr.com>
Raleigh, NC 27604 - Tuesday, November 16, 2004 7:57 AM CST
So sorry to read that sweet little sweet Evline passed and my prayers and thoughts are with your entire family.
Maribel Neri <maribel_neri@hotmail.com>
Caracas, Venezuela - Tuesday, November 16, 2004 5:31 AM CST
My deepest sympathies on the loss of your precious daughter. There is no greater pain. I am so sorry.


Suzanne Morley <RememberingHope@hotmail.com>
MI - Monday, November 15, 2004 11:31 PM CST
I am thinking of you tenderly and pray you feel God's arms wrapped around you. God bless you daily...kle
Karen, Mark, Lindsey (MPS-IIIa) and Hannah Efird <efirds4MPS@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle, NC USA - Monday, November 15, 2004 8:57 PM CST
I am very sorry for your tremendous loss.
Maria <mariaw19@hotmail.com>
NJ - Monday, November 15, 2004 5:54 PM CST
Hello. My name is Brittany. I heard of this page from my cousin, Merdith. I am so sorry for your loss. I hope you stay well, and best wishes. Even though I don't know you, I still love you out of the kindness of my heart.
Brittany Howell <britt39571@yahoo.com>
Pass Christian, MS. USA - Monday, November 15, 2004 5:39 PM CST
Dear Tammy, Jerry, Cheryl, and family,
I am so sorry to hear about your loss. Prayers and hugs to you all. Please do give me a call if there is anything I can offer to help a bit during these hard times. Your little angel touched many lives and will be remembered and prayed for by many.
Take care of each other-
-michelle

Michelle Wojtasiak Coughlin <michelle.coughlin@cchmc.org>
Cincinnati, OH - Monday, November 15, 2004 3:41 PM CST
I am so sorry for your loss. I have been keeping up with the baby through Folden Lee's website. I will continue to pray for you and your family.
Joni Penny <pjp03@doc.state.nc.us>
Pine Level, NC USA - Monday, November 15, 2004 2:52 PM CST
I heard of your family through sweet Reese's Caringbridge page. I am so very sorry for the loss of your sweet Evline. There is no harder burden for a parent to bear than the loss of their child. Wishing you peace and comfort over the difficult days ahead. God bless.
Robin Boger <Robin.Boger@rbc.com>
Lewisville, NC - Monday, November 15, 2004 2:45 PM CST
Dear Cheryl & Family,
Sorry to hear about the loss of your granddaughter and Jerry & Tammy's daughter. We all will miss her greatly. We all love you and We will always be there.

John & Roberta & Family <munk606@yahoo.com>
Evarts, ky usa - Monday, November 15, 2004 12:23 AM CST
Dear Cheryl and family
I am so sorry for the loss of your granddaughter and daughter. In your time of sorrow we all will keep you each and everyone in our hearts and prayers. We love you all and we also loved leann. We will be praying for you all.

pauline & ronald holman <ronaldslady25@yahoo.com >
evarts, ky 40828 - Monday, November 15, 2004 12:18 AM CST
Thinking of you all. Sorry for what has happened. All I can say at this point is that Only GOD knows why he has allowed our children to be born with this disease. I don't have the words right now to express all I would like to say. I feel very happy that I atleast got to meet her and have her and Ashley take pictures with each other. We will miss you Evline. I have tried calling the RMhouse but I guess I missed you.
Angela/Ashley <angela_rosario35@hotmail.com>
- Monday, November 15, 2004 9:32 AM CST
I'm at a loss.... To be honest, I tire of reading these stories.. too many children losing their lives. Too many hurler babies going home too soon. I'm so sorry for the loss of your precious little Evline. We all have to struggle to find comfort in their pain-free, hurler-free world now because OUR pain is so great. It's going to be hard for a long time, but keep your faith and look for signs... ^^EVLINE^^ will let you know she's OK and that she's always with you. I can imagine my little ^^REESE^^ has already shown her the ropes in Heaven and has given mini-lessons on ways to bring you joy. God bless your family.. I will remember you all in my prayers. Sending X's and O's from NC.. hope they get there soon...
Love, Shawn, Taylor, & ^^REESE^^ Coble (www.runforreese.com) <selboc@aol.com>
Winston-Salem, NC - Monday, November 15, 2004 9:07 AM CST
Dearest Family, God Bless You in the name of our Lord. We are so sorry, and will continue to pray for you daily. We loved LeAnn, too. We also love you all. Donna and Raymond
Donna and Raymond Cox <donnak.cox@kctcs.edu>
Wallins Creek, KY USA - Monday, November 15, 2004 7:54 AM CST
I have been to check on Evline several times since learning of her site and was shocked to read Friday's update. I am so truly sorry for your loss. God Bless you all and give you strength.

Rest in peace sweet Evline

Cathy Peters <www.caringbridge.org/canada/isobel Jacon81@hotmail.com>
- Sunday, November 14, 2004 8:30 PM CST
We are so very sorry for your loss. There are really no words to describe the sadness we feel for you. You continue to be in our prayers. Evline is free from pain and is truly one of our angels.

Love ~ The Irish's

Melanie, Steve, Jacob (www.caringbridge.org/wa/jacobirish), & Matthew <mairish@hotmail.com>
Marysville, WA USA - Sunday, November 14, 2004 2:35 PM CST
to evline
we love you and will miss you.you are so beautiful and god has a special angel by his side.we will never forget you.love you forever kathy and katilynn preston

kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Sunday, November 14, 2004 2:14 PM CST
Cheryl, Tammy, Jerry, and family:
I am so very saddened to hear the news. My heart is truly breaking for you. Evline was a beautiful, precious gift from the Lord. I feel very blessed to have been her nurse and gotten to know such a sweet little girl. May God give you peace and comfort through this most difficult time. I will never forget your angel or your family. You are in my prayers. God Bless You.

Nurse Megan
Durham, NC - Sunday, November 14, 2004 1:48 PM CST
I have never meet you or Evline,I'm from the MPS forum.I just wanted to let you and your family know I'm so sorry for the loss of your very beautiful daughter.God Bless you All!
Sheryl Hall <212224@msn.com>
Westville, NJ usa - Sunday, November 14, 2004 10:43 AM CST
We are so terribly sorry for your loss. Evline is another one of our << angels >> now. God will watch over her and all others. Please know you are all in our prayers and in our hearts always.
Claudina (Caterina's mom) <claubonetti@aol.com>
Durham, NC - Sunday, November 14, 2004 9:35 AM CST
cheryl, i'm so sorry for your loss, i guess i cant really say anything to help ease your pain. all i want to say is when my granny died it hurt me deeply and i thought the world had ended but then i started thinking . i thought to my self i cant change the matter but now i got to work even harder if i want to see her again. so now i've been saved for 6months and still trying. because i always think to my self she's waiting for me and i'm waiting to see her so the only way to see her is to make it to heavan. i know in times like this it seems as if nothing can ease the pain except for god. if it wasnt for him i would have lost it. but he moved and i still miss her dearly but i know now she's in peace, she's happy no pain no sarrow, no more tears, and knowing she's with the master leaves me with that peace at mind. it took me awhile to get back to some of my same actions and not all have returned yet but but by the grace of god he gives me that peace of mind. i know i'm just 15years old but if you ever need a shoulder to cry on or need any thing or any help i want you to know i'm always here. i also want you to know that my prayers are with you and so is many of others prayers to. i cant count the times my mom has gave in prayer requests for evline, every time we would go to church she would always say remeber cheryl's grand baby it really needs the lord to move and to heal it. she would also give in a prayer request for you. well i'm gonna leave you with this simple prayer: " Lord we come to you today to ask you to help cheryl and her family lord , we know that you can reach down and give them that peace of mind and strenghten them lord we ask you today to help them with all our love and care we ask you lord to come by, amen" we love you cheryl.

love arlena and family

arlena <arlena15_07@hotmail.com>
evarts, ky untiedstates - Saturday, November 13, 2004 11:43 PM CST
Cheryl,
I am heartbroken to be writing this post, I was praying so hard that Evline would not leave us so soon. We were all praying to God for healing for Evline, and He provided the truest form of healing, life everlasting in a perfect place, with our Father. There is something very special about Evline, and I know she has touched so many people in her short time here on earth. She will be greatly missed. You are a very special grandmother and mother. My prayers are now with you, as I know Evline is in the loving arms of Jesus, free from pain and worry, I pray that you and Evline's parents are able to get through this heartbreaking loss. I pray for your comfort and for a peace in knowing that you will one day be reunited with you precious little Evline.
With Much Love,

Kim (momtoty) Downham http://www3.caringbridge.org/tx/tywalker/ <jdownham@earthlink.net>
Houston, TX - Saturday, November 13, 2004 10:27 PM CST
We are very sorry for your loss, we pray that God will give your family the strength that you need to get through this. May God Bless You
Barry and Crystal Whitaker (www.caringbridge.org/nc/elijah) <alexusandelijah@bellsouth.net>
Liberty, NC - Saturday, November 13, 2004 9:48 PM CST
im so sorry about evline jest got home from church and call kathy and ask her how katilynn was doing she told me about evline i pray god b with you all and easy your pain.i try and check on evline every day but katilynn has been in the hosp i been so worry about her i have not been on her web sit in two days.im so sorry.god bless you all .katilynn grandmaw
frances sweeney <francesmccoy2001@yahoo.com>
lovely, ky martin - Saturday, November 13, 2004 9:31 PM CST
I am so sorry for the loss of your sweet ^^Evline^^. May you find some peace knowing that she is no longer in pain and is free of MPS. You are in our prayers.
Love,
Jennifer Restemayer

Jennifer Restemayer <jennmarie@bis.midco.net -or- www.caringbridge.org/nd/allison>
Bismarck, ND USA - Saturday, November 13, 2004 9:10 PM CST
Hi.
I am sorry that I could'nt be there to see her one last time befor GOD took her. I know its hard but just remember she's with GOD.I m truly sorry. It isgoing to feel weird knowing that she's not going to be there when u guys come home. hope to see you guys soon. Evline we all miss u and u will never be forgotten we all love you.!!!!!

aunt carlena and uncle brandon <carlenalawson920@hotmail.co>
wallins, ky usa - Saturday, November 13, 2004 4:30 PM CST
cheryl,tammy and jerry
i dont know what to say i just got on here to see how evline was i hadnt been on all week katilynn had been in the hospital and just got out today.i am so sorry i dont know what to say i just cant belive it.im am sitting here with tears in my eyes and a heavy heart.i am so sorry for your loss i really am.i wanted to meet you all so bad and just to give evline a big hug.we will keep you in our prayers and in our hearts.i hate this horrible diease and our kids should never have to go through this no ones kids should have to go through this.just remember we love you guys so much and if there is anything that we can do please just let me know i mean that.love kathy and katilynn.here is my phone number when ever you feel like calling or if you need anything 606-298-0096

kathy and katilynn preston <katiynnsmom@yahoo.com>
tomahawk, ky usa - Saturday, November 13, 2004 4:24 PM CST
We are deeply sorry for your loss.
Margaret, Mike, and Grace Ciacciarelli <mmchick@comcast.net www.Mighty-Max.com>
- Saturday, November 13, 2004 4:12 PM CST
Dear Cheryl,
I am so sorry. I was hoping so much that Evline was on the road to recovery and that soon you would be so happy. I am so blessed to have gotten to see Evline and lay my hands on her and have her squeeze my hand. I will never forget that. Please feel free to call me any time you want. I am so sorry for your whole family. Please know that you are in my prayers. I am so sorry. Love, Anne

Anne Himes <arhimes@msn.com>
Boonsboro, md USA - Saturday, November 13, 2004 2:38 PM CST
I am so terribly heartbroken to hear of sweet Eviline's passing but know whole heartedly she is now without pain and flying and playing among the many beautiful MPS and ML angels who have welcomed her home. May GOD comfort your broken hearts and help each of you get through this horrible sadness. I will pray for peace to come to each of you.
Sincerely, Brenda Haggett, ML mom <jhrufus@aol.com>
Syracuse, NY USA - Saturday, November 13, 2004 1:06 PM CST
God Bless you sweet little Evline! My thoughts and prayers are with all of you during this most difficult time.
Love,
Kris & Kraiggy
Kraig's Journal

Kris Klenke <kris@mpssociety.org ** www.caringbridge.org/il/kraig/ **>
Worden, IL - Saturday, November 13, 2004 11:50 AM CST
I am sorry to hear of your family's heartbreak. Sweet Angel Evline is now free of Disease and smiling in God's Garden.
Terri Klein <kleinrealtor@aol.com>
Whitmore Lake, MI USA - Saturday, November 13, 2004 10:15 AM CST
I'm so sorry to hear of your loss. We will be praying for youall for the coming days.
Art Holbert <Artholb@aol.com>
Morgantown, WV - Saturday, November 13, 2004 9:56 AM CST
I am so sorry for your loss. Angel Kaity absolutely loved babies and I’m sure she is now helping to take care of dear sweet Evline. You are in my thoughts and prayers and if you ever need to talk, please feel free to email me.
Jessica
Angel Kaity’s Caring Bridge Site

Jessica Wellman <jessicalw@earthlink.net>
Crandall, IN USA - Saturday, November 13, 2004 8:49 AM CST
I am sorry for the loss of your precious little girl. She was angel even before she took her last breath. May God be with you all and give you strength during the difficult times ahead. Love Always.
Trisha Athy caringbridge.org/il/aaronathy <aaronsmom1027@sbcglobal.net>
Belleville, IL USA - Saturday, November 13, 2004 8:21 AM CST
I am so sorry. I was so hoping and praying that Evline would fight through her obstacles. She and the Lord had other plans and I'm sure she is free, comfortable, and very thankful for her loving family. You will all be in my prayers. God Bless.
Lisa Post <LMPOST@cox.net>
- Saturday, November 13, 2004 7:45 AM CST
There are no words that can comfort and ease the pain of a child's death. I send you blessings for your wonderful Evline. I feel your pain.

Mouring with you all, Janelle (Alli's Nana)

Janelle Kunellis <shoe111550@yahoo.com>
- Saturday, November 13, 2004 2:29 AM CST
We are so very sorry. Evline fought so hard and showed such strengh. We are praying for you.
Love Tina,Padraic,Amy+Sophie

Tina <tina@melroseroad.co.uk>
London, UK - Saturday, November 13, 2004 1:23 AM CST
Im so sorry to hear of your loss but your baby girl has now earned her angel wings. I know its hard but just know that she is no longer in pain.
http://www.caringbridge.org/in/morgan_fogakoldyke
atrt brain tumor

Stephanie <artiestephaniezollman@yahoo.com>
Lanesville, In USA - Friday, November 12, 2004 11:45 PM CST
So sorry to hear of your loss. These hurler kids are as special as they come. I have signed to many guestbooks, including my aunt and unlces that their angel is no longer suffering. I pray that you and your family may take comfort in that. I will pray for peace and strength in the difficult days to come.
Angel Bella's cousin
., - Friday, November 12, 2004 10:43 PM CST
Hey cheryl,
Yeah its tough to get through but we can make it I remember seeing ur face and Jerry's and every one else. It was painful but just think shes with mammaw and pap,and uncle Jack. Dont worry im sure Evline is feeling better now. And when ever u cry think...Would that be what evline wants..Is 2 see u cry? Well I know its hard but evline is always in our hearts. Well I love u guys and we miss u.

Love,
Bre

Breanna <way2kool01@hotmail.com>
evarts, ky usa - Friday, November 12, 2004 8:42 PM CST
We will always love you angel and youwill never be gorgotten. I really wished that you would of pulled through it so that you could come home to us and soon meet your new cousin but I guess that GOD had different plans for you. You will always be in our hearts baby girl.

LOVE YOUR UNCLE BRANDON AND YOUR AUNT CARLENA

Brandon Dean <carlenalawson920@hotmail.com>
Evarts , KY USA - Friday, November 12, 2004 8:38 PM CST
Keep fighting sweet one.

Love Tina,Padraic,Amy+Sophie

Tina <tina@melroseroad.co.uk / www.melroseroad.co.uk>
London, UK - Thursday, November 11, 2004 1:07 AM CST
Still praying. Hoping no news is good news.
Lisa Post <LMPOST@cox.net>
- Wednesday, November 10, 2004 3:29 PM CST
Just want you to know that positive thoughts are coming your way tonight!!

Hugs, Janelle (alli's Nana)

Janelle Kunellis <shoe111550@yahoo.com>
- Tuesday, November 9, 2004 6:29 PM CST
We all praying.

Love Tina,Padraic,Amy+Sophie

Tina <tina@melroseroad.co.uk>
London, UK - Tuesday, November 9, 2004 1:18 AM CST
Prayers are still coming your way tonight Evline. Hold on and build your strength!

Hugs, Janelle (Alli's Nana)

Janelle Kunellis <shoe111550@yahoo.com>
- Monday, November 8, 2004 7:34 PM CST
Keep fighting Evline! You are in our thoughts and prayers!
Margaret, Mike, and Grace Ciacciarelli <mmchick@comcast.net www.Mighty-Max.com>
- Sunday, November 7, 2004 8:40 PM CST
I am sending you my prayers tonight. Sweet Evline.

Hugs and more hugs, Janelle (Alli's Nana)

Janelle Kunellis <shoe111550@yahoo.com>
- Sunday, November 7, 2004 7:20 PM CST
Continuing to pray for Evline!
Lisa Post <LMPOST@cox.net>
- Sunday, November 7, 2004 11:22 AM CST
i been praying for you evline god will bring you throught this . im katilynn grandmam you all have been a help to kathy and katilynn wish thay had got to meet you all maybe when evline get to come home we all can meet . we dont live that fair from you all . god bless you all. kathy mom frances
frances sweeney <francesmccoy2001@yahoo.com>
lovely, ky martin county - Sunday, November 7, 2004 8:43 AM CST
I am so pleased things things are better then expected. Keep fighting sweetie we are all praying for you.
Love Tina,Padraic,Amy+Sophie

Tina <tina@melroseroad.co.uk>
London, UK - Saturday, November 6, 2004 8:03 AM CST
Dear Cheryl,
Just checking in to see how things are going. I am really hoping to come over to see you. Caterina has been in clinic every day because her platelets have been falling drastically. I hope tomorrow I can come by. Mom tried to come see you yesterday but she did not find you. We are all happy to hear things are better on your end. Our prayers and thoughts are always with you. Stay strong! Evline will surely pull through this big bump. We send you all our positive energy and much love,

Claudina (Caterina's mom) <claubonetti@aol.com>
Durham, NC - Friday, November 5, 2004 8:25 PM CST
I'm thrilled to hear it wasn't as bad as expected.. and the little Evline keeps fighting. She has alot of spirit and she's EXTREMELY lucky to have such a wonderful Grandmother. I remember the oscillator, the vent, the fluid, the BP problems, and everything you talked about like it was yesterday. I pray Evline's fate is to heal and recover through HIS plan here on earth. I'm also glad you have other Hurler families there supporting you. May God wrap his healing hands around that sweet child and also YOU... We love you much!!
Shawn & ^^REESE^^ Coble <selboc@aol.com>
Winston-Salem, NC - Friday, November 5, 2004 7:13 AM CST
Miss Evline....I send you my prayers and hopes.

Hugs, Janelle (Alli's Nana)

Janelle Kunellis <shoe111550@yahoo.com>
- Thursday, November 4, 2004 6:39 PM CST
Dear Cheryl,
I am so sorry that I didn't get back the second day. I thought about you and Evline all day but we were running everywhere and didn't get to see Dr. K until late and the kids were just totally burned out and we had to get them back to the room. I have been trying to write you a private letter but my computer is not working right again and will only let me check my web pages (thank goodness for that much at least) You are constantly in my thoughts and you are welcome to call me any time or if you want to leave me a number I can reach you at on my web page, I would be glad to call you. My number is 301-432-5745. Again, I am so sorry that I didn't get back. I really felt like I let you down. I hope you are hanging in there and I am so glad that things look like they are improving. I am glad you are getting a chance to update. Love, Anne

Anne Himes <arhimes@msn.com>
Boonsboro, Md USA - Thursday, November 4, 2004 5:23 PM CST
Keep the faith. These Hurler kids can do amazing things for sure! Evline is in my prayers!
Lisa Post <LMPOST@cox.net>
- Thursday, November 4, 2004 1:58 PM CST
Sweetie we are praying for you. Keep fighting.
Love Tina,Padraic,Amy+Sophie

Tina <tina@melroseroad.co.uk>
London, UK - Thursday, November 4, 2004 1:46 PM CST
Hi Cheryl. I know that you have alot on your shoulders right now. I only wish that I was their with you guys and give you all my support. It's promising to hear that Evline is doing better than they had expected. BUT remember ALWAYS STAY ALERT!!! Only you and GOD know this child. Keep that in mind. Thank you for mentioning us in your update. It made me feel very good.

I know that your Evline will eventually be fine. Just keep on praying and aLways remember that God makes no mistakes and that not everything in life is going to be the way that we want it to be. You know that although our children were chosen to have Hurler Syndrome we must keep in our mind that overall Duke has a very high survival rate with this syndrome and that we couldn't of had chosen any better place other than Duke.

Bless your heart. May God give you the strength that you may need and Evline the healing that only God can give without all these medicines. You know this is all possible. Keep the faith.

When you get a chance and all is well try to email the pictures again.

Angela <angela_rosario35@hotmail.com>
- Thursday, November 4, 2004 11:55 AM CST
just checking in to see how my sweetheart is doing. i hope no news is good news. hang in there Evline.. we love you baby...
Shawn & ^^REESE^^ Coble <selboc@aol.com>
Winston-Salem, - Thursday, November 4, 2004 8:54 AM CST
Cheryl,
Just a note to let you know you are all in my prayers. Evline is a true fighter. She is a strong little girl, and her spirit will guide her through this tough time. I am so sorry you are having to go through this setback. I wanted to go visit today during our trip to clinic but we had a very long day and were on little sleep. I hope to stop by tomorrow with a sandwich and a hug. I think of you all the time. Try to stay strong and have faith that all will be well. Big hug to you and love to Evline always,

Claudina (Caterina's mom) <claubonetti@aol.com>
Durham, NC - Tuesday, November 2, 2004 6:48 PM CST
hi cheryl,tammy and jerry and most of all miss evline
i am sorry that evline is not feeling very good but i think she will be just fine.she has so many people praying for her and that makes a world of difference.she is so lucky to have such a loving and caring grandma as you.you do so much for her and i know that evline knows this as well as everyone else.i hope that it wont be long that evline will be out of the hospital and at home running and playing and that me and katilynn can come for a visit to see her and give a big hug.so give her a big hug and kiss from us and we will keep all of you all in our prayers and tell jerry that we hope that he gets well soon.love and kisses kathy and katilynn

kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Tuesday, November 2, 2004 1:21 PM CST
I'm so sorry that Evline has had a set back.
You all are in our prayers.
Mom to Zach-MPS1

Shaun Haynes <zplane@charter.net>
Klamath Falls, Or U.S. - Tuesday, November 2, 2004 1:14 PM CST
I am praying that Evline is feeling better soon and that the complications ease for her. Love Laura (mum to Will MPS2)
Laura Brodie <labro4will@yahoo.co.uk>
Birmingham, England - Tuesday, November 2, 2004 12:58 AM CST
Evline is in my thoughts and prayers.

http://www.geocities.com/calebwaddell

Kelly Waddell <kellywaddell@hotmail.com>
Southaven, MS USA - Tuesday, November 2, 2004 11:14 AM CST
I am soo sorry to hear all of what my little Evline is going through at this point. Just don't give up the faith. We all know that this isn't an easy road but TRUST ME it will EVENTUALLY!!This is all in the hands of GOD. It's ok to be afraid and feel all that you are feeling your a human being. Evline is just trying to give us all a wake up call. I'm quite confident that everything will settle down. God bless you Evline.

Father, I just want to take this opportunity to say you knew this little angel way before we even knew her, for this reason father I pray to you under her name for a fast healing and recovering. Father please help this child of yours Evline. You know better than anybody what she needs at this point and only you know what your plan is with her. Just give her parents and grandma the patience and understanding to wait for your miracle. The miracles that we are all waiting for.

angela <angela_rosario35@hotmail.com>
- Tuesday, November 2, 2004 11:11 AM CST
I definitely will keep Evline in my prayers. I remember PICU and how scary it can be.

Last Saturday, we held our 2nd Annual Run for Reese... a run to benefit the MPS Society and research for MPS. Evline's journey is just another reason I want to find a cure...

Keep fighting little sweetheart. We love you so much!!!

Shawn, Taylor, & ^^REESE^^ <selboc@aol.com (www3.caringbridge.org/nc/reesecup)>
Winston-Salem, NC - Tuesday, November 2, 2004 8:54 AM CST
Sorry to hear that baby Eveline has taken a setback! I will be praying and thinking of her today! Keep us updated when you can!
Kaity's Aunt Rhonda <rjapril@insightbb.com>
Jeffersonville , Indiana - Tuesday, November 2, 2004 7:13 AM CST
I'm so sorry for all the complications that Evline has had to face. She is in our thoughts and prayers.
Kris and Kraiggy
Kraig's Journal

Kris Klenke <kris@mpssociety.org ** www.caringbridge.org/il/kraig/ **>
Worden, IL - Tuesday, November 2, 2004 6:45 AM CST
I’m so sorry to hear about Evline’s recent set back. I hope you can keep us updated, but I fully understand if you cannot. I will keep Evline and your family in my prayers.

Jessica
^^Angel Kaity’s Site^^

Jessica Wellman <jessicalw@earthlink.net>
Crandall, IN USA - Tuesday, November 2, 2004 6:30 AM CST
I am so sorry, this is such a rollorcoster of a ride. I pray that Evline will soon be on the road to recovery.
We are praying for you all. Your strengh is amazing.
Love Tina,Padraic,Amy+Sophie

Tina <tina@melroseroad.co.uk>
London, UK - Tuesday, November 2, 2004 1:06 AM CST
Thinking of you and praying for you. God bless you!!!
Nurse Megan
Cary, NC - Monday, November 1, 2004 3:58 PM CST
Hope everything is going ok.
Love Tina,Padraic,Amy+Sophie

Tina <tina@melroseroad.co.uk>
London, UK - Sunday, October 31, 2004 4:39 AM CST
Cheryl, I was checking your updates. I hope Evline's tummy is getting better. Please update soon.
Tonja Saylor
Wallins Creek, KY USA - Thursday, October 28, 2004 10:20 PM CDT
Just wanted you to know that your in my thoughts and prayers. Miss you. If you need anything - call.
Samantha Long <sbrock@kceoc.com>
Harlan, ky - Thursday, October 28, 2004 1:09 PM CDT
Stopping by to check on Evline. You haven't made an update in awhile. I hope all is going well. Praying for your family.

Jessica
Angel Kaity's Site

Jessica Wellman <jessicalw@earthlink.net>
Crandall, IN USA - Thursday, October 28, 2004 12:04 AM CDT
HAPPY HALLOWEEN!!!!

Trisha Athy caringbridge.org/il/aaronathy <aaronsmom1027@sbcglobal.net>
Belleville, IL - Monday, October 25, 2004 3:34 PM CDT
hi cheryl\
just checking in i am hoping all is well u havent updated for a little while and so please let us know how things are.take care and give evline a big kiss and hug from me and katilynn

kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Saturday, October 23, 2004 9:02 PM CDT
Cheryl:
Take care of my girl. It was a pleasure to meet you guys. Sorry I had to miss the parents. We left Durham Thursday. I hope Evline starts to show all of us some good indications with that loose stool. She is adorable!!! My email address is angela_rosario35@hotmail.com amd Ashley web page is caringbridge.org/ny/ashley

Angela <angela_rosario35@hotmail.com>
- Saturday, October 23, 2004 12:09 AM CDT
Cheryl,

Wishing you guys the best and keeping Evline in our prayers.

Sincerely


Maria Tuckett <mariaetuckett@aol.com; caringbridge.org/ut/tuckett>
MURRAY, UT US - Friday, October 22, 2004 8:25 PM CDT
Hoping Evline is feeling better this week. Keeping her in my prayers!
Lisa Post <LMPOST@cox.net>
- Friday, October 22, 2004 10:21 AM CDT
I am so sorry that Evline's tummy is acting up. I know Andrew had diarrhea too and vomiting for quite awhile. I hope it all clears up soon. It is very hard on both of you. I hope you got some answers in Tue clinic. We will be at Duke Nov 1 and 2nd hope to see you around the clinic. Love, Anne
Anne Himes <arhimes@msn.com>
Boonsboro, md usa - Wednesday, October 20, 2004 9:38 AM CDT
I am praying for all of you including Evline to have as much stregnth as possible b-cuz that's what you need right now and remember little ones to him belong they are weak but he is strong!
Bobbie <brrobertson19@yahoo.om>
Belleville, IL 62223 - Sunday, October 17, 2004 3:00 PM CDT
hi everyone
just wanted to stop by and check on you all.i hope you get to go home soon and i hope tammy is feeling better.katilynn got to come home today the port surgrey went well and she is playing and is doing good
we will keep your family in ur prayers and please give evline a big hug for me i would love to give her one personaly but i know i cant so u can do that for me.well guys i will check back soon sending lots of hugs and kisses ur way.love kathy and katilynn

kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Saturday, October 16, 2004 7:25 PM CDT
We continue to pray for you.
Stephanie & RachelJoy <mom2rj@comcast.net>
- Saturday, October 16, 2004 5:21 PM CDT
Sending good thoughts from Mississippi tonight. I am hoping all is getting under control. :-)

Hugs, Janelle (Alli's Nana)

Janelle Kunellis <shoe111550@yahoo.com>
- Friday, October 15, 2004 6:57 PM CDT
hi everyone
just wanted to stop by and check on you all i hope all is good.we are keeping you all in our prayers.please know that we love you guys and hope evline does well we will check back later also keep katilynn in your prayers she will have her port put in friday at 1:00 in cincinnati.hope to hear from you soon love kathy and katilynn

kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Monday, October 11, 2004 1:17 PM CDT
Praying for Evline. and your whole family.

Love, Kim and Ty

Kim Downham <jdownham@earthlink.net>
Houston, TX - Sunday, October 10, 2004 6:30 PM CDT
Prayers to you Evline.

Janelle (Alli's Nana)

Janelle Kunellis <shoe111550@yahoo.com>
- Saturday, October 9, 2004 3:32 AM CDT
Chery, Just thought I would let you know that everyone is praying for you and Evline every church night someone gives in request for you and her. Hope GODS strengh will be with you and her through all that you may go through remember after every storm there is a Rainbow. Remember All things are possible to those that believe. Fear not, nor be dismayed, be strong and of good courage... Joshua 10:25
Cheryl are prayers are with you always, Richard, Helen and Joshua

Helen Stewart <hstewart@arh.org>
Cawood, Ky 40815 - Tuesday, October 5, 2004 8:36 AM CDT
Just checking on Evline and praying for her to have things go better. My daughter Tatiana had similar problems when she had her transplant in the beginning. She turned around. The Dr's weren't really concerned. They kept saying that these were really common problems while going through BMT and that the kids always recovered. I am sure Evline will recover. Wishing you the best.
Maria Tuckett <mariaetuckett@aol.com; caringbridge.org/ut/tuckett>
Murray, UT US - Tuesday, October 5, 2004 1:14 AM CDT
Just checking on Evline and praying for her to have things go better. My daughter Tatiana had similar problems when she had her transplant in the beginning. She turned around. The Dr's weren't really concerned. They kept saying that these were really common problems while going through BMT and that the kids always recovered. I am sure Evline will recover. Wishing you the best.
Maria Tuckett <mariaetuckett@aol.com; caringbridge.org/ut/tuckett>
Murray, UT US - Tuesday, October 5, 2004 0:23 AM CDT
I was just popping in to see how things are going. Evline seems to be doing well. Soon you will be back at home and watching Evline grow into a active toddler!!!
Trisha Athy CLICK HERE TO VIEW AARON'S CARINGBRIDGE SITE <aaronsmom1027@sbcglobal.net>
- Friday, October 1, 2004 2:11 PM CDT
hi guys just wanted to check on you all to see how things were going.we went to cincinnati this past monday and katilynn didnt get to get her treatment because they couldnt find a vain.so michelle is try to make us appt to see when they can put katilynn a port in.it sounds like evline is doing better i am so glad that she isnt throwing up now and that her bottom is getting better.please give her a hug and kiss from us and tell her we love her.take care guys and i will be back to check in on you all.love kathy and katilynn and family
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Wednesday, September 29, 2004 6:11 PM CDT
Give the baby a big hug and kiss from all of us and tell her we love and miss her very much. She's GOD'S precious angel.
Love,
Aunt Renae, Uncle Rat & Cousin Bre

Renae Jones <boltman@mikrotec.com>
Lejunior, Ky USA - Friday, September 24, 2004 8:11 AM CDT
Give the baby a big hug and kiss from all of us and tell her we love and miss her very much. She's GOD'S precious angel.
Love,
Aunt Renae, Uncle Rat & Cousin Bre

Renae Jones <boltman@mikrotec.com>
Lejunior, Ky USA - Friday, September 24, 2004 8:10 AM CDT
Just wanted to let you all know that we're always thinking of you and praying for you all. If you need us for anything we're always here.
Love,
Renae, Rat & Bre

Renae Jones <boltman@mikrotec.com>
Lejunior, Ky U.S.A. - Friday, September 24, 2004 8:07 AM CDT
Glad things are still going well. You keep bashing that adneovirus sweetie.
Love Tina,Padraic,Amy+Sophie

Tina <tina@melroseroad.co.uk>
London, UK - Friday, September 17, 2004 2:06 AM CDT
Just checking in on lil Evline! I sure hope the runny nose and cough soon stop! Good to hear that she at least playing! I will be back to check on you later cutie!
Kaity's Aunt Rhonda <rjapril!@insightbb.com>
Jeffersonville, In - Friday, September 10, 2004 6:36 PM CDT
Great job, Evline! I'm so happy for you!
Lisa Post <LMPOST@cox.net>
- Friday, September 10, 2004 4:25 PM CDT
Evline you are a star, keep up the good work sweetie.
Love Tina,Padraic,Amy+Sophie

Tina <tina@melroseroad.co.uk>
London, UK - Friday, September 10, 2004 8:23 AM CDT
I am so thrilled to hear that Evline has been discharged and that things are going well. Keep up the good work. Love, Anne
Anne Himes <arhimes@ msn.com, www.caringbridge.org/page/andrewh>
Boonsboro, md USA - Tuesday, September 7, 2004 7:29 AM CDT
Sending our love, prays and thoughts across the sea.
Love Tina,Padraic,aMy+Sophie

Tina <tina@melroseroad.co.uk>
London, UK - Monday, September 6, 2004 0:50 AM CDT
Prayers being sent your way!

Janelle (alli's nana)

Janelle Kunellis <shoe111550@yahoo.com>
- Sunday, September 5, 2004 7:07 PM CDT
hi tammy,jerry,cherly and sweet evline
just wanted to stop by and check in on you guys i am sorry it has been a while katilynn and school takes alot of my time and when i get home i get the pleasure of cleaning all evening.but i will do better about checking in ok i promise.well guys give evline a hug for me and a kiss love you guys take care and i will be back to check in on you all.hugs and kisses from kathy and katilynn

kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Sunday, September 5, 2004 11:23 AM CDT
I'm assuming you are now getting settled into RMH. I will be praying that all continues to go well.
Stephanie & RachelJoy <mom2rj@comcast.net>
- Friday, September 3, 2004 0:02 AM CDT
iam so happy for you all and little evalene she is so beeatifull and god has special plans for her iam so glad she got dischared today and i know that you are.....iam glad that i got to meet her and her family i can tell that grandma holds a very special place in her heart for her beatifull granddaughter...god bless and hope all goes well.....
becky bourassa <beckers@netzoola.com>
new milford, pa 18834 - Wednesday, September 1, 2004 7:03 PM CDT
Glad to hear that Evline is doing better and got a pass out for a few hrs!!! Hugs and kisses!!!
Kaitybug's Aunt Rhonda <rjapril!@insightbb.com>
Jeffersonville, In - Wednesday, September 1, 2004 5:57 PM CDT
Hello!!
I hope everything went well today with the discharge. I will be back on Friday and I don't know what to do without my Evline!! I pray for you guys and I cannot tell you how happy I am that she is doing so well. I will talk to you soon. Take care!
Bethany

Bethany Kistler
Elon, NC USA - Wednesday, September 1, 2004 3:52 PM CDT
Yea!!!! What fantastic news. It will be great to be out of the hospital and get some good uninterupted SLEEP!!! Way to go Evline. Keep up the good work. Love, Anne
Anne Himes <arhimes@ msn.com, www.caringbridge.org/page/andrewh>
Boonsboro, md USA - Wednesday, September 1, 2004 8:34 AM CDT
Wonderful News. Glad you are all feeling better.
Love Tina,Padraic,Amy+Sophie

Tina <tina@melroseroad.co.uk>
London, UK - Tuesday, August 31, 2004 1:08 AM CDT
Wow! Congrats to the progress!! I keep you in my prayers.

Janelle (Alli's Nana)

Janelle Kunellis <shoe111550@yahoo.com>
- Monday, August 30, 2004 6:45 PM CDT
Stopping by to see how Eveline is doing. Sorry to hear that everyone has been sick. Good news that discharge is in the works.
Sharon Cochenour (mother to Andrew MPS II)

Sharon Cochenour <scochenour@hotmail.com>
Clarksburg, OH USA - Saturday, August 28, 2004 0:25 AM CDT
Stopping by to check on Baby Evline. I’m so sorry she is sick. I hope things are going a little better today. Please keep us updated. I will check back in soon!

Jessica
Angel Kaity’s Caring Bridge Site

Jessica Wellman <jessicalw@earthlink.net>
Crandall, IN USofA - Friday, August 27, 2004 4:44 PM CDT
hello guys
just wanted to stop by andcheck on you all i hope evline and everyone is feeling better and katilynn just got out of the hospital wednesday but she is doing better and hopely will be back to school tuesday.we go to charleston monday to meet the new doctor thats going to be doing katilynn ert.i cant wait so we dont have to drive so far it will be easier on katilynn and money wise to.thank you for keeping us updated.we love you guys and pleae give evline a hug and kiss for us and tell her we love her.u all will be in our prayers and say a pray for katilynn

kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Friday, August 27, 2004 7:00 AM CDT
I am glad to hear that she is doing better. It is really nice that you are helping them out. I felt very positive any time I saw a child that was post transplant. Just leaving a short message letting you know that I am wishing Evline and her loved ones the very best.

God Bless

Maria Tuckett <mariaetuckettQ@aol.com, caringbridge.org/ut/tuckett>
Murray, UT US - Wednesday, August 25, 2004 7:45 PM CDT
I'm so glad to hear that Evaline is doing better. Hopefully she'll be home soon. Also sad to hear about everyone being sick though, :-( I will add them to the prayers as well.
Stay well and take care of the precious little lady!

Patty and Jesse
http://www.caringbridge.org/md/myjesse

Patty Taormino <wordinedge@aol.com>
Baltimore, MD USA - Wednesday, August 25, 2004 1:49 PM CDT
Hello
Island Princess here stopping by to see how you are doing. I am sorry you are not feeling too good. I will keep you in my prayers.
God Bless you,
Island Princess

Butterfly Island



Island Princess <mooks@bellsouth.net>
- Wednesday, August 25, 2004 11:48 AM CDT
Dear Cheryl,
I am sorry to hear that all your help is sick but I know you can handle it. I was there the whole time by myself so I know it can be done. I hope the virus will go away quickly so you guys can get out of isolation. That is no fun. Happy anniversary a day early. Wow 22 years. I am on 10! Andrew's 3yr transplant anniv. was yeasterday. I would have loved to meet the little girl who is 7 years out. Maddy W. is 5 years out and she is the oldest child I know. She is a light isn't she! They all give us such great hope for things to come. Hang in there. Love, Anne

Anne Himes <arhimes@ msn.com, www.caringbridge.org/page/andrewh>
Boonsboro, md USA - Wednesday, August 25, 2004 8:49 AM CDT
Just checking in on cute lil Evline! Glad to hear that you are going home soon!
Kaity's Aunt Rhonda <rjapril@insighbb.com>
Jeffersonville, In USA - Sunday, August 22, 2004 7:23 PM CDT
Sorry it is been a while we been having problems with our computer. I pleased to hear there is talk of discharge. It is amazing what a lift that can give you all. This is such a hard time but it seems everything is going according to plan. We are sending our prays and love across the sea.
Love Tina,Padraic,Amy+Sophie

Tina <tina@melroseroad.co.uk>
London, UK - Friday, August 20, 2004 1:32 PM CDT
Fingers crossed for discharge next week! Happy Anniversary! Keep that faith...Evline sounds like she's right on track!
Lisa Post <LMPOST@cox.net>
- Friday, August 20, 2004 9:04 AM CDT
Dear Cherly,
Everything sounds just about right. I won't say "normal" because we all hated that word on 5200 (it covered so many unbelievable and awful things) They told us too that wbc should just about double each day (except at the beginning when they may rock back and fourth) and that is just what Andrew's did so Evline's sounds terrific. Andrew also had a reaction to the vit in the TPN. I remember how puffy he got and his baby teeth disappeared. Wow was I freaked!! Until another mother said the same thing had happen to her baby. It was just his gums getting puffy too and covering up his teeth. Whew! Hang in there, this is the worse part. Love, Anne

Anne Himes <arhimes@ msn.com, www.caringbridge.org/page/andrewh>
Boonsboro, md USA - Friday, August 20, 2004 8:34 AM CDT
Stopping by to see how everything is going. Glad to see the small shift in Eveline's counts. Keeping you guys in our thoughts and prayers. As it has already been said...grow cells grow.
Sharon cochenour (mother to Andrew with MPS II)

Sharon Cochenour <scochenour@hotmail.com>
Clarksburg, Ohio USA - Sunday, August 15, 2004 0:07 AM CDT
I hope the storm wasn't too bad for you. Way to go with the cell count Evline. It is really exciting when it gets started. It gives you such a sense of purpose and makes any worries easier to take. We will be gone for a few days. I hope when I check in next time that Evline will have lots of new cells. Love, Anne
Anne Himes <arhimes@ msn.com, www.caringbridge.org/page/andrewh>
Boonsboro, md USA - Saturday, August 14, 2004 4:59 PM CDT
hi cheryl and evline and tammy and jerry
just stoped by to check in on you guys i am glad evline had a good birthday.i hope and pray everything continues to go good for you guys and i will keep you in my prayers and thought daily.katilynn will start school on monday and just think it wont be to longer that evline will be a big girl and go to school just like katilynn.cheryl do me a favor and give evline a big hug and kiss for me.well i will be back to check in on you guys take care and sending you all lots of hugs and kisses and also lots of prayers .love kathy and katilynn one last thing hopefully i will be posting first day of school pictures of katilynn for you.

kathy and katilynn preston <katilynnsmom@yahoo.com www.caringbridge.org/ky/katilynnsmom>
tomahawk, ky usa - Friday, August 13, 2004 8:59 PM CDT
Happy Birthday!!!! It is so nice to have your birthday and your Transplant birthday so close together, Nolan's are very close also, so we celebrate alot in April. As everyone else has said Grow Cells Grow!!! We are praying for you!!!
Love, The Ramsey's

Sam and Nancy (www.caringbridge.org/co/nolanramsey) <samdramsey@comcast.net>
Erie, Co - Friday, August 6, 2004 8:42 PM CDT
HAPPY BIRTHDAY EVLINE
WE LOVE YOU

KATHY AND KATILYNN PRESTON <katilynnsmom@yahoo.com>
TOMAHAWK, KY USA - Friday, August 6, 2004 8:25 PM CDT
hi cheryl,tammy,jerry,and last but not least evline
i just wanted to stop by and check on you all and i am glad for the updates because i want to know all about how evline is doing we think about her alot and you all to please give her a hug and a kiss from me and katilynn so we are going to continue the pattern GROW CELLS GROW WE LOVE YOU EVLINE

kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Friday, August 6, 2004 8:24 PM CDT
Hello Evline,
My thoughts and prayers are with you.
GROW CELLS GROW.
Stella Mcphee
Carters grandma

Stella mcphee
toronto canada, - Friday, August 6, 2004 6:54 PM CDT
Checking in on Evline. As Trisha wrote below...GROW CELLS GROW!!!
Lisa Post <LMPOST@cox.net>
- Friday, August 6, 2004 3:55 PM CDT
GROW CELLS GROW!!!!!!!!!
TRISHA ATHY CARINGBRIDGE.ORG/IL/AARONATHY <aaronsmom1027@sbcglobal.net>
- Friday, August 6, 2004 3:10 PM CDT
Happy Birthday Evline. My computer has been down since the weekend and it was driving me crazy not to be able to check on my babies. Baby Ally is on the floor with you now I see. Her brother Ryan Kristoff transplanted with my Andrew back in 2001. Stop by and say hi. They are just the nicest people. I will keep checking in. Love, Anne
Anne Himes <arhimes@ msn.com, www.caringbridge.org/page/andrewh>
Boonsboro, md USA - Thursday, August 5, 2004 9:27 PM CDT
Thinking and praying for you Evline


Paulina Jump and Andrew Jump MPS IIIB <caljump@msn.com http://hometown.aol.com/paulinajump/myhomepage/family.html>
SPARTA, KY USA - Thursday, August 5, 2004 2:55 PM CDT
Happy Birthday Angel. We love you and miss you bunches. All our love hugs and kisses. Miss you bunches also.

Aunt Renae, Uncle Rat and Cousin Bre

Renae Jones <boltman@mikrotec.com>
Lejunior, Ky U.S.A. - Thursday, August 5, 2004 5:55 AM CDT
Oops. Sorry! Happy Birthday today!! I didn't pay attention to when Grandma had posted!
Love and Hugs and I hope you got bunches of goodies today!

Jessica Wellman <jessicalw@earthlink.net>
Crandall, IN USA - Tuesday, August 3, 2004 10:00 PM CDT
Tomorrow Evline will be a whole one year old! Happy Birthday Tater Tot! I will say a little prayer that you feel like licking a little bit of icing off of that birthday cake!! Love to you and your family. You are a brave little girl.

Jessica
MPS Forum

Jessica Wellman <jessicalw@earthlink.net>
Crandall, IN USA - Tuesday, August 3, 2004 9:57 PM CDT
HAPPY BIRTHDAY EVELINE!!!! Hope you start to feel better soon. I have a 6 year old daughter with MPS1 H/S. She is receiving ERT. we think of you aften and hope all goes well. Tonia & Taylor
Tonia & Taylor <tkarl5150@yahoo.com>
Mansfield, Ohio USA - Tuesday, August 3, 2004 5:14 PM CDT
Happy 1st Birthday, Evline! You are in my prayers!
Lisa Post <LMPOST@cox.net>
South Windsor, CT - Tuesday, August 3, 2004 11:09 AM CDT
HAPPY BIRTHDAY EVLINE.
Lots of Hugs.

Shaun Haynes <zplane@charter.net (www.caringbridge.org/or/haynes>
KlamathFalls, Or US - Tuesday, August 3, 2004 11:06 AM CDT
Happy Birthday Evline!!!! I hope you feel well on your big day and you soon grow them New Cells!!! Happy birthday baby!

Hugs,

Tami ( www.caringbridge.com/ca/slawson ) <TLSlawson@aol.com>
- Tuesday, August 3, 2004 0:11 AM CDT
Hi....My name is Bob Robertson. I am Aaron Athy's Grandpa. Aaron got his transplant in Feb 2003. Just wanted to let you know there are other's out here who watch all the Hurler's children and keep them in thier prayer's. You have many people standing beside you, you don't even know about. God is Great!
Bob Robertson <owcc42@yahoo.com>
Belleville, IL - Monday, August 2, 2004 9:19 AM CDT
Baby Evline and your entire family are in my thoughts and prayers.
~Jessica

Jessica Wellman <jessicalw@earthlink.net>
Crandall, IN USA - Sunday, August 1, 2004 3:20 PM CDT
Just stopping by to see how everything is going with the transplant. Glad to see you got it and hoping that those cells are growing. Prayer are coming your way.

Sharon Cochenour (mother to Andrew MPS II)

Sharon Cochenour <scochenour@hotmail.com>
Clarksburg, OH USA - Sunday, August 1, 2004 0:50 AM CDT
I'm so glad to hear Evline got her transplant! Now Grow Cells Grow!!!!!!! Evline and Caterina are both at the top of my prayer list.
Cheryl, as for the ticket- do you think if you explained to the officer who wrote it the circumstance of your life and more importantly, Evline's life, that he/she might lessen the charge??? I don't know if it is even possible- but maybe it's worth a try? Where was the car parked? in front of the hospital or over in that little side area??? I can't believe they gave you a ticket!!!! I'm sorry.

Give little Evline a big huge hug from me and Ty!
Love,
Kim

Kim Downham <jdownham@earthlink.net>
Houston, TX - Saturday, July 31, 2004 11:57 PM CDT
I am so thrilled that everything is going so well (except the ticket of course) Don't worry about the 4 out of 6 match. That is what Andrew got and as far as I have been able to tell, a higher number doesn't matter. As long as they are making that enzyme that is all that matters. Love, Anne
Anne Himes <arhimes@ msn.com, www.caringbridge.org/page/andrewh>
Boonsboro, md USA - Saturday, July 31, 2004 7:46 PM CDT
Congradulations on the start of the transplant. Take care.
and God Bless all of you. Evline is such a sweet heart. My daughter Heather (13) has fallen in love and checks on her dailey.

Shaun Haynes <zplane @charter.net www.caringbridge.org/or/haynes>
KlamathFalls, Or US - Saturday, July 31, 2004 3:07 PM CDT
Congradulations on the start of the transplant. Take care.
and God Bless all of you. Evline is such a sweet heart. My daughter Heather (13) has fallen in love and checks on her dailey.

Shaun Haynes <zplane @charter.net www.caringbridge.org/or/haynes>
KlamathFalls, Or US - Saturday, July 31, 2004 3:07 PM CDT
Congratulations on the start of Evline's journey to wellness! May God bless her with a successful transplant!!
Lisa Post <LMPOST@cox.net>
- Friday, July 30, 2004 7:27 PM CDT
Just dropping by to let you know that I linked your site to mine at MPS Forum.com on the “Links” page. I hope this was okay and thank you for sharing your site with other MPS/ML parents!
Evline is in my thoughts and prayers as she begins transplant. My God watch over and her family.
Love,
Jessica
(Mom to Kaity~Hurler Syndrome age 13)


Jessica Wellman <jessicalw@earthlink.net>
Crandall, IN USA - Friday, July 30, 2004 6:37 PM CDT
Happy "Birthday" Evline. I am so excited for you. I am glad you are doing so well. Let those nurses pamper you and don't be afraid to use that pump. Lisa Post is right, Duke has awsome bottom cream that will work wonders! Just ask the nurses, if they don't offer it to you. Keep up the good work. We can't wait to be reading about your cell counts! It won't be long. Grow Cells Grow!!! Love, Anne
Anne Himes <arhimes@ msn.com, www.caringbridge.org/page/andrewh>
Boonsboro, md USA - Friday, July 30, 2004 7:06 AM CDT
Dear evline & family,

I am so glad to hear that thing are going good. Hang in there. Our prayers are with you.

Maria E Tuckett <mariaetuckett@aol.com, caringbridge.org/ut/tuckett>
Murray, ut us - Thursday, July 29, 2004 11:11 PM CDT
Hello to all. I know that today (friday) will be an amazing day in your life. My thoughts and prayers are with you. Happy "New" Birthday Evline! May you let your little heart shine today! God Bless You. Take Care.
Love,
Beth Anne Biggs

caringbridge.org/tn/laney

Beth Anne Biggs <laneybug02@charter.net>
Rogersville, TN - Thursday, July 29, 2004 10:54 PM CDT
May God Bless Evline as the transplant process begins!! Remember that Hurler kiddos are very tough! She will surprise you! When my friend's daughter had the sore bottom from the chemo stools, they had a cream in MN that I believe they actually called butt paste! Not sure what it was but it worked great! Maybe the folks at Duke might also have that available. I'll be checking back often. God Bless!
Lisa Post <LMPOST@cox.net>
- Monday, July 26, 2004 6:19 PM CDT
What we did for our daughter, Kaitlyn (transplanted 11-22-03)when her bottom got raw we used, destin mixed with nystain and a little vasoline mixed together and coated her bottom with it...We stopped using baby-wipes and just used warm water to clean her..Also I got a great tip from Mighty-Max mom and it was the oxygen tube in her room. After each diaper clean we cleaned her up and for about 5 minutes let the blow-by oxygen dry her bottom.It helped alot...Eating will come back eventually too.Take care...
Susan Ries <Jagators24@msn.com www.caringbridge.org/page/tommyries>
Jacksonville , Fl - Sunday, July 25, 2004 9:30 AM CDT
hi guys just stoped by to check in on you all.i hope all goes well.katilynn is doing good and they still dont have treatments closer yet but we are keeping are fingers crossed.so please give evline a big hug and kiss for us hope to hear from you all soon love kathy and katilynn
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Friday, July 23, 2004 10:19 PM CDT
Cheryl,

Thank you for taking the time to write. I am so glad to hear that she has proceeded and that things are going well. We will keep praying and checking in from time to time. Best Wishes


Maria E Tuckett <mariaetuckett@aol.com, caringbridge.org/ut/tuckett>
Murray, ut US - Thursday, July 22, 2004 6:09 PM CDT
I am so glad that you are finally getting started. I was worried when there were no updates. Hang in there. Pretty soon we will be checking in to read about her new cell counts! Love, Anne
Anne Himes <arhimes@ msn.com, www.caringbridge.org/page/andrewh>
Boonsboro, md USA - Thursday, July 22, 2004 5:19 PM CDT
Cheryl,
I'm so glad to hear that all is going well, and Eveline is getting started with the transplant. We will be remembering all of you. Remember us too. I miscarried again this time around 12 weeks (4th July weekend). It has been tough...........

Tonja <tissakay@yahoo.com>
Harlan, KY - Thursday, July 22, 2004 4:03 PM CDT
I'm glad to hear you're at Duke and finally started the process. The doctors and nurses there are phenominal. I miss them a great deal. Hey - if you see Erika or Kelly, please tell them 'reesie cup's' mom says hello and to take extra special care of Evline. I pray for a successful, very boring transplant. God's speed Evline... hang in there baby!!! Sending lots of love..
Shawn, Taylor, &^^REESE^^ Coble (www.caringbridge.org/nc/reesecup) <selboc@aol.com>
Winston Salem, NC - Thursday, July 22, 2004 11:24 AM CDT
hey just stoped by to check up on you all and to see how evline is doing i hope all is going good please keep us updated to let us know how she is.i miss getting to talk to you guys.we will keep you all in our prayers talk to you soon.hugs and kisses and lots of prayers coming your way kathy and katilynn preston
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Thursday, July 15, 2004 3:38 PM CDT
Hi. I know what the transplant road holds. My son had his last November. You are in our prayers.

http://home.comcast.net/~jgarrard04/wsb/index.html

Jennifer Garrard <jgarrard04@comcast.net>
petal, MS USA - Thursday, July 15, 2004 3:08 PM CDT
Hey aunt Cheryl,Jerry,Tammy,and sissy,
I hope evline is doing ok. I'll be praying to god to watch over you guys. I know it may be real rough out there but I know you guys will make it through. Tell sissy evline I love her and miss her and that i'll be praying for her.

Love,
Bre

Bre-Anna Jones <way2kool01@hotmail.com>
Lejunior, Ky U.S.A. - Thursday, July 15, 2004 11:37 AM CDT
Wishing you and Elvine the best. Just thought I would check to see if you had a chance to put in an update. I will continue to pray and check in on you.

maria tuckett <mariaetuckett@aol.com, caringbridge.org/ut/tuckett>
murray, ut us - Thursday, July 15, 2004 0:45 AM CDT
Just checking in on Evline and the whole family. We are still praying for Evline's health and 100% engraftment from the donor cells. Please update us on Evline's progress when you get a chance. We are here for you if you need anything. There are several MPS families nearby, I hope you get the opportunity to meet some of them, and take them up on their offer to help- I know they mean it. I wish I could be closer to offer assistance. If there is anything I can do from Texas, please do not hesitate to call.2813607468
Love,
Kim and Ty

Kim Downham <jdownham@earthlink.net>
Houston, TX - Wednesday, July 14, 2004 1:09 AM CDT
hi tammy.evline and everyone
i hope everything is going great please let us know how everything is going and if there us anything u need or just want to talk just let me know.hugs and kisses and i will keep u in my prayers love kathy and katilynn

kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Friday, July 9, 2004 8:00 PM CDT
HI. I just was sent your website today. I know that the transplant journey is long and hard but it is well worth it! Hang in there! My son will be 2 tomorrow and he was transplanted Nov. 6th, 2004. He's doing great! You are in our prayers!

http://home.comcast.net/~jgarrard04?wsb/index.html

Jennifer <jgarrard04@comcast.net>
Petal, MS USA - Friday, July 9, 2004 7:55 PM CDT
HI. I just was sent your website today. I know that the transplant journey is long and hard but it is well worth it! Hang in there! My son will be 2 tomorrow and he was transplanted Nov. 6th, 2004. He's doing great! You are in our prayers!

http://home.comcast.net/~jgarrard04?wsb/index.html

Jennifer <jgarrard04@comcast.net>
Petal, MS USA - Friday, July 9, 2004 7:51 PM CDT
Dear Cheryl,
Good luck with everything this week! We will be coming down to NC to have our daughter Caterina tranplanted at Duke so I really look forward to meeting you and spending time with you girls! Caterina turned 13 months yesterday and was diagnosed with Hurler's 3 weeks ago. She is very much looking forward to playing with Evline. Our prayers are with you and your family during this trying time. YOu are not alone! Stay strong and positive... we will see you soon! With warm wishes, Claudina B Marcus (& Caterina & family!)

Claudina Bonetti Marcus <claubonetti@aol.com>
New York, NY - Thursday, July 1, 2004 7:19 AM CDT
Please make sure you feel one hundred percent comfortable with the Drs' proceeding with the BMT even though her O2 is still low. Ask alot of questions. There was a little girl in the BMT unit when my first daughter had her transplant and they couldn't quite figure out why her O2 kept dropping. She had that problem for almost a year. She pulled out of it and she is doing really good. Please keep positive and try not to be scared. Know that she is now in gods hands and you have done all you can. You are great parents and she is surely blessed to have you. Keeping you in my prayers always.

Maria, Tatiana, & Family

Maria Tuckett <mariaetuckett@aol.com/caringbridge.org/ut/tuckett>
Murray, UT US - Wednesday, June 30, 2004 6:52 PM CDT
Hey we are right here for you and I wish I could be right there holding your hand or at least letting you get out of the room for a shower and nap. (You'll understand) I will be checking in a lot. Keep the updates coming. Lots of prayers are coming your way. Say hi to all the nurses and Sue and Dr. K for us. I am so glad things are getting underway. Love, Anne
Anne Himes <arhimes@ msn.com, www.caringbridge.org/page/andrewh>
Boonsboro, md USA - Tuesday, June 29, 2004 7:09 PM CDT
Hi, I just got your website and wanted to send off a quick note to say we will be praying for you during the transplant journey and it is a journey, my son Nolan transplanted April 4,2003 with Hurler Syndrome, he is doing great!!! The Docs and Nurses at Duke are the greatest. I will check in again soon. Love, The Ramsey's
Sam and Nancy Ramsey (www.caringbridge.org/co/nolanramsey) <samdramsey@comcast.net>
Erie, Co - Monday, June 28, 2004 3:11 PM CDT
Hey Guys just checking in on you all. We love and miss you all. Cheryl, I will send those pics you want as soon as I get the battery for my pc camera. I keep forgetting to pick up one. Sorry. We are praying for all of you. If you need us we're here.
Love,
Renae, Rat & Bre

Renae Jones <boltman@mikrotec.com>
Lejunior, Ky U.S.A. - Monday, June 28, 2004 10:40 AM CDT
Hey guys we love and miss you all. Give the baby a big hug and kiss from aunt Renae, uncle Rat & cuz Bre. Tell her we love her and pray for her every night. We love and miss you all. If you need us we're right here any day any time.
Love,
Renae, Rat & Bre

Renae Jones <boltman@mikrotec.com>
Lejunior, Ky USA - Friday, June 25, 2004 5:21 AM CDT
Keep being positive and know that you have people everywhere wishing you and Evline the very best. It's scarry, I know but well worth it. My little just had her tonsils, adnoids & tubes put in as well. Our prayers and well wishes are with you.


Maria Tuckett <mariaetuckett@aol.com/caringbridge.org/ut/tuckett>
murray, UT US - Thursday, June 24, 2004 6:53 PM CDT
Sorry to hear about Evline oxygen levels dropping. I hope they can get to the bottom of it soon. We praying everything else goes well for all of you.

Love Tina,Padraic,Amy+Sophie

Tina <tina@melroseroad.co.uk / www.melroseroad.co.uk>
London, UK - Friday, June 18, 2004 3:30 PM CDT
Good luck Evline!!! Hope everything goes well for you and your family. Good luck...God Bless
Angela <angela_rosario35@hotmail.com>
- Friday, June 18, 2004 1:05 PM CDT
Cheryl,
I'm so glad to hear that things are moving along with Evline's transplant at Duke. You are in the best hands possible! God. and the next best, Dr K. Hang in there, we will be praying for all of you and especially for Evline!!
Love,
Kim and Ty

Kim Downham <jdownham@earthlink.net>
TX - Thursday, June 17, 2004 11:46 PM CDT
hello cheryl and tammy,jerry,evline
i just got ur messege on katilynns web page glad thing are starting to go good for you.i glad you wrote me.thank you for letting me know about the transplant thing but me and my husband has decide that is something that we arent going to do.but i hope everything workes out for evline and she will do good with hers and i will keep her and you all in my prayers everynight.i do hope that we can meet sometime soon.there is something about you guys that i feel like have known you all i guess it is because we all know how each other feels and what each other is going through.but i am glad we are here for each other and we really know when we each say i know what u are going through and know in our hearts that u do.so we send lots of hugs and kisses ur way.i would love to send evline something when u can get a address that i can send it to weather it be at home or there either one i would love to send her a stuffed bear or something.well i will check back later.

kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Thursday, June 17, 2004 10:27 PM CDT
I am so excited to hear that things are underway. I remeber so well having Andrew's tonsiles and adnoids out and ear tubes in. He cried for about 2 weeks. I was all alone and thought I was going to loose my mind. We spent a lot of time in front of Duke chapel watching the divinity students play frizbe. They were such a nice group of "kids". I would "sneak" into the library down there, trying to keep Andrew quite so I could use their computers so I could have some contact with my friends back home. I hope things move along right on schedule for you. Keep us updated. Love, Anne
Anne Himes <arhimes@ msn.com, www.caringbridge.org/page/andrewh>
Boonsboro, md USA - Thursday, June 17, 2004 11:42 AM CDT
Hello, just thinking of you guys and glad to hear things are going well. Keeping you and Evline in our thoughts and Prayers. Sharon and Andrew Cochenour. (MPS Forum).
Sharon Cochenour <scochenour@hotmail.com>
Clarksburg, Ohio USA - Wednesday, June 16, 2004 9:44 PM CDT
Hello, Evline and Family. I am just curious about your trip to Duke. I hope everything went well for Evline. Your family is always in my prayers!!
Trisha Athy CARINGBRIDGE.ORG/IL/AARONATHY <aaronsmom1027@sbcglobal.net>
- Wednesday, June 16, 2004 11:47 AM CDT
Hi!

Just checking in to see how things are going... We are hoping and praying that all is going well/went well at Duke and Evline is on the road to her much needed treatment. Take care! Love ~ Melanie, Steve, Jake (www.caringbridge.org/wa/jacobirish), & Matt

The Irish's <mairish@hotmail.com>
Marysville, WA USA - Monday, June 14, 2004 5:19 PM CDT
HI ALL
JUST WANTED TO STOP IN AND CHECK ON YOU ALL I HAVENT HAD THE CHANCE TO WERE I HAVE BEEN IN THE HOSPITAL AND GETTING OVER THE SURGREY.I HOPE EVERYTHING IS GOING GOOD FOR YOU ALL AND HOPE TO TALK TO U ALL SOON.LOVE,HUGS AND KISSES

KATHY AND KATILYNN PRESTON <katilynnsmom@yahoo.com>
TOMAHAWK, KY USA - Monday, June 14, 2004 2:01 PM CDT
We are all thinking about you (MPS Forum) and praying for Evline! I hope everything with Dr Kurtzberg and Duke went well!!! She's great, isn't she. Give sweet little Evline a great big hug and Kiss from me and Ty. Keep us posted, we are praying for all of you!
Love,
Kim and Ty Downham

Kim Downham <jdownham@earthlink.net>
Houston, TX - Sunday, June 13, 2004 9:00 PM CDT
Hey Guys just letting you all know we love you and we're always here for you all anytime. Give the baby hugs and kisses from us. Tell her we love her.We're always praying for all of you.
Love,
Renae, Rat & Bre

Renae Jones <boltman@mikrotec.com>
Lejunior, Ky USA - Saturday, June 12, 2004 9:57 PM CDT
Hope everything is going well at Duke, We are thinking and praying for you!
Colin, Paulina, Andrew(MPS III B) and Alex http://hometown.aol.com/paulinajump/myhomepage/family.html <caljump@msn.com>
Sparta, Ky 41086 - Saturday, June 12, 2004 7:11 AM CDT
Wow...I'll pray that Evline will get her transplant and be on her way to beating Hurlers to the curb! She will be in my prayers!
Lisa Post <ltjpost@cox.net>
- Friday, June 11, 2004 4:48 PM CDT
hi everyone
just wanted to check in on you all.we were in cincinnati monday and ask michelle about you guys and she said that u were supposed to be at duke monday also.so i hope the best and we send u all the love and hugs and kisses that u can stand.hope to hear from u soon and hope to meet you guys to.

kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Tuesday, June 8, 2004 9:17 PM CDT
Here's hoping everything goes well for Evline and her family this week!!! Thinking of you always!!
Trisha Athy CARINGBRIDGE.ORG/IL/AARONATHY <aaronsmom1027@sbcglobal.net>
Belleville, IL USA - Sunday, June 6, 2004 8:55 PM CDT
That is such wonderful news. I hope everything goes well. I so happy for you.
Love Tina,Padraic,Amy+Sophie

Tina <tina@melroseroad.co.uk / www.melroseroad.co.uk>
London, UK - Sunday, June 6, 2004 1:40 PM CDT
Yea Evline, You are going to be in good hands. I'd like to kiss your insurance co. myself. I can't believe they are doing the right thing. I wish they were all like that. Tell Dr. K I said hi and get rid of that cold! Love, Anne
Anne Himes <arhimes@ msn.com, www.caringbridge.org/page/andrewh>
Boonsboro, md USA - Friday, June 4, 2004 2:16 PM CDT
YOU GO EVLINE!!!!!I am glad medicaid started working out something with your family. I know its normal to feel scared at times and worried but just have faith that when Evline gets her evaluation at Duke your only going to recieve good news. Don't loose hope. God Bless, hope everything goes well and that you had a safe arrival to North Carolina.
angela/Ashley <angela_rosario35@hotmail.com>
- Friday, June 4, 2004 2:14 PM CDT
YEAH!!! You are one step closer to a healthy little girl!!! Did you know that an article Duke just released involving 20 children with Hurler syndrome states that the survival rate of a cord blood transplant is 85%?? That's great news!!!! I will continue to pray for you each step of the way!!! Look out Duke here comes Evline!!!!
Trisha Athy <aaronsmom1027@sbcglobal.net>
Belleville, IL USA - Thursday, June 3, 2004 6:39 PM CDT
Yea!! I hope Duke will serve you as well as it served Andrew. Dr. K is like gold. I will pray that things will soon be underway and go smoothly. Love, Anne
Anne Himes <arhimes@ msn.com, www.caringbridge.org/page/andrewh>
Boonsboro, md USA - Tuesday, June 1, 2004 10:34 AM CDT
Just checking to find out any news. Positive thoughts are pouring your way from North Dakota!

Janelle (Alli's Nana)

Janelle Schumacher <shoe111550@yahoo.com>
- Monday, May 31, 2004 7:30 AM CDT
I congratulate you all for the decision that you have made.
Yes Dr.Kurtzberg and her team of Doctors in Duke are GREAT!!! My baby Ashley has Hurler too and had her transplant there in Jan. 23,2004. Ashley is now 128 days post transplant and is doing good. Ashley was also diagnosed at 8 months old and got her transplant exactly 2 months later so she was 10 months old. Evline will be fine. I wish you guys would have done that decion before but the good thing is that you made it. Yes a transplant has alot of complications but on the other hand our babies will die if we don't give them a chance. The reason why I didn't consider the ERT for my child was because I was told that it wouldn't really do much for the skeletel part and It had only been out for 5 years. So I went ahead with the transplant. I hope you guys can get Evline into transplant soon. Good luck.

angela <anglea_rosario35@hotmail.com>
- Sunday, May 30, 2004 3:09 PM CDT
hi cheryl,evline,tammy and jerry
sounds like everything is going good.congrats to jerry.we will keep u all in our prayerswe send lots of hugs and kisses to all of u.i hate that we havent got to meet yet.maybe we can soon.dr leslie thinks that after june 7th we might be able to go to lexington for katilynns treatments.keep ur fingers crosses and keep the prayers acoming.we wish u all the best of luck with the transplant.katilynn will have a hearing test the 7th and we are hoping all is good i have been having some problems dealing with everything i keep it all in and we it comes out its bad.so i am just trying to hold my self together for katilynn and i dont know why i am like this because she is doing great havent been sick in a while or anything.but the hearing thing is borthering me thinking she might have to have hearing aids.i guess iam scared that she might lose her hearing and never hear me again but i guess that is crazy of me to think those things im just scared.sorry to borther u with my problems.i am so glad that everything is getting started for u all.well i will check back on u soon love,hugs and kisses kathy and katilynn www.caringbridge.org/ky/katilynnsmom

kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Thursday, May 27, 2004 10:23 PM CDT
I am so excited for you. I will pray that she has a smooth and easy transplant. Just a suggestion when she is in transplant perhaps you should put her in a crib because you do not want her to fall when she has very little platelets. Thank so much for checking on Tatiana. Wishing you and Evline the very best.

Sincerely,
Maria, Tatiana, & Family

Maria Tuckett <mariaetuckett@aol.com/caringbridge.org/ut/tuckett>
Murray, UT US - Wednesday, May 26, 2004 10:35 PM CDT
Hey All-rolling over is good! Hugs to you all.

Janelle (Alli's Nana)

Janelle Schumacher <shoe111550@yahoo.com>
- Tuesday, May 25, 2004 9:41 PM CDT
I haven't seen an update for a while so I hope that everything is okay. I have been thinking about Evline a lot lately and praying for her too. I hope Dr. K finds a match for her soon!!! XOXO
Trisha Athy CARINGBRIDGE.ORG/IL/AARONATHY <aaronsmom1027@sbcglobal.net>
Belleville, IL USA - Saturday, May 22, 2004 8:15 PM CDT
I am a mom with a little girl who has undergone a BMT at the tender age of 2 1/2 months. She has Hurlers. Hang in there. She is really cute. Wishing you the best.
Maria Tuckett <mariaetuckett@aol.com/caringbridge.org/ut/tuckett>
Murray, UT US - Friday, May 14, 2004 0:46 AM CDT
hi cheryl and tammy,jerry and of course evline
just wanted to stop in and say hi and send u lots of hugs and kisses.maybe some day soon we can meet.cheryl niki"s web site is www.caringbrigde.org/il/niki.she was a beautiful baby.well i will be back soon to check on u all hugs and kisses kathy and katilynn and u all are in our prayers

kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Thursday, May 13, 2004 10:39 PM CDT
Hey guys just wanted to let you all know we love you and we're always thinking of you all. Give the baby a big hug and kiss from all of us. Uncle Jack can help watch over her now. I'm sure he's smiling down on her now. Love to all of you.

Love,
Renae, Berry & Bre

Renae Jones <boltman@mikrotec.com>
Lejunior, Ky USA - Wednesday, May 12, 2004 9:24 PM CDT
Happy Mother's Day!

Love, Janelle (Alli's Nana)

Janelle Schumacher <shoe111550@yahoo.com>
- Friday, May 7, 2004 8:05 PM CDT
hi tammy,cheryl and evline
sorry cheryl about uncle jack i will prayer for all the family and i am glad evlive is doing great.we hope to be able to meet u all.we go back to cincinnati this sunday and katilynn has her ert monday morning we hope.we will keep u all in our prayers hugs and kisses from kathy and katilynn

kathy and katilynn preston <katilynnsmom@Yahoo.com>
tomahawk, ky usa - Thursday, May 6, 2004 10:06 PM CDT
Hi my son Zach has a port and it is grate. One poke and it is in. And he can swim and take bathes just as allways.
He has had his for almost 4 years.

Shaun Haynes <zplane@charter.net>
KlamathFalls, or us - Saturday, May 1, 2004 6:29 PM CDT
HI, My Granddaughter Alli has a port and it is so easy! She does not fuss and there are no tears. There is nothing harder than watching your child cry without being able to stop the hurt! Blessing coming your way from North Dakota.

Hugs, Janelle (Alli's Nana)

Janelle Schumacher <shoe111550@yahoo.com>
- Wednesday, April 28, 2004 5:44 PM CDT
Hello, how are you evlie? hope everything is alright! You be good for mommy and daddy... I llove you. tack care.
love anut mary

mary stewart <dakota_stewart_19@yahoo.com>
evarts, ky harlan - Wednesday, April 28, 2004 4:39 PM CDT
Hi, Sophie had a Hickman line during her transplant and as it become displaced because she grew she currently has a Pic line. It is a worrying to begin with and bathtime are a little more stressful, but after a while you get used to it. As with all things both have good and bad points. The Hickman line comes out of the chest and I had to be careful to stop in going in the nappy and it was more a issue at bathtime. The Pic line out the arm so it was more arkward to get to and more restrictive during transfusions. To me the Pic line seems more fragile but now at home I can just bandage it up out of the way.

Taking blood was a nightmare with Sophie so both were a blessing.

Hope this helps
Love
Tina

Tina <tina@melroseroad.co.uk>
London, UK - Sunday, April 25, 2004 6:27 AM CDT
Hi, this is Trisha Athy. My son Aaron has a transplant for Hurlers in 2003. Aaron had a hickman in his chest for about 9 months. It was scary to get used to caring for it but after a while it became part of Aaron and it was just business as usual. I was even allowed to do blood draws on Aaron at home and take the specimens to the lab. It was a scary ordeal at first but you just learn to deal with it. I hope all goes well for Evline. E-mail me anytime with questions. Please stop by and visit the MPS Forum at mpsforum.com we would sure like for you to join us!!!!
Trisha Athy caringbridge.org/il/aaronathy <aaronsmom1027@sbcglobal.net>
- Friday, April 23, 2004 9:20 PM CDT
HI TAMMY,EVLINE,CHERYL
I HOPE ALL IS GOOD WITH YOU ALL.KATILYNN GOES BACK TO CINCINNATI MONDAY FOR ANOTHER ERT AND WE HOPW EVLINE WILL GET HERS SOON.GIVE HER A HUG AND A KISS FOR US AND WE HOPE TO MEET SOON.

KATHY AND KATILYNN PRESTON <KATILYNNSMOM@YAHOO.COM>
TOMAHAWK, KY USA - Tuesday, April 20, 2004 11:39 PM CDT
HEY JUST WANTED TO SAY HI AN WE LOVE YOU GUYS AN DONT LET PEOPLE GET TO YAH AN MAKE YOU HURT FOR SOMETHING YOU KNOW ANT TRUE.YOU KEEP UP THE GOOD WORK AN WHILE YOUR DOING THAT GODS TAKING CARE OF BLUE WHO EVER AN WHAT EVER WELL TALK TO YAH LATER AN TELL THE BABY I SAID HI AN WE LOVE HER LOVE TERESA AN BROOKLYN...
TERESA <RANESTES@BELLSOUTH.NET>
EVARTS, KY HARLAN - Sunday, April 18, 2004 10:08 PM CDT
Hey guys. Just letting you all know we love you. It's really unbelievable how immature and cold-hearted people can be. Let's hope for their sake God winked at ignorance. Give the baby a hug and kiss for us. Love Renae, Rat & Bre
Renae Jones <boltman@mikrotec.com>
Lejunior, Ky USA - Saturday, April 17, 2004 9:53 PM CDT
You are a family of inspiration and of hope. This little girl is so special and lucky to have the love all around her. God is so good and will protect his own. Keep the faith!
Gina
- Saturday, April 17, 2004 5:30 PM CDT
Cheryl, Evline is a lucky little baby to have a Grandfather and Grandmother who love her as much as you all do.Anyone who says any different DONT know what thier talking about.You and Jeff keep up the good work of taking care of Evline.Love and Prayers.We Love You All.
Flossie & Gill Smith <flossie619@aol.com>
Somerset, Ky USA - Friday, April 16, 2004 4:17 PM CDT
HI TAMMY I HOPE THAT WE CAN MEET SOON SO THAT WE CAN SEE THAT BEAUTIFUL EVLINE SHE IS SO BEAUTIFUL.KATILYNN WOULD JUST LOVE HER.I HOPE EVRYTHING IS GOING GOOD AND EVERYTHING IS GOOD WITH U GUYS AS WELL TALK TO U SOON HUGS AND KISSES
KATHY AND KATILYNN <katilynnsmom@yahoo.com>
TOMAHAWK, KY USA - Thursday, April 15, 2004 9:58 PM CDT
To the blue dominus: I feel sorry for people like you. You should be thinking of other things to do besides running people down. Especially when they're going through so much. This is a little baby who hasn't done anything to anyone. She is precious to all of us. You should be real thankful if you have any kids they are healthy. But don't think for one minute that something can't happen, because it can. To you, to us, to anyone. We should help people not run them down. The last thing they need is to be accused of something like this. We are praying for you. I really don't think you understand what you have done. If you can't pray for us or the baby don't stand in judgement of something you know nothing about. Just for the record any money for her goes on her. This is my daughter and I raised my kids to respect, to care and to help others and not to stand in judgement of anyone. We know how people are by the way they act. Actions do speak louder than words. These people that are coming on her site are a lot of support for us. These are good kind people. We thank God for them everyday. We are only asking for prayers for her. The only thing that will help her is prayer. If the Lord doesn't move we may lose her. She is my great grand baby and she is very close to my heart. God will forgive you for this and so will we. We may not know you but God does. It is a very dangerous thing to fall into the hands of God and go against his people. So we are praying for you and we ask that other people pray for you also. And pray to God the next thing you write whether it be for Evline or anyone else pray it will be something nice. If you don't want to pray for all these sick then you can't help us. To the people who have wrote and said prayers we thank you and God will bless you. It helps so much to see people write and know that there are lots of people out there who care. Please keep praying for her and writing. Thank you and may God bless.

Evline's Great-Grandmother, Cheryl's Mother Anna McQueen

Anna McQueen <fordgirl408492000@hotmail.com>
Lejunior, Ky USA - Thursday, April 15, 2004 4:05 PM CDT
Just wanted to say hi.
Someone
Somewhere, OH USA - Thursday, April 15, 2004 7:39 AM CDT
I have written a reply to BlueDominuss on the front page for everyone to see. If anyone has any questions or concerns, and I do mean any questions, please feel free to contact me. If you want to do so privately or anonymously, you can contact me by e-mail at evlinethomas@yahoo.com. I would like to thank everyone for their kind words and prayers. Don't forget to pray for BlueDominuss and people like that when you pray. We all need prayers and GOD can soften the hardest heart. My love to all and stay well.
Cheryl <evlinethomas@yahoo.com>
Evarts, KY USA - Wednesday, April 14, 2004 5:11 PM CDT
A wedding, an illness, a fight to get better.... this is life! We all continue to live each day to the fullest and enjoy the sweet moments of each day. Kind thoughts heading your way!!

Janelle (Alli's Nana)

Janelle Schumacher <shoe111550@yahoo.com>
- Tuesday, April 13, 2004 9:05 AM CDT
Hey just checking in with you guys. Give the baby a hug and kiss from us and tell her we love her. If you need us we're always here. By the way that was a sweet poem on her home page. We love you all. Love Renae, Rat & Bre
Renae Jones <boltman@mikrotec.com>
Lejunior, Ky USA - Monday, April 12, 2004 8:33 PM CDT
Blessed Easter!

Janelle (Alli's Nana)

Janelle Schumacher <shoe111550@yahoo.com>
- Sunday, April 11, 2004 4:51 PM CDT
I'm sending you a special prayer for your Uncle Jack. I also hope that Evline is better!!

Hugs, Janelle (Alli's Nana)

Janelle Schumacher <shoe111550@yahoo.com>
- Wednesday, April 7, 2004 1:43 PM CDT
I come in here often to check on Evline.She is loved so very much by everyone.So here is something I want to say. [Today I prayed for Angels to keep watch over you .To guard and protect you in everthing you do.Then I whispered to the Father I asked him to bring a touch of love and goodness sent forth on Angels wings.So if you feel the brush of wings or a soft breeze fill the air.Just know its Angels watching over you.Because of whispered prayers.]Give Evline a hug and kiss for me.Love you all
Flossie Smith <flossie619@aol.com>
Somerset, ky USA - Tuesday, April 6, 2004 10:28 AM CDT
Evline....(who looks so much like my Granddaughter Allison)...just checking in to catch any updates. I want you to know that I think of you often and send you all my positve thoughts!!

Hugs, Janelle (Alli's Nana)

Janelle Schumacher <shoe111550@yahoo.com>
Fargo, ND USA - Monday, April 5, 2004 10:12 AM CDT
I just wanted to let you know that if there is anything i can do for you. Don't hesitate to ask. When Austin was having his problems i thought i was going to lose my mind. But I know God healed him!!!!!!!!! And he can do the same for Evline. We will be praying for her.
Tonya Cornett <hobert3@hillbillymail .com>
HOLMES MILL, ky usa - Friday, April 2, 2004 6:45 AM CST
Cheryl,I miss getting to talk to you. You and your family are in my prayers. Call if you need me or if you just need to talk Love Kathy
Kathy Black <kblack@kceoc.com>
Mary Alice, Ky, Harlan - Monday, March 29, 2004 2:01 PM CST
Hey guys just checking in. Give the baby a hug and kiss from all of us. We love you all. If you need anything at all we are always here. Love Renae, Rat & Bre
Renae Jones <boltman@mikrotec.com>
Lejunior, Ky USA - Friday, March 26, 2004 5:50 PM CST
hello i really dont know what to say cause ive never delt with anything like what she has but i will tell u one thing an that is to believe an hold faith never let it go .if any thing can help one of GODS children its prayers,believivg,an faith.God bless you guys,GOD bless evline remember dont give up an the good lord is on her side love you guys,evline love teresa an brooklyn middleton
teresa middleton <ranestes@bellsouth.net>
wallins, ky harlan - Sunday, March 21, 2004 12:52 AM CST
Hey guys just checking in. We love you all. Give the baby a hug and kiss from us. Tell her we love her. And we're always praying for her and all these other angels and their families.
Renae Jones <boltman@mikrotec.com>
Lejunior, Ky USA - Wednesday, March 17, 2004 7:14 PM CST
Have a great start to the week! Thinking of you Evline!

Janelle (Alli's Nana)

Janelle Schumacher <shoe111550@yahoo.com>
- Sunday, March 14, 2004 10:40 AM CST
've been follwing up on sice you first put up your page. I'am very happy to hear that Evline received her first ERT and had no breathing issues. I also have a baby girl name Ashley who was also diagnosed with Hurler on Nov. 17, 2003. Ashley already got her unrelated cord blood transplant in Duke University. And is doing very good. Our website is caringbridge.org/ny/ashley I wish you all the best I would like to tell you this: BELIEVE IN GOD HE IS IN CONTROL OF THIS WHOLE SITUATION THAT HE HAS ALLOWED FOR EACH AND EVERYONE OF OUR CHILDREN TO BE IN!!! I have to say to you I was really afraid when I was told what my baby had but GOD HAS LEAD THE WAY FOR US SINCE DAY ONE AND HAS ALLOWED ASHLEY TO RESPOND VERY WELL WITH HER TRANSPLANT ALONG WITH OTHER CHILDREN WHO HAVE HAD THEIR TRANSPLANTS DONE ALSO I KNOW EVLINE WILL BE FINE. BELIEVE IT AND DON'T LOOSE HOPE. BUT MOST IMPORTANT ASK GOD FOR GUIDANCE LIKE I DID. GOOD LUCK!!!!
Angela&Ashley <Angela_ROsario9@hotmail.com>
Durham, NC USA - Friday, March 12, 2004 2:29 PM CST
When I was pregnant and scared of giving birth everyone would tell me how after you see your wonderful sweet baby you would forget all of the pain of labor. Well I think the same is true for transplant. Once everything is done and over with you will look at your beautiful baby and think of the wonderful life that lies ahead of her and it will make the pain of transplant seem like a distant memory. You will never forget the experience but you will see it for what it was really worth, LIFE!!!!!!!!!!!!!
Trisha Athy CARINGBRIDGE.ORG/IL/AARONATHY (hurlers) <aaronsmom1027@sbcglobal.net>
Belleville, IL USA - Friday, March 12, 2004 10:18 AM CST
hi guys just wanted to let you know that we are finally home we home today thank god i am so tired but i am sorry that we missed you guys and hopefully we will meet next time so i will check back later.katilynn is feeling better and running around everywhere.thank you for your prayers
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Friday, March 12, 2004 10:09 AM CST
Yea! One down and no troubles...that's great!! I, too, print out all the entries that my daughter updates on Alli's website. I really think that Alli will enjoy reading all about her journey from the get-go. It really is a book of her life.
Keep strong Evline!

Love, Janelle (Alli's Nana)

Janelle Schumacher <shoe111550@yahoo.com>
- Friday, March 12, 2004 7:54 AM CST
I am so glad Evline's infusion went well! I will pray for them to continue to go well! Allison has had 42 infusions and no reactions! Yeah Evline! Congrats on your first infusion!
Love,
jennifer

Jennifer Restemayer www.caringbridge.org/nd/allison <jennmarie@bis.midco.net >
Bismarck, ND Usa - Thursday, March 11, 2004 4:27 PM CST
Such a beautiful baby. I'll be saying prayers for her and for the best possible treatments for her well being.

I would like to invite you to visit Smile Quilts http://smilequilts.com and see if we can make a virtual on line Smile Quilt just for you. If you would like a Smile Quilt, just have your mom fill out the request form and we would be happy to send some smiles and hugs your way. Sending you lots of hugs and I will be keeping you in my prayers. Hugs, Angel Sprite




Smile Quilts Angel Sprite <smilequilts@smilequilts.com>
Eckert, Colorado USA - Monday, March 8, 2004 0:00 AM CST
Hello

Best wishes from Kerry,Sandy,Danielle,Pete,George,April,Willie(me),Wilma,Josh and Sheba.

Willie Middleton <themiddleton@hotmail.com>
New Tazewell, Tn U.S.A. - Sunday, March 7, 2004 11:53 AM CST
Good Sat. Morning! Well wishes for Monday.

Janelle (Alli's Nana)

Janelle Schumacher <shoe111550@yahoo.com>
- Saturday, March 6, 2004 9:23 AM CST
Hey sis I come in here pretty often but I have only signed in once,I hope everything goes good Monday i wish we could be there with you but you have our hearts and prayers with you.I know everything is in Gods hands now and it is up to him what happens now.I know God will do what he sees best but I just prayer he lets us keep our angel here for a good long time.Because she is a angel.Give Evline hugs and kisses for me and tell her I love her tell her Monday after they get done we love her with all our hearts.....Love her Great aunt Gloria and Great uncle Glenn
Gloria and Glenn Fraley <sweetnsassy40849@yahoo.com>
Lejunior, KY - Friday, March 5, 2004 11:19 PM CST
Thank you all..Evline I love you more than I could ever say or show you....All my prayers and love...Great Granny AnnaBelle,Step Great Grandpa Earl,In loving memory of Great Grandpa Noble Stewart,And love and prayers from Great Great Grandpa Johnnie and in loving memory of Great Great Granny Snobia...We all love you sweetheart And may God bless all of you out there I know your prayers are going up tp God... With love to all of you...God Bless All..
Anna McQueen <sweetnsassy40849@yahoo.com>
Lejunior, Ky - Friday, March 5, 2004 11:12 PM CST
hi cheryl and evline
thank you for signing katilynns web page and we cant wait to meet you all to sunday or monday with luck we can both days its always great to find friends among all this heart ache and worry and to have people that know what we are going through i hope that together in this there will be great things come from it hugs and kisses kathy and katilynn see you all soon

kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Friday, March 5, 2004 3:01 PM CST
Sending you warm thoughts from North Dakota! Evline is in my prayers.

Janelle (Alli's Nana)

Janelle Schumacher <shoe111550@yahoo.com>
- Thursday, March 4, 2004 6:39 AM CST
To the sweetest step great granddaughter a man could have you have brought so much joy to my life I love you very much you are the sweetest little angel in the world.Love your Step great grandpa Earl
Earl McQueen <Glennskylady@aol.com>
Lejunior, KY - Wednesday, March 3, 2004 11:26 PM CST
To our little Angel We love you so much.You are a great joy to our lives.you are so precious.We love you so much and all the prayers in the world go up for you.Love your Great Granny AnnaBelle and In loving memory of you GreatPapaw Noble.he would have enjoyed you so much.
Anna McQueen <Sweetnsassy40849@yahoo.com>
Lejunior, KY Us - Wednesday, March 3, 2004 11:22 PM CST
Hey guys just checking in on the baby. We are always praying for her and all of you. Give her a hug and kiss from us and tell her we love her. If you need us we're here. And we're especially praying aout Monday. Take our love and prayers with you guys. We love you all.
Renae Jones <boltman@mikrotec.com>
Lejunior, Ky USA - Wednesday, March 3, 2004 8:13 PM CST
cheryl and evline i just wanted to stop in to check on you all i hope we get to meet in cincinnati march 8th if you need to talk or anything feel free to call me and i will call you right back i hope everything is going good and that evline doesnt get a cold or anything we will be leaving sunday and staying at the holmes on eden sunday night i dont know how you all travel if u do everything in one day or like us leave a day early here is my number if u cant find it 606-298-0096 hope to talk to you soon hugs and kisses kathy and katilynn
kathy and katilynn preston <katilynnsmom@yahoo.com www.caringbridge.org/ky/katilynnsmom>
tomahawk, ky usa - Wednesday, March 3, 2004 7:54 PM CST
Cheryl,
I thought the worst thing I would ever go through was the loss of my baby (to a misscarriage), but I dont think I could begin to imagine the pain you all are going through. I look at Evline and I see more than just a syndrome I see the gift of GOD and GOD has given you a beautiful gift, she is so very precious. Only GOD knows what is in store for her, and any one for that matter, but I see the love in the pictures and I will keep her in my thoughts, just remember even when you dont understand "WHY?" GOD does and all you can do is put it all in his hands. I hope to be able to come visit before to long because if I can hold her she will put a warmth in my heart that I could not explain. Please let me know if there is any thing I can do. LOVE YOU ALL

Jenn <jenntennkelly@yahoo.com>
Tazewell, TN USA - Wednesday, March 3, 2004 5:42 PM CST
From a cousin who has ask friends to pray for her all my hope is with you all
Jennifer Kelly
Tazewell, TN USA - Wednesday, March 3, 2004 5:11 PM CST
Evline is beautiful, she's growing, we keep her in our thoughts and prayers cheryl.
Flora <condorsr@bellsouth.net>
Bean Station , Tn Grainger - Monday, March 1, 2004 5:02 PM CST
Warm thoughts heading your way from North Dakota! We all hope the breathing will be with ease and no operation will be necessary. Be positive and we'll help!!

Janelle (Alli's Nana)

Janelle Schumacher <shoe111550@yahoo.com>
- Monday, March 1, 2004 2:59 PM CST
Hey Guys just letting you all know we love you all very much and we are always thinking of you all. Give the baby a hug and kiss from us. And tell her we love her. We pray for her and all these angels from God every night. If you ever need us for anything we're always here. Love you all. Talk to you all later.

Renae, Rat & Bre

Renae Jones <boltman@mikrotec.com>
Lejunior, Ky 40849 - Sunday, February 29, 2004 10:12 AM CST
PRAYING FOR YALL. CAME BY YOUR SITE FROM REESECUP. I WILL BE CHECKING IN OFTEN. PRAYERS FROM VIRGINIA
PENNY CLARK <wonkoolmom@yahoo.com>
BASSETT, VA - Saturday, February 28, 2004 4:56 PM CST
Cheryl i finally got to see the most precious baby GOD has
blessed this world with &soon maybe the heavens if it is his will. If you need me or i can do anything for please call day or night. all my love and prayers for EVLINE and family. love always JESSIE AND ARNOLD & JENNIFER,PECOS,CHRSTIE,J.R.TONYA We love you all
forever

JESSIE & ARNOLD & KIDS FOREVER <cyindylynn@yahoo.com>
Tazewell, TN Claiborne - Saturday, February 28, 2004 12:45 AM CST
On my first visit to your site, thought I should let you know I'll be praying for answers and advances for Evline. She is a beautiful little girl, and I know how your heart must ache. Know that she is in my prayers, and the prayers of many others in this caringbridge community. Praying is all that we can do, sometimes, and it is also all we NEED to do. Trust that early diagnosis will surely help Evline, and keep searching until you get a doc that you can truly believe in. You have to trust your heart, and trust that God will lead you to the right doctor.
Praying in Missouri...

Jennifer Naeger www.caringbridge.org/mo/butterflyty <jnw_jnn@hotmail.com>
- Friday, February 27, 2004 7:43 AM CST
Dear Cherly,
My name is Anne Himes and my son Andrew has Hurlers too. He had a unrelated cord blood transplant at Duke about 2 and 1/2 years ago. I am so glad that you were able to get Evline diagnosed so early. I am glad you kept pushing and that you got a good geneticist. Ours told us there was nothing to be done and we should just go home. Even after he found out we were planning to have a BMT, he advised against it. Boy was he wrong. Andrew is making all kinds of progress and is full of energy. Please feel free to check in on us and write me at any time. Love, Anne

Anne Himes <arhimes@ msn.com, www.caringbridge.org/page/andrewh>
Boonsboro, md USA - Thursday, February 26, 2004 6:38 PM CST
Dear Evline and parents,
Just wanted you to know that your precious daughter will be in my prayers. Jeanne is correct in her entry down below, the Hurler Family Tree is very comforting and helpful to each other. You are not alone! I'll be checking in regularly on your little pumpkin! My good friend's little girl also has Hurlers and is now receiving ERT too. I've come to know so many other families through her and I must say these special kids have changed my world! I am so blessed to know them!

Lisa Post <ltjpost@cox.net>
South Windsor, CT - Thursday, February 26, 2004 1:52 PM CST
Just wanted to welcome you to The Hurler World...besides all of the medical things that go along with Hurlers and the treatments and therapies, the families are WONDERFUL and the children are AMAZING! I am sure this is not the path that your family would have chosen, but it is the one that God has chosen for you. We do not know why we were given this path, but it great and we have found so many blessing in it. Keep your faith in God and know that you have many Hurler Families to lean on when you need them and will help you in any way possible. May God Be With You. Hugs and Kisses from Riley and Sydney in Oklahoma.
xoxoxoxox.......Jeanne

Jeanne Joiner <jeannejoiner@hotmail.com caringbridge.org/ok/rileybear>
Del City, Oklahoma USA - Thursday, February 26, 2004 10:44 AM CST
Cheryl, you have done an amazing job with your site and sharing your knowledge of Hurler Syndrome. Until you told me about it I had never heard of it. I will keep Evline and your entire family in my prayers. I think of you all often. God bless you. Much love to you all.
Laura Parker
Rutledge, TN USA - Thursday, February 26, 2004 10:04 AM CST
Dear aunt Cheryl and uncle Jeff (Jerry Lee & Tammy),
We all wanted to say we love all you guys and we miss you.We hope everything go's good for Evline.God has a plan for everyone.Dad is doing ok and he really misses all of you all.We havent kept in touch much over the past nine years but we could never forget you guys.We think of you all every day and hope things start to look up for Evline.Call and let us know how she is doing and we will let you know about daddy.We LOVE YOU ALL.

Cindy Middleton <cyindylynn@yahoo.com>
Tazewell, Tn. Claiborne - Wednesday, February 25, 2004 8:43 PM CST
Hey aunt Cheyrl!
How's my favorite cuz? Well I went on some of the other websites to see some of the other kids that has hurlers. I just wanna say Im praying my heart out for evline and every one else.

Latisha <way2kool01@hotmail.com>
Evarts, ky Harlan - Wednesday, February 25, 2004 1:05 PM CST
The picture that is posted on the front page is the same day my Reese was supposed to turn two. He also was diagnosed with Hurler. August 1, 2002 at six months of age, the answers came pouring in... finally there was an explaination as to why he had scoliosis, kyphosis, hearing loss, the breathing issues, and the shape of his head. At the time, ERT had not been approved so we headed to Duke for a BMT. He did receive his BMT on December 5 and engrafted well. He was a success... until a virus attacked his lungs.. a virus he would not recover from. On March 10 2003, my little "Reesie Cup" went to heaven to be with our Lord. I miss him terribly but I'm glad he longer has to suffer from this terrible disease. He's visited me a few times in my dreams to let me know how well he's doing.

I still keep his caringbridge journal and I also still keep up with many other Hurler children. I pray for them everyday. I learned of Evline through Allison May's site. I will also mention your sweet child on Reese's and continue to check in and pray for her. I'll make sure Reese is aware of her and ask him to watch over her. She is adorable and reminds me of Reese. We have all been blessed with these special little people God has entrusted us with.

Sending hugs from NC and kisses from heaven....

Shawn, Taylor, & ^^REESE^^ Coble (www.caringbridge.org/nc/reesecup) <selboc@aol.com>
Winston-Salem, NC - Wednesday, February 25, 2004 10:10 AM CST
Hey Cheryl just wanted to let you know I love you all. And I am always here. Give the baby a great big hug and kiss from Great Aunt Renae, Great Uncle Rat and cousin Bre. We love you all and we pray for her every night. Just remember God always has his hand on her.
Renae Jones <boltman@mikrotec.com>
Lejunior, Ky USA - Tuesday, February 24, 2004 1:33 PM CST
Cheryl, Lots of information...time will tell exactly what will improve. Hard to wait and see and there are so many decisions to make. There are a lot of parents who have gone this path before Evline's journey. Take heart that there is such a support group out here (a click away!!).
Care to your family.

Janelle (Alli's Nana)

Janelle Schumacher <shoe111550@yahoo.com>
- Tuesday, February 24, 2004 8:28 AM CST
Hi, my name is Gina Shuler and my son Jack has Hurlers too. Jack was transplanted last May with a stem cell transplant at Duke Univ. in Durham, NC. Please talk to them before you make any decisions. Jack had all of the same symptoms as your little one. Now, Jack is producing normal enzyme levels and is expected to live a long healthy life. Please contact Dr. Kurtzburg. Go to there website. They are the worlds leading center for stem cell transplants and are having amazing results in saving childred. Good luck! Contact me if you want to talk or have questions! www.caringbridge.org/mo/jackshuler
Gina Shuler <ginashuler@sbcglobal.net>
springfield, mo usa - Monday, February 23, 2004 9:13 AM CST
Hi Cheryl, Just checking in to let you know that I am staying in touch. Hope the weekend went well and have a great start to the week!

Love, Janelle (Alli's Nana)

Janelle Schumacher <shoe111550@yahoo.com>
- Sunday, February 22, 2004 6:09 PM CST
Hi my name is Trisha Athy and my son Aaron is one year post cord blood transplant for Hurlers Syndrome. I came just came across your webpage today via Allison Restemeyer's webpage. I hope all goes well with the ERT!! I don't know you have decided to go ahead with a transplant but if you have we will be praying for you all of the way!!! Aaron did wonderfully and I hope the same goes for Evline!!!! I will keep checking in on her. XOXO
Trisha Athy CARINGBRIDGE.ORG/IL/AARONATHY <aaronsmom1027@sbcglobal.net>
Belleville, IL - Saturday, February 21, 2004 12:22 AM CST
hi cheryl and evline
i am glad everything is starting for you guys.guess what we go to childrens on mondays to maybe it will be the same time katilynns treatment is to .maybe we can meet that would be great.evline is a beautiful baby.callme when u want to here is my # just in case u dont have it 606-298-0096.we will be living sunday for cincinnati.i will check back on you again soon.hugs and kisses kathy and katilynn

kathy and katilynn preston <katilynnsmom@yhaoo.com>
tomahawk, ky usa - Friday, February 20, 2004 5:23 PM CST
Cheryl, Evline is precious. I will keep her and your entire family in my prayers.
Tish Coldiron <tcoldiron@kceoc.com>
Harlan, Ky - Friday, February 20, 2004 11:59 AM CST
Reading your story made me cry. I remember that feeling like it was yesterday. It brakes my heart to see another baby diagnosed with MPS. The good news is ERT is now available. YEAH!!! I will keep you in my prayers and your beautiful daughter Evline.
Hugs,

Tami www.caringbridge.com/ca/slawson <TLSlawson@aol.com>
La Verne, CA - Friday, February 20, 2004 10:19 AM CST
Cheryl, Your family is in my prayers. She is beautiful!
Becky Miller <bmiller@kceoc.com>
barbourville, ky us - Friday, February 20, 2004 9:52 AM CST
Cheryl,I will never forget the day that you showed up at the hospital in Lexington. It was at a time that I needed to see a friendly face. I want to thank you again. I will be praying for the baby and if you ever need anything don't hesitate to call me.
Erma Howard <ehoward@kceoc.com>
Maryalice, Ky Harlan - Friday, February 20, 2004 6:38 AM CST
This is such a beautiful child..My thoughts and prayers will be for y`all..I dont no who you are , but GOD knows all...GOD BLESS THIS CHILD..!!!!! AND THE FAMILY
lois
Harlan co, ky - Thursday, February 19, 2004 5:48 PM CST
I am so sorry to hear of Evline's diagnosis. Thank you for checking on my Allison. She started Aldurazyme in May of 2003. If you have any questions that I can help with please contact me. I wish you the best and will pray that everything starts getting better from here!
Love,
Jennifer

Jennifer Restemayer www.caringbridge.org/nd/allison <jennmarie@bis.midco.net>
Bismarck, ND Usa - Thursday, February 19, 2004 2:26 PM CST
hi evline you are a beautiful baby my grandbaby katilynn has hurler1 she is taking her ert in cincinnati i think she has the same docter you have she is doing good she will b 3 this may.her web page is www.caringbridge.org\ky\katilynnsmom you will b in my prayer that soon thay will fine a cure for this. god bless you all
frances sweeney <francesmccoy2001@yahoo.com>
lovely, ky - Thursday, February 19, 2004 1:23 PM CST
My son is almost 3. He spent a while in the hospital at Johnson City. You are in my prayers. Keep praying---I've seen it at work. God Bless you and your baby.
Brandy Canady <bcanady@harlan.k12.ky.us>
Evarts, Ky USA - Thursday, February 19, 2004 11:39 AM CST
Cheryl, Thank you for your kind words on my Granddaughter's website. We are all in this together so I have added Evline's site to my favorites! Please know that this is a wonderful line of communication among all of us who have been affected by MPS1. You all will find lifelong friends amoung us with support when you so need it. We laugh, we cheer, we cry- all with the best of support possible. Evline looks so much like Alli when she was that age. Hugs to all of you and I look forward to checking in on a regular basis.

Your Friend...Alli's Nana, Janelle

Janelle Schumacher <shoe111550@yahoo.com>
Fargo, ND USA - Thursday, February 19, 2004 9:55 AM CST
Dear Cheryl and family, Our prayers are with you daily. If you need us, please feel free to call on us anytime. I appreciate you and all that you have done for OUR family. Thank you for being such a wonderful teacher to OUR grandchildren. God Bless You. Donna and Raymond Cox 664-2157
Donna Cox <donnak.cox@kctcs.edu>
Wallins, KY United States - Wednesday, February 18, 2004 7:50 AM CST
I will keep her in my prayers. She is beautiful and I will be thinking of you and your family
Love Always.

Mitzi Hubbard
Barbourville, Ky. KNOX - Wednesday, February 18, 2004 7:49 AM CST
Your in my thoughts and prayers. If you need anything, please let me know.
Samantha Brock <sbrock@kceoc.com>
Harlan, Ky - Wednesday, February 18, 2004 7:45 AM CST
Cheryl and Family my prayers are with you all. LeeAnn is a beautiful baby and I am glad you have this page set up for us to keep tabs on her progress. Your working pal. Monica Bryant
Monica Bryant <mbryant@kceoc.com>
Harlan - Wednesday, February 18, 2004 7:35 AM CST
Cheryl&Jeff,I know there isn't anything I can say that will make things better.But I want to let you know I love you all very much.With our prayers God can heal this small angel he gave us.With God by oursides all things are possible.Jerry&Tammy I love you guys to didn't mean to leave you out.Sis just remember what Dad would tell us in a case like this,"Let God handle it" I love you all .
Gloria Payne <sweetnsassy40849@yahoo.com>
Lejunior, Ky USA - Tuesday, February 17, 2004 11:22 PM CST
My thoughts and prayers are with your family and especially your beautiful angel. She is the most beautiful baby and I hate to see a child suffer the way she is. I have a 2 year old and he is healthy, so I am thankful every day. God Bless You!!
Ashley Cole <bybocole@aol.com>
Wallins, KY - Tuesday, February 17, 2004 3:57 PM CST
If you need us, just call.
Mary Smith <msmith@kceoc.com>
KCEOC, - Tuesday, February 17, 2004 3:57 PM CST
I am keeping Evline in my prayers.
Rhonda Martin <rmartin@kceoc.com>
KCEOC, - Tuesday, February 17, 2004 3:56 PM CST
Cheryl, she is such a doll; she looks just like your son. I had no idea she was as ill as she is. You know I will be thinking of her and you as well. If you need me for anything I am just a phone call away. We LMU girls have to stick together. I love you. Melody.
Melody Belding <smelody69@yahoo.com>
Lynch, Ky usa - Tuesday, February 17, 2004 9:23 AM CST
I am so sorry to hear about your grandbaby and we will pray for her.
she is a pretty baby and she looks like her daddy

Melody and David Clutts and Family <dclutts@kih.net>
Cumberland, Ky USA - Monday, February 16, 2004 9:46 PM CST
cheryl my thoughts and prayers are with you and and your family. she is such a beautiful baby!
karen hendrickson <bkhendrickson@kih.net>
partridge, ky letcher - Monday, February 16, 2004 6:59 PM CST

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