Welcome to Sophie's web page. Sophie was diagnosed with acute lymphocytic leukemia on July 25th, 2002. This site is for our family and friends to get the latest news on how Sophie is doing as she progresses toward recovery.

Please sign Sophie's guestbook so we will know you stopped by. Thanks!



***10/31/04 - Added a few pictures of the kids on our family homepage. Check them out here.***

Journal

Friday, February 11, 2005 3:17 PM CST

Please forgive us for the length of time since our last update. We have wonderful news that we want to share with everyone. Sophie came off treatment Wednesday, Feb 2nd. Hallelujah!!! I'll admit that we were very nervous before her lumbar puncture and bone marrow aspiration but thankfully, everything came back clear and Sophie was allowed to stop her chemo meds. The only problem was her liver funcion test came back higher than ever so they will keep a watch on those. As the meds work their way out of her system those liver numbers should come down. Sophie will still be taking her bactrim on the weekends for about 6 more months just as a precaution. She will also receive several of her vaccinations over again, in about a year, due to the chemo interferring with the immunities from her previous vaccinations.

We took Sophie to the Galleria after her clinic visit. We went to the Build-A-Bear workshop and she got to make her very own bear. Of course she picked a purple bear and dressed her in a sparkly, long pink dress (such a girl). She named her Olivia. I'm sure Olivia will be special reminder to us of this day. Sophie also got to enjoy a couple of carousel rides. Suprisingly, Liam wasn't as fond of the carousel.

We also want to mention that Clinic 5 is now Clinic 8 at Children's Hospital. They Finally moved into their new clinic! It is so much larger and so much thought went into the comfort of the patients and their parents. Soon they will even be doing the sedations in clinic instead of in the 2nd floor procedure rooms. That will be really nice. I'm sure all current and future patients will appreciate the new facilities.

Now we want to thank everyone that has prayed for Sophie and our family over the past 2 1/2 years. We can never thank you enough. We know that our journey is not over. Sophie will be going to clinic monthly for the first year off treatment for bloodwork and check-ups. We know that we will have to learn to live with the nagging fear of relapse that will always be in the back of our minds and that we will have to continue to take one day at a time. We pray both of our children are able to live happy, healthy, and long lives. May God bless you all for your faithfulness.

We would also like to say a big thanks to everyone at Clinic, 4-Tower and Simon Sedation for everything they have done for Sophie. They are all very special people. We are so glad that they all chose to be there and make a difference in the lives of children. I don't know how they do what they do but I know we will be eternally grateful that they do it.

It may be a little while but, hopefully we will get some new pictures on the website soon. And we may still periodically update to let you know what Sophie thinks of life off Chemo. May God Bless you all!!

The Knights

P.S.

There are so many children and families going through what Sophie has been through and worse. Please remember them. Pray that one day soon there will be a cure.

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E-mail Author: knight5@comcast.net

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