More importantly, we just wrapped up Emily’s scans!  They were on 2/22 and 2/23. MRI was on Tuesday, which went quick and allowed us to be home by lunch time.  Wednesday, we had our clinic visit first. Everything went great—Emily had a great check-up and everyone cannot believe how big she is getting and how mature she is (proud mom and dad 🥰). We discussed next steps in her treatment and follow-up plan, which I’ll get to in a minute.  We then had her MIBG. This scan has been about 3 hours long the past few times, but this time, the machine decided to act up—twice. This caused the scan to be about 5-6 hours long.  Long and tough day for everyone, but Emily was a trooper.  

This morning, we heard back from the clinic that both scans looked clear and show no evidence of disease!!! This is HUGE because she is now two years off-treatment!  Going forward, she won’t need scans for another year!  As far as clinic visits, Emily’s protocol only “requires” them every six months, but after speaking with Dr. Boal and Mary Jo, we all agreed this is quite a bit of a jump, so we’ll continue clinic visits every 2-3 months for now to keep everyone’s minds at ease. What we have learned (and many of you probably know from Google) is that the farther out from treatment we get, the less likely we are to see the Neuroblastoma return.  Two years is a huge milestone!  We are so thankful for everyone’s thoughts and prayers.  

As Emily said last night when we got home, “today wasn’t a very fun day. I loved seeing everyone, but I just didn’t get to play with them enough. Can we go back to the hospital to play with them again?”  We are lucky to have an amazing team take such great care of her. We will update in about 3 months during her next clinic visit!