I just wanted to update everyone on how Nehemiah is doing. He is almost 7 months now! We just got back from Mayo for a follow up appointment, at which the doctors were very impressed with his progress and how well he is doing. In fact one of the neurologists that had seen him in the hospital, came to his appointment and just marveled at how well he is doing and how big he's gotten. They are against weaning him off of the ketogenic diet because although there is no diagnosis, they are nervous that if his seizures were to come back, he would regress in his development and since he is doing so good, let's keep going. We agreed, however the plan is to take him off the end of April of next year, so that he can eat regular birthday cake! We will get some meal plans for him though now that are "ketogenic". It will be a mix of baby food, a meat, and butter...mmmm...sounds yummy:) He is 16 pounds now and growing. Also, his physical therapist came this morning for her visit and said that Nehemiah is doing the best she has ever seen him and he is right on his way to catching up! Great news all around. I am going to try to put some new pics up too. Thanks again for all of the support you guys have graced us with, we really do appreciate it:) Love TBN:)
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