Alysa Dye
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ANGELS FOR ALYSA

Hello, my name is Alysa Dye. Recently my family found out that I have a rare genetic disease that mostly affects children. It is rare because both of my parents have to carry the gene. I have two older brothers and thankfully they are healthy so I can annoy them as much as I want....and get away with it.

I Thank You, my "Angels for Alysa", for your help!!

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  FRIDAY, AUGUST 29, 2008 08:09 AM, CDT
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Alysa had her testing to get in school. They said I will get a leter to come to her IEP meeting in the next few weeks. She had fun playing with all the toys.

Alysa is getting botox on Sept 4th now. They had called and said Sept 9th but then called back and said that they needed to change it to Sept 4th. Alysa will be staring PT 2x a week after that. I just found out that the Infant and Toddlar program will do it 2x a week they just need to fill out some paperwork.

I also found a doctor that will makw her new frames for her glasses. We will be going there next week to pick out a frame. This place takes kids starting at 2 years old.

I have to go for now. Thanks for checking in.

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HOSPITAL INFORMATION
Children's Hospital - D.C.
DC
United States