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Welcome to Lizzie's Page

Lizzie and Matt, StJude, 2003
sadly, we lost Matt 04/08
Lizzie is a 7 year Germinoma Brain tumor survivor. She underwent surgery for biopsy at Johns Hopkins Hospital, in Baltimore MD, with Dr
Jon Weingart, in Feb of 2001. Lizzie had 5 rounds of chemo in Norfolk at Childrens Hospital
of the Kings Daughters throughout several months of 2001, struggling through many bouts
of infection, blood transfusions, and an agressive fungus..she had clean scans for several months,
however unfortunately relapsed in April of 2002...after consultation in New York, we ended
up at St Jude Childrens Research Hospital, in Memphis, Tennessee, with Dr Thomas Merchant
and completed Cranio-spinal radiation in the summer months of 2002. Lizzie now has clean scans, and Dr Merchant has not had a germinoma "fail", so, we do not plan to be the first. This summer, 2008, marks Lizzies six year out of treatment year..what an unexpected relief.. This journal is about our family, our strength, and is a testament to our several years of a new life...one of knowing what matters and is meaningful. Our lives are oddly blessed...Our children...Rebecca(and her fiance Mike), Julia, Vic and Lizzie are all touched by this journey, and the strength shown here is everyones.

Journal

Monday, August 25, 2008 5:41 PM CDT

HEY EVERYONE,HOPE YOU ALL ARE DOING GREAT.I'M DOING WELL TOO.I STARTED SCHOOL TODAY, AND IT WENT GREAT.I REALLY LOVE THE TEACHERS AND THE CLASSES A TON.MY DAD AND I GOT BACK FROM CHILI ON SATURDAY,IF I DIDN'T ALREADY TELL YOU THAT.WE HAD A GREAT TIME.I THINK THAT I MIGHT GO BACK THERE NEXT SUMMER, OR SOME TIME SOON.WE (MIGHT) GET OUR PUPPY THIS COMING WEEKEND.WE ARE ALL SO EXCITED.HE IS SO SO CUTE.WE SAW PICTURES.WELL THATS IT FOR NOW.I WILL TELL YOU ALL FOR SURE IF WE ARE GETTING OUR PUPPY THIS WEEKEND.THANKS SO MUCH FOR READING MY PAGE.



LIZZIE

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Hospital Information:

Patient Room: none


St. Jude Childrens Research Hospital in Memphis, TENN.
Virginia
please leave journal message..I will answer

Links:

St Jude Childrens Research Hospital  
  
http://www.pediatricbraintumors@yahoogroups.com   an online support group for families with ped. brain tumors..offers info,support and lots of opinions! Way too large a group..


 
 

E-mail Author: jay.dorschel@verizon.net

 
 

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