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JACOB THOMAS DEAL 
Hi my name is Jacob and I am 9 years old. On September 12, 2002 I was diagnosed with Burkitt's lymphoma/leukemia. I relapsed on November 15, 2002. I had my cord blood (bone marrow) transplant on 12-31-02 - New Year's Eve! I then relapsed on February 18, 2003. Please continue to pray that I will stay strong and that with God's intervention I will have a full and healthy recovery.Remember to check out the photo album and sign the guestbook!
Journal
Tuesday, August 12, 2008 8:43 PM CDT For a while now I have been thinking about how it is time to end this webpage for the simple fact that Jacob is doing so well, but then all of a sudden PROBLEMS pop up. It seems like just as soon as we feel comfortable and okay something always comes up and it is really starting to make me angry, sad, and helpless.
Jacob started having really bad "migraines" about 3 weeks ago. In the beginning we didn't have any major concern, I mean we've been treating migraines for over 4 years now, but somehow this time it is different. In the past we could take him to the ER and get treated and he would be fine the next day, not this time. After 4 trips to the local ER, 1 trip to the neurologist, 1 trip to the pediatrician and 1 trip to the ER at Duke, we do not know any more than we did before. He is scheduled for a MRI and a spinal tap next Wednesday, hopefully we will get some kind of answer then. They have given us lots of possible "reasons" but no real answers, and I understand that it takes time but I feel like I am at the end of my rope. I can only imagine how Jacob must feel. Watching him hurt and be able to do nothing to relieve the pain is killing me. Ever since Saturday after our visit to Duke all I have wanted to do is cry. I don't think that there is any disease that has come back but for some reason this time around just doesn't feel like all the other times. I know that Jacob is old enough to pick up on the fact that we are concerned and it just really pisses (sorry) me off that he has to go thru this. I thought that once we got to that 5 year mark we could pretty much put all of this behind us but for whatever reason we just can't do that. Ending this webpage I think will be a way for me to have some sort of closure but I can't do that until we know that Jacob is okay. I know that we are very, very blessed to have him here with us (I still check everyone's sites, I am just awful about signing guestbooks), it is just hard when you have all these questions but no answers. I thank God for everyday that I have him here, and I beg God everyday to make the pain go away, I just keeping telling myself that it takes time.....
But on a more positive note....Jacob will get his learners in December so of course he has been talking about cars! Well, this weekend we took him to look at a 68 Camaro and yes we bought it for him! It has helped to take his mind off of the headaches. He is so excited!!!! I love to see him smile!!!! He is such a good boy-oops- I mean a good young man. He is growing up so fast. He will also be graduating this year. Jonathan will also be graduating. I feel like I am getting so old!!!!! Scott and I are very lucky, we have two awesome young men.
This webpage is kind of like my outlet. So, sorry if it seems like I am rambling. I have had, or we all have had a rough past 3 weeks.
Anyway, I would say I will update soon but I won't lie because there is no telling when I will update again. There just doesn't seem to be enough hours in the day sometimes......until next time....
with love,
Sharon
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