Molly Johnson

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Molly is home!

Journal

Friday, August 12, 2005 10:28 AM CDT

Day +93

Molly continues to do very well and we thank everyone for the constant prayers for her and our family. She has not had any infections or signs of Graft vs Host Disease. A few weeks ago, her doctors thought that she may have Graft vs Host because she was having quite a bit of diarrhea.(which is one symptom ). One of the main treatments of GVHD is oral steroids and Molly’s doctors talked about putting her on this medicine to see of her diarrhea would go away. Instead, we all decided to try taking her off the Magnesium supplements that she has been on which also cause diarrhea. After 5 days of no Magnesium, the problem was gone and we were so thankful that she did not have GVDH and would not need to be put on steroids. We are so thankful to God for His protection of Molly!


We are anxiously approaching Day 100 and looking forward to fewer restrictions on Molly and her diet. 100 days after Molly’s transplant she will be allowed to eat restaurant food, fresh fruits and vegetables, and yogurt. Also, Molly will be able to start school with her class at Scofield Christian School on August 23. She is so excited about going back to school and being with all of her friends. Molly told me that she had so many good memories of school.


Yesterday, at the clinic she had a good checkup. Her blood cell counts are still good and her Magnesium level was still high enough that she does not need supplements. Molly had a great time visiting with all of her wonderful doctors and nurses in the clinic! She will go back every two weeks for now for blood work and checkups. In three months she will have another blood test that will check the number of Matt’s cells and her cells. We pray that all will be Matt’s.

Molly will continue to take preventative antibiotics, anti fungal, and anti viral medicines for 3 – 6 more months. The doctors have told us to begin weaning her from the immunosuppressive drug over the next 5 weeks. She is getting much better at taking all of her oral medicines all by herself!!

Molly’s hair is growing!! She has 5 o’clock shadow and we are all enjoying rubbing her soft fuzzy head. Her hair and eyebrows are coming in very dark and she looks more like Matt now (but much prettier). She is still working on her schoolwork from 4th grade and is anxious to get it all completed.


Please pray:

1) That Molly will not get any infections or virus’s
2) Protection from Graft vs Host Disease
3) That Molly will not have a relapse of Leukemia
4) Molly will have strength and stamina to keep up in school

“My soul finds rest in God alone; my salvation comes from him. He alone is my rock and my salvation’ his is my fortress, I will never be shaken.” Psalm 62:1-2.

Thank you for all of your love and prayers,

Tammy

Hospital Information:

Children's Medical Center
1935 Motor Street
Dallas, Texas 75219

Links:

E-mail Author: dwightj@sbcglobal.net

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