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Kyle hugging Mommy in Ocean City, MD in July 2006. He loved giving me hugs. I loved getting his hugs. I think he was trying to squeeze the stuffing out of me.
Welcome to Kyle's Web Page. It chronicles Kyle's heroic struggle to beat his Mitochondrial Disorder. ^Kyle^ lost his battle on December 29, 2006 at the age of 8 years 1 month and 18 days. He was/is the Light of My life. He was the bravest and strongest boy yet at the same time very kind and loving. His smile could light up a room and I am sure Heaven is brighter because he is there. His laugh was infectious and he had many charms that he worked on the female employees of Columbus Children's Hospital. A charmer Kyle was and IS.
Kyle's mito disorder caused him to have a central line (IV) for his nutrition(TPN). He had a gtube to drain his stomach and a jtube to vent and an ileostomy. He also suffered from a neutrophil chemotaxsis disorder a type of immune deficiency.Kyle suffered a life altering infection in May 2004. As a result of the infection Kyle lost both his thumbs and his right leg below the knee and his left leg through the knee.
Please sign the guestbook and let us know that you stopped by Kyle's page.
Tubeman unvieled. Love this picture of Kyle as Tubeman as it shows his SMILE
The following poem was written for Kyle by one of my fellow teachers at TDA. It captures Kyle perfectly!!!!!
KYLE THE SUPERHERO
BY
AMY WHITAKER
Kyle AKA Tubeman
When I think of superheroes
several come to mind.
Each possess powers
very hard to find.
Spiderman can scale
buildings wide and tall.
Superman bends steel
he's the strongest of them all.
Batman and Robin
can always save the day.
The Incredible Hulk
crushes all in his way.
But when I think of superheroes
I always think of you
For you have more courage
than any of them do.
glitter-graphics.com
Amazing Kyle
Journal
Friday, February 5, 2010 1:48 PM CST
Wow it has been a really long time since I updated Kyle's site. That does not mean that he is not always in my thoughts but at certain times it is hard to journal here.
It is hard to believe that Kyle has been gone over 3 years now. We celebrated his Angelversary in Richmond, Virginia at Dave and Buster's. That was very fitting as we played all of Kyle's favorite games. The little dude even hit the jackpot like Kyle use to.
Time has not made the grief easier or closed the hole in my heart. That being said the intense bouts of pain that bring me to my knees are less often. I am finding that the longer he is gone the more these events are triggered by associations....... the other day I was getting the 2 1/2 yr old dressed and realized that I didn't have any lotion downstairs so I reached under the cabinet and grabbed a travel size container. As soon as I opened the bottle I had to sit down and I started crying. The lotion was the type I rubbed on Kyle after his last bath before they took him away forever. Even after 3 years that smell rocked me to my core.
While our grief journey has changed it is far from over. We will forever miss our special boy until that day we are reunited with Kyle in heaven.
Kyle has played an integral part in bringing us "his little brother". Kyle had wanted a little brother but GOD had other plans for our family. Several months ago a friend let us know about a sweet baby that was in need of a bowel and liver transplant. We had a family meeting and made inquiries. Within a few weeks we went to meet him. Fast forward lots of drama and paperwork but Kyle finally has the little brother he always wanted.....
We brought Kole Ignacio home on January 23. 2010. He is currently listed for small bowel, liver and pancreas transplant in Georgetown. He has short bowel syndrome and is on TPN. We are blessed to have Dr. Balint and all of Kyle's old team seeing our precious new addition.
In our hearts and home, are the same two foster children we have had for the past 16 months. We have nicknamed them the Princesses, she is almost 3 and Little Dude, who is 19 months. If all goes according to plan, they will be eligible for adoption in March. At that point they will become permanent members of our family. Yes, that will give us 3 children under the age of 3.
Kelsey is THRIVING at her new school. She is getting good grades and has lots of friends. She has turned into the typical teenager and we are thrilled. It is hard to believe that she will be turning 16 in a few months. She loves having a little brother. She has fallen back into the pattern of helping me mix TPN and run Kole's lines. She is the best big sister ever.
Thanks for continuing to check in on us.
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