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Welcome to our Child Web Page. It has been provided to keep people updated about our Child. Ashley was diagnosed with Hurler Syndrome on Nov. 17, 2003. Thanks to the Lord and the BMT in Duke Ashley received her cord blood transplant on January 23, 2004. If you wish to see Ashley smilequilts go to: smilequilts.com/ashley.r.html
Ashley received her ANGEL WINGS on June 28, 2005. We will forever love you Ashley.
Journal
Wednesday, November 19, 2008 7:03 PM CST On November 17, 2008 was the day that I received that confirmation that my little baby girl who at the time was only 8 months old that she was AFFECTED WITH HURLER SYNDROME!!!
I wanted to die when I heard this. My life has never been the same since this day and I thought that was bad...LOOSING HER WAS WORSE for I just can't seem to find peace. I just can't seem to be being to comprehend how I lost her so fast. She didn't want to leave me!!!!I didn't want to let her go. I just couldn't stop it from taking her.
Those last memories of Ashley calling out Iyaya three times like asking me mami help me!!!!They just continue to hunt me every day. I try to continue to go on but at the same time that all these memories hunt me I am so grateful for my other two daughters that I have and that are HEALTHY THANK YOU LORD!!! Yeah it's been three long years since that day but I still find myself missing my daughter sooooo much. You just can't imagine. My little girl is always asking me "mami where's ashley, I want to see her I miss her. When Ashley past away she was 4 months old. I guess she knows how important Ashley is in this family and I've always spoken to her about her I guess that's why. I wanted my little Angeley to love Ashley even though she didn't get to meet her (well they did meet but Angeley won't remember she was too young)
Well I got to go I just needed to let this out of my system and let this tears drop.
Take care everybody. God bless you all Please continue to pray for all those strong kids that are fighting to live.
Read Journal History
Hospital Information: Patient Room: Eternal life HEAVEN Duke Univeristy - Pediatric Bone Marrow Transplant Porgram
Links: http://dukehealth.org/childrensservices/ped_bmt.asp Pediatric Bone Marrow Transplant
http://cancer.duke.edu/pbmt/about/default.asp Facilities and Staff
mpssociety.org mps disorders info.
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