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Genna's Place!

Rosie, Andrew, Genna, summer 2018, inexplicably sideways


Welcome to Genna's Place!

We are so grateful to all of you who support us, love us, and pray for us, as Genna battles diffuse brain tumors caused by Neurofibromatosis Type 1...and Rosie fights her own optic glioma & plexiform neurofibroma.

WE MUST FIND A CURE FOR NF!!


*************************************
G's been stable & off chemo since June of 2013 -- next scan in June

Rosie continues to be stable at this time (as of Feb 2017), for which we are deeply grateful.

*************************************

****March 20, 2006:
Genna's Make A Wish Trip..."I want to go to Disney World on a train"--thank you, MAW.****

A SPECIAL NOTE from February 13, 2005: "Mom! I can see stars...you know, those little white things!"...which was a miracle

**********************************

WE REMEMBER OUR ANGELS:

Dani-Ella
Justis
Ryan
Timmy
James
Matthew
Kyle
Jacob
Dakota
Jessica
Sweet Emma Tiki Bird
Hadley
Nora
Drew G.
Erin
Kai
Caitlin
Gage
WINTER
and our beloved Gabbie :(
WE MUST FIND A CURE!!


**************************************************************
Coffeehouse for a Cure 2016 was a great success. Thank you for helping us find a cure.
*************************************

a momentous day: May 3, 2007...I gave back the Braille Writer...an answer to prayer, one I never expected.


**In loving memory of Nora Coletta**

*******and for our dearest Sandy, always in our hearts*****




Run when you can, walk when you have to, crawl if you must; just never give up.
--Dean Karnazes
“WE HAVE TWO CHOICES,
MEDICALLY AND EMOTIONALLY:
GIVE UP,
OR FIGHT LIKE HELL"
(Lance Armstrong)


<

Journal

Thursday, October 4, 2018 12:40 AM CDT

Ok, so this is a new record. Almost 18 months since an update?
Eek.

But in NF/bt world, no news is good news, and Facebook is such a much more immediate way to talk to folks.

Genna is in her third and final year of working towards her Associate's Degree in Early Childhood Education. She has been medically stable, and doing really well. I wish I could help her be less anxious about life and school and all the things--but she works so hard, and has a plan, and is doing great.

College is SO MUCH BETTER THAN HIGH SCHOOL.

Rosie is a junior!! How did that even happen? She is working hard, too--still cheering, still doing circus, still carrying a full load of service along with honors and AP classes. Her school is such a wonderful, faith-filled, academically challenging place. Every day I am grateful she is there. Her next scan is in November, and it is a bit longer (including spine this time), so...phoo. Praying for continued stability. This is a worrisome age, but she is doing great.


Andrew is figuring out grown up stuff, working towards his mortgage license and coaching young kids at the baseball school he went to...when he isn't umpiring. Yes, he is still at home (student loans are no joke). I am glad he is here.


And...I quit my job in June. It was a long, long time coming, and I am happier and more peaceful now than I have been in a long time. I am the facilitator for an online graduate course, and on the sub list for Rosie's school (haven't been needed yet! I am the newest on the list, so I am not surprised). I got my flu shot already so I will be READY when contagion eventually strikes. ;) I am writing again, and spending about half of each day chauffeuring my girls.


Dave is working hard, as always. He just ran the Philly 1/2 Marathon for the 12th straight year. I am so proud of his tenacity.


We are blessed. We are lucky. We have had so much going on. For more up to date stuff, find us on Facebook (I am KM Cams there), or follow my blog at

https://kmc-movingrightalong.blogspot.com/2018/10/zen-and-memory.html

I am working on writing about how I am trying to find peace and zen after so many years of emotional turmoil in our family.

Peace to all of you who think of my girls--please continue to pray for them. NF doesn't go away. We lost one of my dearest NF friends this summer, and...sigh. I have no good words about that. Please don't ever stop praying for my girls.

peace,
k

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Hospital Information:

Children's Hospital of Philadelphia
34th Street and Civic Center Blvd.
Philadelphia, PA
(215)590-3025 if you want to schedule something oncological, I hope you don't have to, ever.

Links:

http://www.timothypauxtisfoundation.org   One family's fight to cure pediatric brain cancer
http://www.kmc-movingrightalong.blogspot.com   my blog in which I try to not obsess about medical stuff
http://www.ctf.org   The new website of the NF Foundation, with lots of info on NF (obviously)


 
   
 

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