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PAIGE ELYSABETH DAVIS 
MAY 14, 2003-JANUARY 14, 2005
Thank you all for visiting our website and continue to pray every day for my li'l angel. To start out with the amazing story of my special little girl, I am going to tell you the amazing journey that this strong little fighter had to go through. Paige Elysabeth Davis was born on May 14, 2003, which was the happiest day of my entire family's lives. Time went on and Paige seemed to be developing at a faster rate then the normal child, by the time she was on she was putting 2 words together to let us know what she wanted. This little girl is amazing she climbed up the stairs just by holding on to the rail (of course daddy was behind her), this was all before July 4, 2004, the day my daughter woke up with the whole right side of her face paralyzed. We took her to the E.R. at Childrens Hospital of Michigan, and they had tons of doctors come in and talk to us which everyone of those doctors asked the same questions over and over and over again. After about an hour of this we finally got a neuro oncologist to look at her he looked at her and told us she had bells palsy, a disease that paralyzes one side of the face. The doctors gave us steroids and zantac to give her to help take care of this, then just sent us on our way. They didn't give her any scans no tests nothing to see what the problem was, then told us to call and make an appointment for her to have scans done. My wife called to set up an appointment for an mri when they tol her it was going to be at least 2 months call back every week to see if there has been a cancelation, so she did. Now a month goes by and Paige wakes up one morning with her head tilted to one side and can't walk, so we made an appoitment to see her doctor who told us she didn't know what was wrong to take her to the E.R., so we did. They admitted us kept her over night and the next day they finally did an mri, come to find out she had a tumor the size of a plum in her right cerabellum.
Worst news we have ever recieved in our lives, to have a happy healthy baby and find out that she has a brain tumor the size of a plum in her head just tore me and my wife apart we were both dreaming. Had my litte girl baptized the day before her surgery to remove the tumor, which by the way they told us it was benign. Now for the surgery they had to transport her to a different hospital which thankfully was only through a tunnel, the surgery lasted 8 hours which praise god went great. After they closed her up the doctor came out and told us that they got 99% of the tumor out, which was great news, but she crushed our hopes by telling us that the tumor was malignent, our little angel has brain cancer. Childrens Hospital watches her for a week to make sure every thing goes well and she does fine. That week that we were there was one of pain (for Joyce and I), they told us the options around chemo and how they treat other paitients but not what type of cancer it is. The doctor that performed her surgery came up and talked to us and told us that she had ependamoma, a cancer that isn't as hard to treat then the others they think it is. The week is over and we get to take our li'l girl home, its now been a week since we found out our daughter has brain cancer and have been told what the doctors think it is. Another week goes by and the hospital has called 3 times in one day and given us differet diagnosis of what it could be each time, then they called back and told us that they would know for sure what it is in a week. Well we were not gonna wait a week to find out how much time we have to treat this, so me, Joyce, and our parents went to the hospital and didn't leave untill they told us everything they knew. Turns out my daughter has ATRT a rare form of pediatric cancer, the way Childrens Hospital wants to treat this is to do blanket radiation and high dose chemo, or we can get a second opinion.
Thankfully we chose the second opinion, because thats how we ended up at St Jude, the most wonderful place I have ever been. Now the great doctors at St Jude told us the same thing, that it was ATRT and was very hard to treat, but they had different plans on treating it. About a week later they do scans to tell them where they are as far as time wise, they do the scans and tell us that we have to start chemo a.s.a.p. They started her on the first chemo treatment, got her though those 8 weeks and seemed to turn everything around. What I mean by turned things around is that my daughter was now walking again, talking like normal, almost back to my little girl. We got a break from chemo and from being away from home, we got to visit for halloween, got back to St Jude, got her scans done and was told more bad news, that she had new tumor growth even with chemo. So now we have the option to go home or try another form of treatment to try and kill this terrible disease, so we go with the chemo. She goes through that chemo and everything is going great she seems to be doing really well walking once again, they tell us we have 2 weeks off from chemo and let us go home for Christmas. Miss Paige had a great Christmas, she was climbing up the stairs by herself and everything, best thing i have ever seen. Christmas is over and we are back at St Jude to have more scans done, now this is the worst we got even more bad news, that she has new tumor in her left ventrical and a new one in her left cerabellum. The wondefull doctors who did everything in their power to save my little girl were telling us that there is nothing more they can do for my angel. We left Memphis Tennessee on January 3, 2005 and came back home to Michigan, were we now are and if you would like to know more just read the journal entries.
Thanks to all who have read this, may God be with you in everything you do.
*HUGS* TOTAL!
give MISSPAIGE more *HUGS*
Get hugs of your own
Journal
Friday, May 14, 2010 0:11 AM CDT It was at this time 7 years ago that I learned why they call it LABOR. I went into labor with Paige May 14, 2003 at 1:10 am, and the little stinker didn't decide to make her apperance until 3:52 pm. I had one heck of a night, terrible back labor, and she came out face up. I knew then, that Paige was going to do things her way.
Paige was the most precious baby I'd ever seen. She had porceline skin and a perfect complexion, ten fingers, ten toes, and a perfectly rounded head with little chubby cheeks. She weighed in at 7#1oz and was 21 1/2 inched long. So healthy and strong, so perfect.
Paige was such a joy, such a blessing. She was such a happy baby. She was so smart. She had feelings and emotions babys shouldn't have. Her eyes were the deepest blue like the sea, and were filled with wonder and amazement. They were endless, I could have stared into her eyes forever.
Paige was amazing, in her 20 short months she taught me a life time of lessons. She taught me true love, strength, hope, how to live life, how to accect unchangeable things, how to cherish each moment, how to treat people, to not judge, courage, compassion, everything... My life has been blessed by my 20 months with her.
I am so thankful for those 20 months. I am honored to have the opportunity to be Paige's mom. She was so special, and still is. I live a blessed life, I work through the pain of losing my daughter everyday, but I'm still blessed. I would rather live a life time of pain from the loss than live a life time of not having had her at all.
Today on Paige's birthday I'm not going to mourn the loss, but rather celebrate her life and my many blessings because of her life.
HAPPY 7TH BIRTHDAY MISS PAIGE!
Paige
Mommy misses you more than any words I type can describe. I wish I could watch you grow, rub your bald head, smell you skin, hold you in my arm, the list is endless. Happy Birthday sweet angel.
I love you baby girl,
Love,Mama
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Hospital Information: HOME
30060 King Rd.
Romulus, MI 48174
734-753-5560
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