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Dr. I. and Isaiah at check-up in Flint - Spring '08
"I sought the Lord, and he heard me, and delivered me from all my fears". Psalm 34:4
Isaiah was diagnosed on October 31, 2000 with Acute Lymphoblastic Leukemia (w/Philadelphia Chromosome - Very High Risk) and relapsed in the Central Nervous System on July 22, 2002. On November 26, 2002 Isaiah received an unrelated cord blood stem cell transplant at Duke Medical Center, Durham, NC.
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Journal
Wednesday, June 18, 2008 8:16 AM CDT School is OUT!!
It has been a good school year for both the boys. They have really done a great job considering we moved to a new home and school new district. Socially it has been much more difficult to adjust. .It has been a busy few months wrapping up the end of the school year with concerts, project deadlines and exams.
Mishael went on his school trip to Washington in late April. They seemed to have a fantastic and educational trip. Of course out of all the kids on the trip (almost 300) our son was the only one to get a trip to emergency! No need to go into detail other than to say that Mishael ran into a pole at full speed, and hurt his shoulder. Fortunately, no dislocation or breaks --just lots of pain. It healed well and we are thankful.
Isaiah ended his school year with a great report card and that makes us happy because we see that in spite of all the treatment he is able to do well when he works at it and focuses. Getting there is not easy as he is often overwhelmed and when he feels like that is incapable of working very efficiently. It can be a struggle as he actually starts feeling very ill on top of everything.
As I write this, Isaiah is at camp already. He decided to try the Catch a Rainbow camp (American Cancer Society sponsored) for the first time. We are anxious to find out how things are going but will have to wait a few more days.
Health-wise Isaiah is doing well. His chronic skin condition ([GVHD] dryness and rash) which he has lived with for years seems to have finally “burned itself out”. Topical creams that we used every day (both immunosuppressant and steroid creams) we use very rarely –so this is a nice change. However, we are ready to apply quickly if the sun (or anything else) causes any skin flare-ups.
Last week Isaiah and I were in a fender bender. Praise God that we were not hurt but just shaken up. We were on the way to the orthodontist because Isaiah has some issues with teeth growing completely sideways in the gums. The latest is that the rest of his baby teeth need to be pulled very soon and orthodontics are needed to be able to make room for the teeth. We don’t know if they will completely straighten out or if he will need some surgery to help that along. I guess I wasn’t ready for all that happened that day and the cost that we did not plan on. But, that’s life and putting it in perspective makes it easier to deal with.
Sal and I have planted a big garden this year and honestly don’t know exactly what we’re doing. We’ve planted a small garden in the past but this is now double the size and more of a variety. On the subject of variety --somehow thistle has invaded this area and it is incredibly difficult to get rid of. We look forward to the fruits of the labor minus the thistle.
Thank you for thinking of us and still checking in on us. Please sign our guest book and let us know you stopped by. It is very much appreciated!
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