WESLEY JACOB

Collin as Boris in "You Ain't Nothin' But A Werewolf"!!!

Thank you so much for visiting my three year old son Wesley's web page. He was diagnosed with Fanconi anemia at age one which is a rare bone marrow disorder that eventually leads to marrow failure. Wesley was born without ear canals, both of his kidney's are fused together on the same side, and both thumbs are missing a bone. Despite his FA diagnosis he is a wonderful, funny, loving little boy with a beautiful personality. His smile lights up a room and touches the lives of everyone who meets him. It is said that many FA children don't live to reach adulthood. We're working to help change that with your help. Please consider donating at fanconi.org to help cure this difficult disease. Thank you for following our journey.

Cool Slideshows

Journal

Monday, July 14, 2008 4:26 PM CDT

Working on another site. I am so confused but I'm trying! Patience Mrs. Crunch!

Okay, try this. Thanks a lot Teresa for making me feel like I could do this ;0)



Wesley's New Site

Read Journal History

Links:

http://www.fanconi.org   go to family services,FA web pages and read about other FA families like Davaan, Abbey, Nicholas,Maria, Emma, and Coley
http://cliftonclan.blogspot.com/   Emma Clifton's page
http://www.picturetrail.com/gallery/view?username=emmygirl02003&x=19&y=2   more pictures of our family

E-mail Author: emmygirl02003@aol.com

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Note: The foregoing information was authored by the patient, parent or guardian, or other parties who are solely responsible for the content. Such announcements or their content are not necessarily endorsed by CaringBridge, Inc. or any sponsoring agent.  This information does not confirm that anyone is or was actually a patient at any facility.