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< The music is POOH Cooner By kenny Loggins
WINNIE THE POOH HELPED ME CLEBARATE MY 30TH BRITHDAY ON JAN 18.
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What are uterine Fiorbos?
uterine firbords are non cancers fatty tumors found inside a womens. This cause a women Urtiris to become destorted and in the right place it cause a womens uritris not to be able to clamp down on it self after the mouthly cyle. There for a mouthly cycle is exctented as long as 22 day and then becuse the body thinks that it time to ovalte again the next cyle is right on top of Your last cycle. Also huge clots are past becuse the body is trying to clamp down but can not do it. So women could bleed to death by haveing her cycle too much and becomeing so ammimic. That her body cant keep up with it self.
If they are are non cancers I don't need to worrie right.
For Most women who have them have no symotoms. No Sympotoms you dont need to worrie.As my mother has them and has no symtoms. In my case i not been so lucky. I surffer from Amina from heavy prolgoned mestral cycles. ( My mestral cycles are often 10-19 days with less then 7 day brake With heavy bleeding and passing of huge clots.) Pain from the firbord it self and it location. And it has also case me to become have trubble being able to consive.
What are the treatments? Is there a cure?
It depends on your syomtoms. Most women use brith control to try and control the bleeding but in my case i cant take it as it makes me so sick.( Migrans vomiting, nausuness acky feeling and moodness and sever depresson). Also this is a dubble edge sord as the estrgne in the pill while controling the bleeding also makes the firbor it self grow. In my try and treat the syomtoms with pain mangemnt / iron for the aminma/
MY STORY
In 2002 I came down for the frist time in my life with step thought. I suffed from migrans my whole life. Theses were getting worst and we had no explantion so we switched migran meds to Imtrex. In decmber 2002. I had a philical with my Primary care dr and I asked her about spotting. She said it not normal to spot. And told me to follow up with OBGYN. And gave me the name of one she liked. I made an appt. for two weeks latter. At that appointment she asked me about my mentral cycle. I told her it was normal i was going though 2 tampons an hour. She explaned to me this was not normal. And thought i had Polly cycstic overen sydrom. She said she wanted to regate my peridos and order an ultra sound that showed a 5 cm fibord. She told me to come back if i was bleeding heavy over 1 tampons an hour. My blood work show i was ammimic. This explaned my step and why my migrans were worst. I was told to take iron. I came back several time we played with the brithcontrol. I started vomiting conetely, Haveing mirgrans that would last up to five day with out relife from my normal migran meds. And sever deppersion and mood swings. After the 3 mouth of this my perction ran out she took me off the pill. Mean while she did an office hystocope and saw my large firbord. Then we seculed suregry to remove it. All went well for about 10 mouths. Then my bleeding came back. She order other ultra sound and showed the firbord had grown back. But was now 6.5 cm. She suggested we try surgery again. There were complations the second time and she did not remove all the firbord. I found no relife from my bleeding. Only this time i was haveing base ball size clots that woukd push out my tampons. In Feb O4 I insted on being seen again. DR chung my obgyn came up with the Idea of Merria.( IUD with hormons) Gave me 2 days to think about it. We put it in that weekend i devluped cramps. I called my dr she told me drink lots of water and take adivil. The next week My merria as i was getting my metral cycle My Merrina pushed it self out. I called the OBgyn office who told me DR chung had left the parcitce. But they would have Dr Wobble see me. And we would talk about another Merria. Set up an appomenint for the next day. I told Dr Wobble I would not have another Merrina. I was haveing migrans again, and was concetley hurgry and i had gained 5 pounds. We talked about what to do next. She suggested depo Lupron and mentented a few side effects. Said it was a "life time cure" I found out you should not uses this for more than a year. Handed me a mentral chart. But igored me when i said i was tired again alot. I took the mentral chart and went home and cryed.
With no were to trun nothing to do. I went home and waited. About 1 cycle latter i started haveing stabing pains In my left side Vomiting. My counts were taken and i was sent to brigam and women hospital for an ultra sound and possbule transfutions. There they thought it was a bust cyct. I was haned percest told to go home. That sat my Mentral cycle begain again. This time very hevay as noramal. But this time i was short of breath when i was walking around. I prodied to vomit all sat and on to sunday and monday morning. To the point were i was just haveing dry heves. Monday Monring I woke up drenched in blood short of breath very dizzy. i feel down my stairs and sat there and Cryed. I did not want to get up. But lilly lulu ( my cat) wanted to be feed. I called the Dr office who told me to come in right away. When i got to the dr office. She took one look at me and ordered me to lay down. Keeped saying how plae i was. She imitely started an iv and i was transfued to brigam and womens for Blood transfutions, and a ct scan. This showed my firbord had grown back. I was told to follow up with my Primary Care dr and OBGYN. I found Dr steward by her repaution. From the unterin firbord list on Yahoo. I Rechured her and knew she was the one to get this firbord out. I Told my primay care i wanted to see Dr Staward and only Dr stward. It took 6 weeks to get in. But she was very compaite about the whole thing. And argeed something need to be done. MRI was taken. and counts were done. It was recomened that we do an adomibal Moyocypey. But that i would need to get a transfuton and an iron transfution before sugery. This page is about my struugle and my recovery from major surgery.
Augest update
I had my Surgery on 7/27. Dr stward found i had one base ball sized firbord growing and one very small little one. I had Iv iron the day before that i had an alrigic recation to. So never got the full dose. But got enough to make a diffence. How ever i still walked in with a low blood count and any blood loss would send me over the edge to transfution. I did need 2 units drunng the surgery. And was still too low so i had 3 more units of what should have been four the next night. However on the 3 unint i broke out in a rash devluped a fever and chest pains. My blatter had trubble wakeing up that landed in a second folly going in. That lead to a Nasty UTI. That lead to a second hospital stay this time for nausaus and vomiting that lead to dehirdation and a nice vist with my freind IV pole for 2 extra days. Also it took my bowals a few extra days to wake up. It was day 10 before they past anything more than a qouter. Even with the help of stool soften and suportorys. My frist mentral cycle has proven that this all was an amazing success. As it was less then 7 days with NO heavy sokeing bleeding. Also my counts are now normal. Giveing me ton of engery i never had before. How ever the Nasty UTI seems to want to linger.
October update:
It has been now almost 3 mouths since i had my mayo done. Over all my metral cyles are not as long and nearly as heavy. I am still haveing
UTI issues and numbuness and pulling
over the surgeral sight scar tissue or assitions are supueted for this discofort.. But still very very glad to have my life back for my mertal cyle
Feburary update. In decmber agist all odd i found out i was haveing a babby. This was a very happy moment for me. On my 30th brithday i found out not just one babby but twins. and my firbord had grown back but was only 3 cm. And was not to worrie about. In Feb I started haveing pain to the point that i was sure i was loseing the babbys. Lucky the babby seem okay. But my kidney and Blatter were found to have damage due to the UTI that keeped coming back. And had backed up for so long into my kidneys. A folly cahter was placed in and I was told to follow up with Urolgigy for the batter issue and Neferolgy for the kidney probelms. Refured to High risk obgyn. And was told there was a good chance i could have all sorts of complations. And very well might miscarry one or both of the twins. And That If i dont I am looking at a hard prencey with early bed rest lots of monetering. And would deivlier By c-cention in the ICU oprateing room with ICU montering after becuse of the complexty of my kidney issue. I was also told alot of the meds used to treat my problem were no long an option becuse of the babbys,
March update
The problems with my blatter still are a problem i am waiting for Uroigliy / GYN to get involed. I still have pevic pain due to the babby getting bigger pressing on my blatter. It was also pointed out that my kidney problems are most likey due to a Fuild filld cycst on my kideny as well as I have an Cyst next to my left Overy. I have deciced Not to go with the High risk OBGYN. As she scard me. I have also will not be useing the other obgyn that i been seeing and are in the proccess of picking a new dr. Over all it is all atgreed that these babbys are merical childen and I feel bless to be there mommy. As it took alot of work for them to get here.
********MY MAYO WAS DONE ON 7/28/04 BY DR ELIZABETH STWARART OUT OF BRIGAM AND WOMENS HOSPITAL BOSTON, MA...... THERE WERE A FEW BUMPS AKA COMPLATIONS ALONG THE WAY BUT OVER ALL I AM VEARY GLAD IT WAS DONE. THANK YOU DR STWARART YOU CHANGED MY LIFE...***
Journal
Sunday, November 12, 2006 9:45 PM CST I think I am Just going to stop something need to be left for me and my family. I am feeling the need to just be with them right now
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