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SYDNEY SIMS
CHRISTMAS 2010
FIRST DAY OF 7TH GRADE!!!!!
January 15,2004 Diagnosis Neuroblastoma stage 4
January 20 May 2004 All Childrens Hospital, FL 4 high dose rounds of Cyclophosphamide, Doxorubicin, & Vincristine Chemotherapy 2 high dose rounds of Cisplatin & Etoposide Chemotherapy Stem cell harvest
July 2, 2004 Memorial Sloan Kettering Cancer Center NY Surgery tumor resection, left adrenal gland, and lymph nodes
July 19,2004 MSKCC 1 high dose round of Cyclophosphamide, Topotecan, & Vincristine Chemo
September 2, 2004 MSKCC Radiation to left femur 10 treatments 1 high dose round of Cyclophosphamide & Irinotecan Chemo
October 2004 MSKCC ***1st clean Bone Marrow biopsies (No Evidence of Disease)*** Only disease located in left femur Began round 1 of 3f8 antibody treatment/GMCSF followed by Accutane
November 2004 MSKCC Round 2 of 3f8/GMCSF followed by Accutane Acquired HAMA (Human Anti-Mouse Antibody) Successful Stem Cell harvest Radiation to Skull 10 treatments Radiation to Orbits 10 treatments Radiation to Abdomin 10 treatments
February 21, 2005 MSKCC Round 3 of 3f8/GMCSF (Stopped treatment 3 days into it due to allergic reaction) Continued on Accutane Acquired HAMA again
April 17 2005 MSKCC Completed round 5 of Accutane, stopped treatments toxic
April 19,2005 MSKCC Disease ***RELAPSE*** in Bone Marrow
April 25,2005 MSKCC 1 high dose round of Cyclophosphamide, Irinotecan, & Vincristine Chemo
May 31,2005 MSKCC 1 high dose round of Cyclophosphamide, Irinotecan, & Vincristine Chemo
June 2005 MSKCC *** Bone Marrows NED ***** Persistant spot in left femur Began Low Dose Temodar Chemotherapy, Thalidomide, & celebrex (T.T.C.) Completed 6 cycles
February 2006 MSKCC MIBG scan results Spot in Femur Appears to have intensified
March 16,2006 MSKCC Radiation (2nd time) Femur 7 high dose treatments
March 20,2006 MSKCC 1 high dose round of Irinotecan chemotherapy followed by 2 cycles of low dose T.T.C.
June 2006 All Childrens Stopped Temodar chemo, (low blood counts) Continued Thalidomide, Celebrex
September 25, 2006 MSKCC Began round 1 of 3f8 antibody/ Beta Glucan
October 31, 2006 MSKCC Round 2 of 3f8/beta glucan
December 5, 2006 MSKCC Round 3 of 3f8/beta glucan cut short 1 week due to HAMA
December 18,2006 Round 1 of Accutane
Jan 15, 2007 Round 2 of Accutane
February 12,2007 Round 3, 4, & 5 of Accutane, still HAMA Disease remains in Femur stable
May 2007 RELAPSE - SYdney has a new tumor on her aeorta behind her heart
June 2007 Surgery to remove new tumor, Chemotherapy - 5 rounds so far of Irinotecan/Temodar Radiation - 10 "hits" to new tumor bed
December 2007 1/2 round (1 week) of Heat induced, High Dose 3F8 antibodies (12 Xs the strength of previous 3f8) Acquired HAMA after first week
January 2008 1 round low dose Temodar chemotherapy - marrow was too weak for it - took 6 weeks to recover, stopped chemo again
February 2008 Started Accutane for the 3rd time
APRIL 2008 Started Thalidomide and Celebrex again - completed 4 cycles
JULY 2008 Scans show stress fractures in Left Knee and left Tibia bones. All other disease - stable
AUGUST 2008 Starts 5th cycle of Celebrex and Thalidomide. Disease is stable in left femur - possible new spot in right hip (questionable)
SEPTEMBER 2008 Cycle 6 of Thalidomide?Celebrex>
OCTOBER 2008 High -Dose 3f8 - one round (12x's the normal dose)- HAMA positive after one cycle
NOVEMBER 2008 Started back on Thalidomide/Celebrex Scans are still stable with only disease in Left Femur
JUNE 2009 Sydney continued on the Thalidomide/Celebrex combo every month since last November. Scans this month showed NED - No Evidence of Disease on the MIBG scan. First time EVER!!!!!!!!!!
JULY 2009 Sydney was the first patient ever to start the phase 1, new Neuroblastoma Vaccine protocol at MSKCC.
SEPTEMBER 2009 Sydney received her 4th injection of the NB Vaccine. Scans good and stable
NOVEMBER 2009 5th vaccine Inj. Scans
MARCH 2010 6th Vaccine Injection, scans still NED
July 2010 7th and FINAL NB VACCINE INJECTION!!!!! Still NED (1 year), Off Treatment for the first time ever since diagnosis!!!! Way To Go Sydney!!!
This is a summary of Sydneys cancer treatments ONLY. It does not include the countless number of Blood Transfusions, CT scans, MIBG scans, Bone Marrow biopsies and surgical procedures, GCSF shots, antibiotics for infections, and many, many hospital stays. She has been through A LOT, and she is go ing to BEAT THIS CANCER!!!
Please sign the guestbook, so Sydney will know who is checking in on her!! We love to hear from everyone!!
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If you would like to make a donation to help the family with all of the extra expenses and suppliment the loss of income, a fund has been set up for that purpose. It is called the Sydney Sims Family Fund. Rhonda Spradlin, the trustee, set up the fund, and handles all of the transactions at Bank of America. The fund helps the family pay some of their monthly bills, along with plane tickets and other expenses incurred during travel. Checks can be made out to....Sims Family Fund and mailed to... Trustee @ 2817 Durant Trails Blvd. Dover, FL 33527 Thank You
Sydlets are bracelets, necklaces, and ear rings made by Sydney and her mom. They are made with Swarovski crystal beads complimented with a sterling silver awareness ribbon, so they can be worn proudly, and spread the word on pediatric cancer, and the brave warrior children, like Sydney, who fight everyday for their lives.
Journal
Friday, February 25, 2011 12:56 AM CST We are finally finished with the hospital!!!!! Yesterday started out rough with the MIBG scan. Her port was not working properly and they had to flush it multiple times. We finally got through that. Then we had our visit with the endocrinologist for a consult of her late term side effects. It was hard to hear all of the possible horrible things she has to look forward to later on in life. There are so many late side effects, and each chemotherapy drug has different effects. Some affect the heart, liver, brain, hormones, bones, eyes, ears,etc. You name it, it can be affected later on in her life. Plus she is at high risk for developing other cancers.....DEPRESSING!!!! She had a 30 minute pulmonary function test, and we were out of there by 2. We caught a cab and headed for Times Square. First we went to the Wax Museum. It was so much fun and we took tons of funny pictures with the stars. They are on FB. After that, we had some much needed retail therapy, followed by dinner at the Hard Rock Cafe. It was a great Girls night out!!! Today we headed in early for her bone marrow biopsies. They went as expected and she had her first 4 immunizations while she was under. She is very sore now, but recovering nicely. We have results for 2 of her scans so far. The MRI says in a nutshell "no new disease". To me that implies that there is old disease, however her Dr says everything is ok. The MIBG scan says "no MIBG Avid disease". Again, I am confused by that because it normally says, no evidence of disease. Anyway, the way the person who ready the scan, words everything can be confusing. I will just go by what her Dr says and believe that she is healthy and has no disease. We still are waiting on the biopsy results and the urine results..... sometime next week for that. We fly home in the morning. Today will be spend in bed resting and recovering. Thank you sooooo much for keeping Sydney in your prayers this week!! Michelle
SORRY FOR THE DOUBLE POST FROM TODAY. I DIDN'T THINK THE OTHER ONE WORKED FROM THE HOSPITAL. OH WELL....
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Hospital Information: (Home) 6488 Chadwell Ct Indian Land, SC 29707 (Cell #813-310-5485)
Links: http://www.loneliestroad.org http://www.sydlets.com http://www.cookiesforkidscancer.org
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