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From Cayucos, California
Welcome to Matthew's web page. This web page has been made to keep our family and friends updated about Matt's progress and fight against Neuroblastoma.
Matthew was diagnosed at almost 2 years old with Stage III Neuroblastoma on September 26, 2002. He has had 7 rounds of chemotherapy, surgery, a stem cell transplant, 12 radiation sessions, a second surgery at MSKCC, and lastly mononclonal antibodies ch14.18 with IL-2. Matt finished treatment in Jan. of 2004. We have ten years from the time Matt was NED(no evidence of disease)so we are counting down until 8/14/13-Until then we are living for the day! We would love to hear from you. Please sign our guest book!
Thank you, God, For my child. It was your love that initiated this life, brought it to a successful birth, and now sustains it through your power.
I marvel at the miracle of modern medicine that allows my child to live. Your wonders are worked through the skilled hands of the physician, the delicate care of nurses and the incredible technology that is your gift to this age. Yet when I look at my child with the array of tubes extending from his body, I am frightened, God. I realize how fragile my child's life is. I feel so powerless, and fear lest the life you have given be taken from us.
Your world is filled with people in crises, God. Each time they came to you for help your response was, "Fear not." You asked merely that they put their faith and trust in you. Help me, God, to trust. Let me remember what you said about the birds of the air, the lilies of the field, and human life. If you care for the grass of the field which is here today and gone tomorrow, how much more will ou care for my child, who is made in your very image?
Guide the hands, minds and hearts of those who serve my child in this time of need. Bring my child to full health that I might parent him to adulthood. Alleviate my fears and bring me your peace.
Amen
God, please bless our family and all the families fighting this terrible disease. Please give our children the miracle they need to that they can show the world the power of your love.
He's My Son
by Mark Schultz
I'm down on my knees again tonight
I'm hoe'n this prayer will turn out right
See, there is a boy that needs your help
I've done all that I can do myself
His mother is tired
I'm sure you can understand
Each night as he sleeps
She goes in to hold his hand
And she tries not to cry
As the tears fill her eyes
Can you hear me?
Am I getting through tonight?
Can you see him?
Can you make him feel all right?
If you can hear me
Let me take his place somehow
See, he'e not just anyone,
he's my son
Sometimes late at night I watch him sleep
I dream of the boy he'd like to be
I try to be strong and see him through
But God, who he needs right now is You
Let him grow old
Live life without this fear
What would I be
Living without him here
He's tired
And he's scared
Let him know that You're there
Can you hear me?
Can you see him?
Please don't leave him
He's my son
Journal
Friday, December 12, 2008 10:26 AM CST Hello wonderful friends and family!
Today is the start of our Christmas break-yipee. Yesterday Matt got his blood taken for his 6 month check-up. Blood draws are still emotional-even though I put a synera patch on him-and he didn't feel a thing. Its always the fear of the unknown. Thankfully draws are every 6 months and he doesn't ever remeber the last one. Monday we will see our local pediatrician for Matt's physical. The days of IV's, bone scans, CT's and MRI's are hopefully (forever) in our past. Next May we will see our doctors at MSKCC but they have made it clear that we really don't need to see the oncologist (Dr. Modak)anymore. We are still counting to the dreaded 10 year mark and will continue to see our doctors until then.
We are looking forward to some fun time these next 3 weeks. Everyday Matt counts down the days to Christmas. He loves Rudolph so much that he wants to be a "deer helper" when he grows up.
I will update again soon. Have a great Christmas! We will upload some new pictures of Matt and his sister soon.
Forever Grateful for all the support and prayers. Forever Grateful for God's daily presence in our life.
Love,
Debbie
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