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Hadley Kaylynne Fox

9/27/2000-12/12/2008


Princess Hadley



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Photo Taken July '08

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For I am conscious of my thoughts about you, says the Lord, thoughts of peace and not of evil, to give you HOPE at the end.
Jeremiah 29:11














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Hadley's Diagnosis:

  • Frontal Lobe Brain Damage

  • Hemiplegia

  • Diffuse Bilateral Thalamic Glioma (Brain Tumor).

  • Terminal Diagnosis: Glioblastoma Multiforme (GBM)-a grade 4 highly malignant tumor.

Hadley's Treatment to date:

  • 2 12-hour brain tumor resections, 4-27-04 and 10-13-04

  • 4 Broviac placements

  • 1 Medi-Port placement

  • 3 units of donated blood...THANK YOU!!!

  • Countless MRI's

  • Countless hours of physical and occupational therapy

  • 4+ months of chemotherapy (TPCV trial for low grade gliomas - failed to stabilize tumor)

  • Carboplatin and Vincristine chemotherapy from 11-5-04 to 3-1-05 (ANOTHER chemo failure)

  • 'Chronic Low Dose' Schedule Temodar failed after 2-3 cycles...but, is still slowing growth slightly.

  • One Cycle of Chronic Low Dose Temodar (higher dose over a longer period of time than the standard dosing schedule)Temodar and added Thalidomide.(FAILED)

  • Currently on a Phase 1 clinical trial (PBTC 018). The chemotherapy is named Lenalidomide (the new generation/more 'powerful' Thalidomide). Thalidomide is an oral drug...taken in capsules that at THIS point cannot be opened and compounded.

  • ***Hadley has COMPLETED the Leanlidomide trial and has remained stable since completion (3/16/07)

  • ~Relapsed 2/08...new tumors found.~

  • 06/08~ Hadley's family and Medical team made the heart breaking decision to end treatment and live life 'the Hadley way'.


Worrying about your children is SANITY, and sometimes being that sane can make you CRAZY.
- From Spanglish

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Visit Miss Morgan, our local miracle.







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Journal

Friday, September 9, 2011

Today we 'adopted' an 11 year old girl from Kenya for Hadley's 11th birthday. Her name is Moraa and her parents struggle to provide food and other basic necessities. Hadley loved people and would definitely like the idea of giving HOPE to children in a very tangible way...and I can't bear the thought of a child dying needlessly. So, in honor of Hadley, we are making a very small change in the world, but a big change in Moraa's world.

If you (mostly family) would like to honor Hadley for her birthday I encourage you to check out this page: www.WorldVision.org
You don't have to sponsor a child monthly to give. There are options for one time donations too. For example, you can provide 2 living chickens for a one time $25 donation, or $385 worth of lifesaving medicines for a one time $35 donation!!!

Happy Birthday Hadley Bug. We miss you, love you, and hope you are proud of the HOPE we are trying to keep alive for you! <3

If you do decide to make a gift, please share here so we can see the great things happening in memory of our girl! <3

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Hospital Information:

Patient Room: HOME

Doernbecher~Legacy Hospice Services (Home)



Links:

http://www.foxfamilyfive.blogspot.com   The Fox Family Blog
http://quiltsoflove.com/quilt_2004/hadley_KF/hadley.html   Hadley's PERFECT Quiltof Love
  


 
 

E-mail Author: CoastieFoxes@yahoo.com

 
 

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